Daughter seems to have hypothyroidism too! - Thyroid UK

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Daughter seems to have hypothyroidism too!

sueoathall profile image
14 Replies

My 23 year old daughter has just had her blood test results back. As usual they only tested for TSH and T4. As usual they said her results are within normal range! Her results are;

Serum free level T4 15.1 (12.00-22.00)

TSH 1.74 (0.3- 4.20)

They didn't test for B12 or anything else.

Any advice please? Thanks

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sueoathall
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Clutter profile image
Clutter

Sueoathall, your daughter's results are euthyroid. If she is symptomatic ask for vitamin D, ferritin, B12 and folate to be tested or order private tests via thyroiduk.org.uk/tuk/testin... as low/deficient levels can cause musculoskeletal pain, fatigue and low mood similar to hypothyroid symptoms.

Ansteynomad profile image
Ansteynomad

Noting your comment Clutter, but how can she be euthyroid if her FT4 is in the bottom half of the range and FT3 will be correspondingly low?

This is the situation I was in. The NHS was only interested in diagnosing CFS, but 150mcg Levo fixed most of my symptoms and 2 grains of Thyroid S has fixed them all!

Surely, if you disregard the unreliable TSH, this girl,is in trouble?

greygoose profile image
greygoose in reply to Ansteynomad

Totally agree, Anstey. That FT4 is not even mid-range. And the TSH of a totally 'normal' person, thyroid-Wise, is between 0.8 and 1.25. Only slightly raised at 1.74, but probably enough to cause problems.

Of course, I wouldn't expect any doctor to think this was abnormal, but we know better than doctors, Don't we!

Clutter profile image
Clutter in reply to greygoose

GG, what is the FT4 of a totally 'normal' person? I've not seen one but understand the euthyroid TSH range to be between 0.5-1.70.

Recommendations for T4 in the top 75% of range are for people on Levothyroxine.

Edited to correct 1.76 to 1.70.

greygoose profile image
greygoose in reply to Clutter

Yes, I realise that. But I've always heard that the TSH of a euthyroid person is 1.25 or below. I Don't know about FT4, to be honest, I've searched by can't find anything. I really Don't think enough research has been done into that, they've got their 'ranges' and they're happy with them!

But, of course, nothing can be said with any certainty without seeing the FT3...

Clutter profile image
Clutter in reply to greygoose

GG, annoying about FT4, probably not even been researched :( TSH 0.5-1.50 or 1.70 is what I've mostly seen but I think that can vary according to race as does the prevalence of Graves and Hashimoto's according to a US Navy study on personnel. I wish I'd bookmarked it.

greygoose profile image
greygoose in reply to Clutter

Yup, anyone would think they didn't care, wouldn't they!

Clutter profile image
Clutter in reply to Ansteynomad

Anstey, I don't agree mid-range FT4 in someone not taking Levothyroxine is necessarily a problem. Of course, low FT3 is, but there is no FT3 result and unlikely to be unless done privately.

Low vits/mins can be tested by her GP as NHS won't consider thyroid problems with those results.

Ansteynomad profile image
Ansteynomad

My local endos carried on telling me there was, and I quote, “no endocrine reason for my symptoms” even when my TSH was 4.2 and my FT4 and FT3 were bumping along the bottom of their reference ranges. They discharged me and then two years later they changed the reference range for TSH to one that finished at, you guessed it, 4.2! I guess they might give me a diagnosis now, but I won’t go near them again.

What I do know is that neither my FT4 nor my FT3 got out of the bottom third of the reference range until I got on levo, but when they did, I started to heal.

sueoathall profile image
sueoathall

Thanks everyone. So , clutter, should I just get those tests you mentioned and then what?

Clutter profile image
Clutter in reply to sueoathall

Sue, post the results and lab ref ranges and members will advise. If you're getting private tests FT3 would be helpful too.

There is disagreement about my use of 'euthyroid' to describe your daughter's results but your daughter won't get a NHS hypothyroid diagnosis until either TSH is over range or FT4 &/or FT3 is below range. She might benefit from Levothyroxine if she selfmedicates.

ps if you use the orange Reply button members are sent an email and on-site notificaton that you have replied.

Ansteynomad profile image
Ansteynomad

I understand what you are saying, but if FT4 is low, then FT3 is inevitably low as well. It is after all a one to one conversion, and if FT3 is low, then we know what the effect is for the patient.

Clutter profile image
Clutter

Londinium, I don't understand your question?

Clutter profile image
Clutter

Londinium, in the top 75-100% of range. For someone on Levothyroxine that would mean FT4 >19.5 (12-22). FT4 is usually lower on T3 or NDT.

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