Anyone had any joy going to see a private doctor. My Endo appointment on Saturday was disappointing, half an hour, barely had time to say hello and discuss previous bloods let alone my ongoing symptoms.
I have now found a nutritionist to work with me, mum and dad insisted on paying for it. I am also pretty sure my adrenals are shot. Still awaiting my saliva cortisol test results and also had more bloods done on Saturday at the hospital.
I have the odd day when I feel OK and then I slump again.
Jefner, the tests your NHS endo ordered are very comprehensive. They will cost you a fortune to be done privately in addition to private doctor's fees.
Members have had good results going private but some have been profoundly disappointed having spent a considerable amount on fees and private tests.
they arn't comprehensive hon, he only added adrenals to the list because I asked him too. The other tests are quite basic, as I took the sheet away to have bloods done in my home town. I asked about reverse T3 and he said no
Jefner, that will be because NHS doesn't test rT3. NHS doesn't test cortisol saliva either. You'll have to order them privately if you want them done.
Awaiting my cortisol saliva test tesults. Would a rt3 test help?
Jefner, an rT3 test will tell you whether rT3 is within range or high. High rT3 can be caused by unconverted T4. The usual remedy for high rT3 is to come off T4 and go on T3 only for 3 or 4 months to clear rT3 after which you should be able to resume taking T4 or NDT.
Are you feeling less anxious after reducing Levothyroxine dose?
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I am not a medical professional and this information is not intended to be a substitute for medical guidance from your own doctor. Please check with your personal physician before applying any of these suggestions.
Would it be worthwhile me checking rt3 or would a certain level of my T3 dictate that it needs to be checked. Can high rt3 levels cause symptoms as well?
Reduced my Levo down to 75mcg on the 22nd Jan and yes the symptoms have alleviated although I get bad days but I think it may well be adrenal related. Have been watching Dr Bergman's videos from a posting here and he said that the adrenals and thyroid work together.
Pretty much confirmed that I had still been overmedicating on T4 due to changing the way I took my Levo when I first joined here and also my weight loss affected it (lost over a stone since October). I had no knowledge that dosage was based on weight. I am now 61.2kg.
I think that some of the anxiety is also due to my depression from the early part of last year and as I have a long history of it, I haven't really had any problems with anxiety/panic attacks for the last 15yrs since starting Seroxat.
My upset thyroid may have started the anxiety problems off again so I might have to deal with those separately, but trying very hard in changing things for myself. Had bloods done yesterday by my nutritionist and am starting my new diet plan on Saturday when I next see her for a 2hr consultation
Jefner, T3 level isn't associated with rT3 levels and yes, high rT3 can be symptomatic.
Thyroid going off can seriously ramp up previously stable depression and anxiety. The good news is that they should stabilise again when thyroid levels are right.
Hopefully the nutritionist will help you balance nutrition, vitamins and minerals and that should help general wellbeing.
arrrr I see, so rt3 is stored and unused T4. I am assuming there are only two readings for that test, high or just normal.
Started a magnesium and zinc supplement as well today as adrenals, anxiety and stress can deplete levels, even though mine were OK last month from bloods
Jefner, T4 converts to T3 and rT3. rT3 is the body's brake on overconverting T3. Low and normal range rT3 is fine but high rT3 may prevent uptake of T3 to cells.
found this interesting from the STTM site
When biological stress is ongoing, your adrenals will eventually produce less cortisol (ask “adrenal fatigue” or “adrenal insufficiency”), dropping from high cortisol to a mix of high and low, the to all low. And those low levels can cause chronic anxiety, poor coping skills, paranoia, easy nausea, sensitivity to light or sounds, psychological issues, etc. When you don’t make enough cortisol, thyroid hormones can pool high in your blood. So your body responds by converting the T4 to excess RT3, patients have also noticed. .
When iron goes low, which is quite common in thyroid patients due to low stomach acid, your red blood cells become less plentiful (or you have enough, but they are weak and pale), and carrying thyroid hormones via your blood becomes inadequate, causing thyroid hormones to pool in your blood. The body responds by producing excessive amounts of RT3 to clear out the excess T4.
I have certainly had/have these "chronic anxiety, poor coping skills, paranoia, easy nausea, sensitivity to light or sounds, psychological issues"
Iron tests. Doctor vs private test
Best to ask an endo? Or go to a private doctor?
New here, looking for private doctor in London
Visited Doctor with private blood test results 
