low dose naltrexone [LDN]: Has anyone in UK had... - Thyroid UK

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low dose naltrexone [LDN]

mothsballs profile image
8 Replies

Has anyone in UK had experience with low dose naltrexone or LDN for auto immune thyroid disoders. I am very interested in taking it as it seems to address the auto immune side of the illness. My endo of cause would not recommend it as it was not a form of treatment in the UK .It seems promising with little if any side effects, i suppose drug companies would not want this drug in common use, it is not in their financial interest. I believe there is a pharmacy that will do private prescriptions in Scotland that you can get delivered by post, This site is so good i'm sure there will be informed info about it.

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Clutter profile image
Clutter

Mothballs, there are posts on LDN in this link healthunlocked.com/search/l...

mothsballs profile image
mothsballs in reply to Clutter

Just checking them out Thanks for link

mothballs,

This is probably my next port of call but I am taking so many pills atm I refuse to supplement anything further until a few are dropped in the new year.

Although feeling relatively well, I can not reduce TPOAb's and have read LDN is an immune modulator which has been successfully used to reduce high antibody levels.

This response is a consequence of imbalanced TH-1 & TH- 2 cytokines that result in a response from the T helper 17 cells (Th17) which are a subset of T helper cells producing interleukin 17 (IL-17), usually associated with autoimmune disease.

I understood it to be available on the national health if your GP/endo is informed and cooperative.

Flower

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Disclaimer: I am not a medical professional and this information is not intended to be a substitute for medical guidance from your own doctor. Please check with your personal physician before applying any of these suggestions.

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mothsballs profile image
mothsballs in reply to

My endo is not cooperative, and does not agree with anything beyond the old traditional path. She doesn't even agree with supplements. It is something I will have to fund myself, which is why I am interested in others who have took LDN. Flower if you do decide to take it keep me informed.

in reply to mothsballs

.... and you too mothballs.

Shared information is valuable.

Flo

Marz profile image
Marz

ldnresearchtrust.org/

Lots of information - hope its helpful :-)

faith63 profile image
faith63

it doesn't really address them at all. The important question, at least for me was WHY did i get this? What can i do to heal my immune system. LDN is just another cover up and you could be on it the rest of your life. Hashi's can be put into remission and it's much healthier to do it naturally.

rsae56 profile image
rsae56

I am on my fourth week of LDN for fibro, fatigue, lichen sclerosis, hypothyroid and migraines. So far I've definitely felt an improvement in my general well being. My energy and mood levels have improved. I sleep better. it is still early days with LDN and I expect to see a continuous improvement.

I follow several LDN groups on fb. Fx 'Beating thyroid disease with LDN'

'LDN Research Trust-low dose naltrexone'

There is loads of info (also to your doctor) and testimonials.

My GP didn't know about it but was willing to refer me to a pain clinic that uses it.

Hope you find a way to get it since it is a wonderful way to trigger your own body to heal and completely safe.

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