Hi all. had my first endo appointment, she took blood asked me my symptoms then said she would contact me if results came back with any problems and took book an appointment in 6 months then discharge me. I was shocked my Gp referred me after 3 years of cycling between hypo and hyper thyroid (I have Hashimotos) as he didn't know how to stop it. Im on Levothyroxine (75mg) anyway She phoned back 1 week later to tell me I am still Hypo and to up thyroxine to 100mg. I feel so lost as my doctor has done all of this and 100mg sent me hyper. What the hell do I do. Do any of these professionals have a clue? So confussed

4 Replies

  • Arjs, sounds like a fairly typical but useless endo consult :(

    Unfortunately Hashimoto's makes it difficult to achieve a stable dose as your thyroid sputters in and out of usefulness. When your thyroid is producing hormone on top of your Levothyroxine it can make you feel over medicated and hyper and if you reduce your dose and the thyroid stops producing hormone you feel under medicated and hypo.

    I would increase the dose to 75mcg/100mcg on alternate days to see how you tolerate it for a couple of weeks. If you don't feel over medicated you can increase to 100mcg daily. As soon as you feel signs of overmedication cut back to 75mcg/100mcg or 75mcg.

    Some members have found that a gluten free diet reduces Hashi antibodies and the frequency of flare ups.


  • I'm afraid I don't know much about this particular issue though I am wondering if there's any use trying to solve this problem by adjusting t4 when it takes so long to rise and fall in the body. Not that your endo is likely to be of any use on this issue, but it seems more sensible to try working with t3 as the effects are more immediate.

    Does anyone more well-informed than I have any thoughts on t4 vs t3 in this kind of situation?

  • PB, it would be easier to adjust T3 dosing but it's nigh on impossible to get it prescribed. If someone feels over medicated on T4 they could stop taking it for a few days to see if it improves over stimulation symptoms before resuming a reduced dose.

    Roll on the day when we can test our own thyroid bloods as diabetics test theirs and titrate our dose accordingly.

  • Thank you. I have gone gluten free. Its a nightmare with sadly doctors knowing very little xx

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