Possible wilsons syndrome : Still putting on... - Thyroid UK

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Possible wilsons syndrome

Shazzy2 profile image
14 Replies

Still putting on weight weekly and all under active symptoms just got my latest results bak cant wait to see dr Asher next weds any one else had this ?

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Shazzy2
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14 Replies
Shazzy2 profile image
Shazzy2

Bigger now than I was pregnant !

Clutter profile image
Clutter

Shazzy, are you on any medication? Your results look hyperthyroid (over active) or overmedicated if you are on Levothyroxine.

Shazzy2 profile image
Shazzy2 in reply to Clutter

Hiya yes I'm on 3 liothyronine 20 mcg and 2 cytomel 25mcg I no they r both t3 I was on 3 of each and was ok but still not losing any weight unless doin a drastic soup diet but it all goes bak on since meds cut I hav palps and flutters and I'm so tired so all symptoms of under active I have not 1 of over active I saw dr Asher and he's doing tests he thinks I have wilsons as I'm not converting at all any ideas ?

Clutter profile image
Clutter in reply to Shazzy2

Shazzy, fatigue, palpitations and heart flutters are symptoms of over medication as well as under medication.

thyroid.about.com/od/thyroi...

Your Sept FT3 is probably a little high still (I can't see the lab ref range) but is a great improvement on your July Ft3. T3 will help get your metabolism regulated but it isn't a diet aid or fat burner. The weight you've gained may be mucin and water rather than fat and may be difficult to shift. A gluten free diet is often helpful for hypo and Hashi patients and helps reduce bloating and gas.

Acid reflux can be due to low stomach acid which is common in hypothyroid and Hashi patients. Betaine Pepsin taken before meals can increase acid and aid digestion, particularly of high protein meals. Raw apple cider vinegar in fruit juice or honey sweetened water before meals is also good for raising acid for digestion. 1/4 to 1/2 tsp bicarbonate of soda in ACV and water is a good indigestion/heartburn remedy.

Shazzy2 profile image
Shazzy2 in reply to Clutter

Ok thank You I already have a gluten free diet and follow the paleo I know t3 isn't a diet aid and to be honest the weight is just a long list of underactive problems I wouldn't mind if I wasn't a a active person I walk a lot on my good days I eat only organic as much as I can unless I eat out as very difficult I'm in bed by 9.30pm and struggle to wake in the morning I understand the blood is showing over but my body and symptoms are not I have had to buy all new clothes as can't fit into anything I'm so uncomfatle Iv gone from 9.8 to 12.3 and still weight is goin up Iv looked up wilsons syndrome and it says dieting can make it worse I wAs on the cambridge diet b4 I got down to 10.2 but felt unwell

Shazzy2 profile image
Shazzy2 in reply to Shazzy2

Just hope dr Asher can help me

Shazzy2 profile image
Shazzy2 in reply to Clutter

Also clutter Iv had friends with over active thyroid and they have been very unwell and lost huge amounts of weight no matter what they ate I haven't lost a ounce just more and more on just wish someone could explain it my gp certainly can't !

Clutter profile image
Clutter in reply to Shazzy2

Shazzy, You aren't hyperactive, you're over medicated. There are several hyperactive and Graves members who have gained a freat deal of weight although it is more common to lose it.

I hope Dr. Asher will be able to advise you but a starvation diet is not the way to go as it will slow your metabolism further and make you hang on to the weight.

Shazzy2 profile image
Shazzy2 in reply to Clutter

Yes I agree and I don't want to do any of those diets as they are a quick fix I'm getting married next year and really want to get better and get the help I need as very down about the way I feel and the weight thanx for the advice and il keep u informed

Shazzy2 profile image
Shazzy2

And my gp has stopped my meds sayin I'm over active but can't explain why I'm putting on weight and hav under active symptoms this is why I have gone private so upsetting Iv underactive thyroid had this for 9 yrs and still not well I'm also bein tested for hashimots as when I saw dr peatfield he said that is what I have but Iv never been tested

Shazzy2 profile image
Shazzy2

Also I'm having very bad heart burn and acid

Angelawimbledon profile image
Angelawimbledon

How did you get on with new doc, or existing one. I have Hashi's. 4 stone up and depressing without the other symptoms, ESP fatigue. I'm thinking of going to homeopath. Getting desperate. Knew, feet, taking toll.

taramcarter7 profile image
taramcarter7

Do you have adrenal failure or Cushings?

Check into your fasting blood sugar and ask the doctor about armour and victoza. The cells might not be using the tsh in the blood. So the blood levels look hyperthyroid but the t3 doesn’t cross the cell. Cytomel and synthesis can not do what armour does.

helvella profile image
helvellaAdministratorThyroid UK in reply to taramcarter7

You possibly didn't notice, but this post is over five years old.

The original poster has posted since:

healthunlocked.com/user/sha...

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