I had a complete thyroidectomy in 2011 and was on a dosage of 100mcg. All was well until the last year.
My TSH levels went from around 2.0 to 0.08. In previous questions here, I have wondered whether the loss of over a stone/12kg could have been a factor in this rise.
My levels were tested a few times before a seemingly helpful and sympathetic doctor decided to reduce my levothyroxin to 50 (I then weighed around 9 stone/54kg). I was quite alarmed and told her I was scared (as I'd experienced fatigue when my levels had gone to around 6.0) but she was very forthright. She told me it was much easier to go up than to go down and was very bemused by my fear. Although hesitant, I complied and experienced a TSH level 4 weeks later of 20.
Would this merit a complaint in the UK? I am aware that hypothyroid patients are gradually raised in their medication but I have no thyroid so I totally rely on the medication. My initial dosage was calculated on body weight which I think should have been a factor in her decision-making process.
From the doctor who took over the treatment, I was told that the initial doctor justified her decision by 'the look' in my eyes. She also walked into the room when I was discussing further test results with another doctor and the low levels were displayed on the screen. After looking at them a while, she said to me that it was very hard to know what to give me as I am so small...!!!
I am currently living in Gemany so I don't know the medical complaints system here. However, I would be very interested to know how this treatment would be perceived in the UK as I feel a complaint should be made for the sake of others as well as myself.
Many thanks in advance.