Known doctors to prescribe ndt or source to buy... - Thyroid UK

Thyroid UK

137,148 members160,828 posts

Known doctors to prescribe ndt or source to buy self.

leanneclaire profile image
5 Replies

Hi there I have been hypothyroid for 18 years. Up and down all the time but the last two years have been particularly bad. Dry sling, exhausted, cold, acing, 2 stone heavier than normal, I could go on and on! I've never had my T3 checked despite demanding that my endocrinologist tested me, he said it was a waste of time as I would be in intensive care if I had low T3 said he wouldn't prescribe ndt as he said it was impossible to monitor he said levothyroxine would produce enough T4 to be transferred to T3 even tough my levels are all over the place. He mentioned my pituaritory glad hadn't produced any hormone something that has never been spoken about to me before. He sent me for blood tests and said would test everything. When I went yesterday he still hasn't requested T3!!!!

I'm giving up on him so does anyone know any good doctors in Berkshire or even Essex as my mum lives there so I could travel there. Failing that I'm going to self medicate but the only place I can find ndt online is out of stock.

Thanks in advance.

Written by
leanneclaire profile image
leanneclaire
To view profiles and participate in discussions please or .
Read more about...
5 Replies
Clutter profile image
Clutter

Welcome to the forum, Leanneclaire.

Members are more likely to respond with sources for NDT if you post recent thyroid results with the lab ref ranges (figures in brackets after results) and say how much Levothyroxine you are taking.

High dose Levothyroxine usually suppresses pituitary output of TSH, and for some people this can occur on doses of 75mcg. Low/suppressed TSH is a response to Levothyroxine, not pituitary dysfunction.

You can order private thyroid FT3 tests from Blue Horizon and Genova via thyroiduk.org.uk/tuk/testin...

Email louise.warvill@thyroiduk.org.uk for a member recommended list of private GPs and NHS and private endos.

leanneclaire profile image
leanneclaire in reply to Clutter

Ok thank you.

My last blood test was TSG -8.40 FT4-14.0

I take 125mg of levothyroxine every other day and 150mg on day in between.

I'll try for doctor list thanks.

Clutter profile image
Clutter in reply to leanneclaire

LeanneClaire, TSH 8.40 is far too high for someone on Levothyroxine. Your FT4 is low and your FT3 is certain to be low. The goal of Levothyroxine is to restore the patient to euthyroid status. For most people this means TSH just above or below 1.0 with FT4 in the upper quadrant of range. You really need a dose increase.

If you self medicate NDT you'll need to transition gradually. Dosing usually starts at half a grain with half grain increases every two weeks, titrating Levothyroxine as you go to avoid hypo symptoms.

With your results I'd add some Levothyroxine or NDT to your existing dose rather than switching. If you switch to NDT you will need to order private thyroid tests to check your FT3 which should remain within range.

leanneclaire profile image
leanneclaire in reply to Clutter

Sorry just seen this ignore other message. 😳

leanneclaire profile image
leanneclaire in reply to Clutter

Thank you x

You may also like...

If my doctor won't prescribe NDT, can somebody recommend an online source please?

blood tests, so I'm not entirely sure how it's going to go yet or if my doctor will prescribe me...

Prescribed NDT on NHS now doctor refusing to prescribe. Help!

months worth of ndt. GP said the local health service had issued an edict late 2023 that ndt...

Doctor prescribing NDT

Please could someone message me a Doctor willing to prescribe NDT in Lincs. 18 years post...

Prescribing Doctor for NDT

it either though put it down to CFS. I would like to go on NDT and wondering if anyone knows of a...

Anyone know of a private doctor who can prescribe NDT?

recently had some full thyroid blood work done which even though the TSH is ‘normal’ (1.66) my T4...