I have posted before about my delight at being given a trial of t3 .
The Endo said 10mcg a.m. and 10 p.m. and not to reduce Levo.
I felt absolutely dreadful , and on Clutters advice I stopped it for a couple of weeks and then started to introduce it again 5mcg for a couple of weeks , then 10 then 15 until a couple of weeks ago 20mcg . For the last week or so I have begun to see the light at the end of the tunnel BUT!!!
I am itching scalp and body
My stomach has the " collywobbles" all the time
My lips have been full of cold sores which I haven't had for years.
I didn't associate this till someone posted the other day about cold sores.
I have lost a few pounds in the last few weeks, and added to the significant weight loss when I was Hyper , before RAI I am not looking good .
Apologies to those of you who are desperate to lose weight . Even the last few years on Levo alone didn't put any weight on me.
Question is , shall I throw in the towel as far as T3 is concerned ?
I feel so depressed , I don't know what to do.
I see the Endo in 5 weeks. He will take it off me if I tell him this.
Sorry for the moan
Pp
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Pinkpeony
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It can take a while to find the right dose...you have had too much..I didn't have enough!!...My endo HALVED my thyroxine!!
Don't give up yet as for long term health adding T3 to T4 has to be a good thing...you just need to work on the dosage.
If I was you I would leave T3 off for 2 days and then begin again on a starter dose..and maybe reduce thyroxine a little. How much thyroxine are you on?
I expect Clutter will give you solid advice sometime later.
I lost weight starting T3 too even though I was under medicated...wierd isn't it?
PP, Go back to 15mcg for a couple of weeks and, if necessary, try increasing to 20mcg again. 15mcg is possibly sufficient. There's no reason for the endo to stop T3 if you get benefit on 10-15mcg but feel overmedicated on 20mcg.
I went through a similar process and found that 10mcg T3 was better for me than 20mcg along with increasing T4 from 75mcg to approximately 86mcg (6 x 100mcg tablets per-week).
The problem could be the type of T3 you are taking? I can't get on with any form of T3 in tablet form. I've tried French/Italian versions and recently a Mercury Pharma version prescribed by a consultant in the UK. Within two days of starting the medication I get tired, very tetchy, no motivation and ache all over basically a real pain the bum to live with. Once I stop taking the tablets I get back to 'normal' within two days. I put it down to the inactive ingredients in the tablets because there are certain types of T3 I can take. Notably an Italian liquid version and an unbranded capsule version supplied by Boots in 10mcg strength. Hope this helps.
The Italian liquid is called Liotir comes in 20ml bottles. It comes with a dropper so you can adjust the dose easily. You can buy it (13euros)over the counter in Italy but they will only sell you one bottle without a prescription or letter from a doctor. So the problem with this is getting a regular supply unless you have a friend in Italy.
Given that I tried the NHS, again, and they prescribed T3. I went with it prepared to try the meds dispensed but knowing they probably wouldn't agree with me. However this round the chemist(Boots) came up with T3 in 10mcg capsules, unbranded. And they worked just fine.
I reported back to the consultant and she wanted to up the dose. This time the meds were 20mcg MercuryPharma which knocked me sideways so stopped taking them and am awaiting a new prescription.
I have liothyronine 10mcg capsules from boots in brown bottle. I was told when I was given 8 weeks worth by endo I would have to throw away 3 weeks worth away or give them back to boots as they have a short shelf life of 5 weeks. So I have 8 weeks of med's but will only be able to take 5 weeks as the rest will go off by the time I get to take them. He said they should have ordered me 20 mcgs tablets instead as they last longer and all I would have to do is cut them in half. He was very insistent on getting the remaining pills back as he said they were expensive. I did think to myself what would it matter if they have to be destroyed anyways. !!
I can't either I have no clue they said they have never needed to order them into boots there before as no chemist in monmouth Wales would not keep them in stock. Controlled drug or something sounds like bs to me .
I think that things like 10 microgram liothyronine capsules are made to order. Boots get them made by another company and they are delivered to the shop.
"Specials" often have a 28-day life for one simple reason: no-one has the resources to test them properly. You can't make multiple batches just to see how fast they deteriorate. Absolutely no-one keeps such products in stock.
I suspect the pharmacist read "10 microgram liothyronine" and interpreted that as how they were to be supplied. That would force them to be specials. If the endo had written "20 microgram liothyronine - take half a tablet each day" they could have supplied ordinary 20 microgram tablets.
I too have seen a specials order where the number of days of life left was not sufficient for the order. That was only 28 capsules, but it took several days from manufacture to patient.
I see where ur coming from there are exactly 168 caps in this bottle. Now u say it like that it really make a lot of sense now. The pharmacy did questions why he requested so much . The reason is he is really booked up he prescribed me what the thought would be enough for 10 weeks. But 3 weeks of them have to be thrown as they will go off before I can take them . I think my doc is going to be funny to prescribe them she said before that she wasn't allowed to prescribe them and a consultant would have to . X
It's baffled me hun lol don't need the drama no I'm joking. I should be thankful he gave me a chance to try this new hormone I know so many don get the chance x
He could so easily have given you two prescriptions - with half the quantity on each one - couldn't he?
GPs who may be restricted as to what they can prescribe by local rules are often able to continue prescribing once started by a consultant. But that cannot initiate that prescribing.
How strange? The doctor is getting way beyond his remit, it sounds as though he is paying for them out of his own pocket. Why would the 20mcgs capsules last longer?Could you ask Boots who makes the capsules, or is there an information form with them. Contact the makers and ask them about the shelf life and show the reply to the endo.
I found it a very odd thing for him to say not the short shelf life but how expensive they were and to make sure I bring the remaining lot back to him. If he has to destroy them why would it make a difference taking them to him or me chucking them in the bin. Which I think is a total waste I would post a pic but not sure I'm allowed an I? ?
You are perfectly free to post pictures - but you can only do so on the original post in a thread. So it has to be a post you make.
The alternative is to place the picture somewhere such as DropBox or another online "cloud" storage loation, and post a public link to it. There are at least dozens, if not hundreds or more photo-hosting sites available and many of them are free.
When I was on Levo T4 only I was aware that I needed T3. But since my Endo hadn't realized this for 2 years I was afraid of trusting her to get my proportions right - so I got another Endo and got on Armour (an NDT) because that has pretty good proportionality (well, it's not human ratio it is pig ratio but it's closer than I would trust my Endo #1 to work out).
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