Levo and Lio: So my Endo sent a letter back to my... - Thyroid UK

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Levo and Lio

dpa87 profile image
4 Replies

So my Endo sent a letter back to my GP to reduce Levo from 150 to 100 and to add 20 Lio. I started this last Thursday and within hours felt a difference. Besides feeling better my cycle started up after months and months of "menopause" 😳 Endo said to try for a few months to see if symptoms improve as my blood results were showing as fine. My GP made it very clear that she was shocked at the cost of the Lio which I chose to ignore but she said she would only supply a month at a time due to cost in case I it didn't agree with me 😡 Most frustrating as I pay my taxes and therefore should be entitled to meds??? Question is can my GP refuse to continue with the Lio if the Endo has advised to prescribe?

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dpa87
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shaws profile image
shawsAdministrator

I am pleased you've had such a good effect as I did when T3 was added.

It is an extortionate price that MP charge the NHS and the 'Powers that Be' maybe pleased about this as it then makes it difficult to be prescribed by the surgery. It used to be about £29 and has risen far beyond that. As it is the only one to be 'licenced' by the MHRA doctors are unwilling to prescribe a lower priced but brand names of T3 on a 'named patient basis'.

I can understand your GPs insistence on you trialling T3 first to see how it suits you. Of course the surgery might have to consider the extortionate cost of MPsT3. An excerpt:

" In the USA, when patients get their prescriptions filled for T3 (usually the brand Cytomel), the pharmacist usually gives them a leaflet on the product. The leaflet contains the following statement:

"NO COMMON SIDE EFFECTS HAVE BEEN REPORTED with the proper use of this medicine." (Medi-Span, Inc.: Database Version 97.2. Data © 1997.)

This statement makes a fact perfectly clear: When used sensibly, T3 is extraordinarily safe among prescribed drugs. When I say extraordinarily safe, I’m comparing T3 with drugs such as the amitriptyline which your rheumatologist prescribes for you."

Your GP may be willing to source a lower cost Brand T3 details below (Cytomel for instance states that :

thyroiduk.org.uk/tuk/treatm...

thyroiduk.org.uk/tuk/treatm...

dpa87 profile image
dpa87 in reply to shaws

Thank you for your reply my GP advised one months supply was about £200 which is really high but I have to consider my health and so far I really am feeling the benefits 😀 Long may it last

Angel_of_the_North profile image
Angel_of_the_North in reply to dpa87

In many European countries, a month's supply is just a few euros. It's not our fault that the NHS purchasing policy is so flawed. But it does mean that you can afford to buy your own if the GP decides not to continue.

langdocienne profile image
langdocienne

I wonder where the NHS get the T3 from, they should get it from Greece, I buy mine in Crete when I go on hols, got a load of it.  It costs 1euro 16 cents for 1 pack of 30 tabs, of 25mg, maybe I should offer to sell them some!!

There is no excuse, please tell anyone that you know about the price of it. 

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