I recently learned that most likely i have Hashimoto's thyroiditis in early stage. I have been diagnosed in Poland, my TSH is high but still in guide norm, i got USG done and i got visiable changes, and my antibodies are:
ATG 324,5 U/ml (0,0-100,0)
ATPO 118,1 U/ml (0,0-40,0)
Since i live in UK i decided to start treatment there so i went to nearest GP. I showed all my results and USG , doctor requested another blood test. Today i called and i was informed that MY RESULTS ARE NORMAL!!! I am about to speak with doctor in few days but i suspect like everyone who posted in here i was treated the same way. Even if i presented all results from poland, they just did my TSH and didn't bother checking anything else and that gave them NORMAL result.
I don't really know what to do next, where should i go to seek help? I can't fly to poland every few weeks to control my hormon level and treatment. Please give me advice, i am becoming really desperate...
Thanks in advance
Dorota
Written by
madness07
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Did your UK doctor only test your TSH level? Ask surgery for a copy of your blood test results with the ranges and post on a new post for comments.
If the doctor only goes by the TSH level and hasn't taken your antibody level (you only have antibodies if you have Hashimotos) you will have to request an antibody test. You should be given levothyroxine if antibodies positive but will wait till you have posted the results from the surgery and others will respond.
Thank you very much for your replay, I am temporary on contract in France, so I didn't see the blood test results (I was specially flying over back to UK just to visit GP). I don't know what exactly was tested, I am supposed to speak with doctor on Tuesday, I will ask then more details regarding the blood test results. I already contacted person renting my apartment but there is no post from NHS yet, hope it will arrive soon. But I suspect they ignored the antibodies results from polish blood test and didn't even check it, otherwise they wouldn't be able to tell me "everything is normal". Will post again on Tuesday.
Some doctors, as I said above, only take the TSH into account. If your blood test shows antibodies I would email louise.warvill@thyroiduk.org.uk and ask for a copy of Dr Toft's Pulse online article. In it you will see that he recommends prescribing levothyroxine to 'nip things in the bud' of you have antibodies. So you can discuss with your GP as Dr Toft was President of the British Thyroid Association.
Thank you for your advice, I will ask for a copy for sure.
I finally got a letter from nhs, and I got appointment with specialist booked. So after all doctor reacted properly, I am very happy looking forward to meeting with endocrinologist but I still don't understand how they could mislead me so much by phone. Thank god it was just misunderstanding. I still didn't see my blood test results, hopefully i will have occasion later, I am really curious how are my T3 and T4 which I didn't have checked before
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