Unstable Thyroid

Hi

Ive been taking Levothyroxine for 22 years Im 34 soon but the last 6 months my levels have been haywire currently they are 96 and the doc says they should be 10 theyve increased my meds to 225mg but im feeling worse and worse as the weeks go on im sleeping about 18 to 20 hours a day i cant even do a gym class without being exhausted after 15 mins i used to do 5 a week

Anyone felt like this or have any advice please Im at my wits end x

4 Replies

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  • Welcome to our forum jojojo82

    I am sorry you had thyroid problems at such a young age.

    You will get help and support from the members of this forum as we are mainly people with thyroid gland dysfunctions which don't respond to the guidelines laid down for treatment.

    We usually improve our own health when we learn what's required and knowledge gained.

    The first thing you have to do is get a print-out of your latest blood test results, o r the last few. Make sure the ranges are stated and put them on a new post for comments. Some surgeries charge a nominal sum.

    The problem is that our medication is adjusted up/down/up/down and so our health does the same because we aren't getting either the hormones we require to feel well or a combination of hormones.

    When you get a blood test for thyroid hormones, always make the earliest appointment and fast. You can drink water. Leave 24 hours approx from your last dose of levo and the test and take it afterwards. This allows your TSH to remain higher and doesn't increase the levels of the hormones unnecessarily.

    You can ask for a new blood test and ask for a Full Thyroid Function Test and say you are fed up being unwell when the purpose of replacing thyroid hormones is to bring us back to normal health and you find that's not happening. TSH. T4, T3, Free T3, Free T4, Vitamin B12, Vit D, iron, ferritin and folate.

    Always get a print-out from now on and the ranges are important as labs differ in their machines.

    Regards

    "I am not a medical professional and this information is not intended to be a substitute for medical guidance from your own doctor. Please check with your personal physician before applying any of these suggestions"

  • Thanks

    Im also vitamin d deficient quite a bad deficiency so am on liquid meds for that x

  • Usually all of vitamins/vitamins are very low or deficient.

  • JoJoJo82, Levothyroxine should be taken on an empty stomach 1 hour before food and drink or 2 hours after, 2 hours away from other meds and supplements, and 4 hours away from iron, calcium, vitamin D and oestrogen.

    If you observe the above it seems likely something is causing malabsorption. Gluten is a common cause of malabsorption in hypothyroid patients. Ask your GP to do a coeliac screen.

    By the way, TSH of patients on Levothyroxine should be around 1.0. TSH 10 is overtly hypothyroid.

    _______________________________________________________________________________

    I am not a medical professional and this information is not intended to be a substitute for medical guidance from your own doctor. Please check with your personal physician before applying any of these suggestions.

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