Endo results advice - what questions should I b... - Thyroid UK

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Endo results advice - what questions should I be asking?

25clai profile image
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Blood test results flag up positive for ana, ena and ro antibodies . I've been told I have a definite auto immune disease and I will be referred to specialist rheumatologist. Amazingly, I've been offered an NHS appointment tomorrow to discuss my results. As I have many symptoms and under specialists elsewhere trying to diagnose me, what questions should I ask in the consultation? Does anyone have useful advice for me how to get my head around results.....help?!!

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25clai
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Clutter profile image
Clutter

25clai, I'm sorry you've had no replies. ANA, ENA, and RO antibodies are not thyroid antibodies which may be why no-one has been able to help. Hopefully your NHS consultation tomorrow will explain the results and probable treatment options.

25clai profile image
25clai in reply to Clutter

Thanks for your reply. I will re post to general communities . It least I know it's not thyroid!

linda96 profile image
linda96

Hi, I have ana antibodies and, but don't quote me cus I'm not sure, anti ro antibodies. Consistent with Lupus.

If lupus is the meat on a hyperthetical dinner plate then there are other autoimmune diseases that tend to go with it (like accompanying veg), such as fibromyalgia, Sjögren's syndrome, APS.

When you have a diagnosis try the lupus uk community on health unlocked.

Good luck.

25clai profile image
25clai

Many thanks for your insight. The endo mentioned a possibility of Lupus and open minded about other possibilities . I've now been referred to a rheumatoid immunologist. I will have a look at Lupus community in meantime. Sounds like the Endo is saying the same as you! Best - Claire

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