I've managed too get a endocrinologist appointm... - Thyroid UK

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I've managed too get a endocrinologist appointment.

nettiboo1982 profile image
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Hi so I got a letter yesterday and I have an appointment. My last tsh was 2.57 which my doc thinks is fine as is mid range for where we live. I pretty much had too beg gp for appointment as she was sure I didn't need one it was very embarrassing. I recently suffered a miscarriage and my levels were not monitored or meds increased at all so I feel my care was inadequate . I just don't know what too expect what questions too ask really I suppose I've gotten used too not being taken seriously any advice please?

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nettiboo1982
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Nettieboo, The goal of Levothyroxine is to restore euthyroid status and for most people that means TSH around 1.0 with FT4 in the top 75% of range. Hopefully, the endo will understand that and increase your dose. You may have to labour the point though as some are amazing ignorant about thyroid and will agree with your GP that mid range is fine. Read Dr. Toft's comments in thyroiduk.org.uk/tuk/about_... You can email louise.warvill@thyroiduk.org.uk for a full copy of the Pulse article if you need to show it to your endo.

My endo consults follow this pattern, others may be different:

Bloods drawn prior to appointment. Nurse weighs me at clinic. Throat, BP and pulse examined occasionally. Discussion of results, symptoms and dose adjustment. Blood form issued for blood draw prior to next appointment. Previously x-rays, lung function tests and ECGs were ordered to rule out non-thyroidal illness as a cause of ongoing symptoms when bloods were 'normal'.

It may help to make a list of medication and supplements you take and a separate list of symptoms. Do NOT be upset if you are told symptoms are not thyroidal, antibodies (if you have them) don't mean anything, gluten-free isn't helpful for non-coeliacs or you don't need supplements. Endos aren't generally knowledgeable about nutrition and vitamins/minerals.

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