New to the group and needadvice please

Hi

I'm new to your site and I'm glad I found you I was born will Cerebral Palsy RH and a left dislocating shoulder but since 2009 I've been diagnosed will 4 other conditions which have completely turned my world upside down and now I believe I have a problem with my thyroid I've done the blood tests they came back saying I'm on the borderline of having a under/overactive thyroid which I don't understand my GP says I don't need medication because on a his scale level I'm under 10 my results say my level is 8 I'm afraid I don't really understand about this condition yet but reading all of the Symptoms the people in this group are writing about I can relate too them my problem is my GP I've are asked him for a urgent referral but he keeps putting it off I told him I didn't care what the test results say I know things are a lot worse that the results say this is my body and I know something is wrong and how bad I'm feeling I live in London can anyone in the group recommend a good Thyroid Specialist I can ask to be referred to someone who knows what they are doing as I won't give up on this until I get some answer or a diagnosis thank you

4 Replies

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  • If your TSh is 8 you are definately hypothyroid. Most places in the world you would be treated at 3.

  • Hello Teen

    Welcome to our forum and sorry to hear of your health problems.

    The thyroid gland makes thyroid hormones with T4 being the most abundant. The hypothalamus senses low thyroid hormone in the circulation and responds by stimulating synthesis and secretion of TRH (thyroid releasing hormone), which in turn circulates and stimulates synthesis and secretion of TSH (thyroid stimulating hormone) by the pituitary. Circulating TSH then increases thyroid hormone production.

    Your doctor will have blood tested your TSH levels and unfortunately many don't prescribe thyroid hormone replacement until the TSH reaches >10.0, regardless experienced symptoms.

    Ask your doctor to test for thyroid antibodies TPOAb & TGAb as if positive this diagnoses Hashimotos disease and some doctors prescribe Levothyroxine (T4) with a TSH >5.0 when symptomatic.

    Also ask your doctor to test VIt B12, VIT D, Folate & Ferritin as deficiencies in these are common in people with low thyroid hormones and required for good thyroid function.

    You can email louise.warvill@thyroiduk.org.uk for a list of sympathetic endos/doctors that members have had positive experiences with.

    Flower

    Overview if the thyroid gland

    thyroiduk.org.uk/tuk/about_...

    Getting a diagnosis

    thyroiduk.org.uk/tuk/m/gett...

    Hashimotos

    thyroiduk.org.uk/tuk/about_...

    ……………………………………………………………………………………………………………………

    Disclaimer: I am not a medical professional and this information is not intended to be a substitute for medical guidance from your own doctor. Please check with your personal physician before applying any of these suggestions.

    ……………………………………………………………………………………………………………………

  • Hi teen, you already have enough to deal with and allowing you to continue with poor thyroid function is just wrong. If you have read similar stories as yours, you know that it's quite a battle to achieve success in the current environment. I will never understand why people are left to suffer when often a few supplements and a inexpensive pill would make an amazing difference in their lives. If you are indeed a teen, I'm sure you are being put off because of your youth. If you want to try again take someone with you to your next appointment for support. Keep pushing for proper treatment and if they refuse, come back here for more advice. In the meantime can you post your test results? Insist on having them if they did not give them to you.

    Don't give up, we are here to help.

    holtorfmed.com/5-thyroid-li...

  • Get a print-out of your blood test results from the surgery, with the ranges, and put them on a new post for responses.

    It is ridiculous with a TSH of 8 and symptoms not to give you medication. Also ask GP to test Vitamin B12, Vit D, iron, ferritin and folate if you haven't had them done.

    Always from now on get a print-out of your blood test results for your own records and you can post if you have any queries.

    I am sorry you also have other health issues to cope with as well but our members are very helpful

    When you have a blood test for thyroid hormones get the earliest possible and fast (you can drink water) - when you are on levothyroxine leave about 24 hours between the last dose and the test and take it afterwards. Doing this method means your TSH will be at its highest as it drops throughout the day.

    You can tick of symptoms:-

    thyroiduk.org.uk/tuk/about_...

    thyroiduk.org.uk/tuk/diagno...

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