Glad to say I'm finally getting sorted out and feel better by the day (writing this with fingers crossed). I've still got achy legs (shins and sides of thighs) but nothing like the level of pain I had before when I felt as though I was wearing lead boots and had weights on my shoulders - and not half as many migraines. Also generally more energetic and motivated. Endo emailed me on boxing day (!) and told me to increase T3 by 5 mcg. I'm now taking 10 mcg with 75 mcg Thyroxine early am, 10 mcg between midday and 1 pm and 5 mcg about 6 pm. He doesn't want my T3 levels to go out of range so he doesn't think another increase is advisable based on my last blood tests of TSH <0.05; FT3 6 (6.8); FT4 17 (22). He doesn't want to reduce Thyroxine. I have blood tests done on 6 Jan which I have to email to him so we'll see what they're like.
I'd like to take a Mutli complex 100 Vit B which I've bought. It does say on the product that it's only for short term use of 2 - 3 months at this strength - after a period of illness and debility. I did ask the thyroid Oncologist (not Endo) about this 2 or 3 months ago. She said I should I should only take it if my levels are low and referred me to GP. GP did tests and said they were 'spot on' (didn't tell me actual result) and said I didn't need to take a supplement.
I'm just wondering if I could optimise my improvement and eliminate residual symptoms - aching, constipation in particular - by taking this supplement. Not sure if they just think it's unnecessary self medication or whether it could affect my treatment (I would have it about 3 hours away from thyroid meds).
Has anyone felt the benefits of vit B complex even if not 'deficient'? Also wondering if anyone out there has these leg aches (particularly in shins and calfs) and has any other suggestions.
Happy New Year to you all xxx
PS I'm sure that you're all as delighted as me to hear on the news yesterday that thyroid cancer is one of the few cancers that's "just bad luck" and not down to any environmental, genetic or lifestyle factors!! It didn't mention that the real bad luck lies in the rubbish treatment that many of us get because of ignorance or cost implications. My New Year Resolution is to try not to be so cynical