Advice please for second visit to Endo. - Thyroid UK

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Advice please for second visit to Endo.

Caze profile image
Caze
2 Replies

My first appt. at the NHS Endo dept was end of July. Subsequently I had a thyroid ultra sound which revealed that my thyroid was virtually non existent now (Hashis) and the doc advised I would not be producing any hormones myself.

I had a blood test at the hospital 15.9.14 whilst on 75 thyroxine 5 days per wk + 100 twice a wk.

Results were

TSH 0.04 (0.27-4.20) L

FT3 3.4 (4-6.8) L

FT4 16.4 (12-22)

My follow up appt. in Nov was put back to 24th Dec. I tried to bring appt. forward but was advised I was not a priority and was unable to spk to the Endo I had seen as she had left.

Previously I had seen an Endo privately who put me on a comboT3/T4 but my GP refused to prescribe the T3 because I had seen Endo privately but he did say he would refer me to a NHS Endo but I seem to be getting nowhere with it.

Any advice/suggestions as to how I can make the best of my appt. on the 24th?

Many thanks.

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Caze
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Ruthi profile image
Ruthi

Well its clear as day - your TSH is now suppressed because you are full of T4, but you aren't converting it to T3 which is the active form.

I think there is a good chance that the Endo will see that you need T3. Unless he/she has a magic wand to get you converting, they will need to give you some.

If you don't get any joy, then come back here - we have ways of solving the problem!

faith63 profile image
faith63 in reply to Ruthi

I totally agree with Ruthi, except i doubt you will be given any t3, seems they don't prescribe it very often. Your ft4 is low too, but i would not suggest you add any more of it. T3 would be a good thing for you!

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