Frustrated to say the least.: Frustrated to say... - Thyroid UK

Thyroid UK

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Frustrated to say the least.

Swoozie1 profile image
3 Replies

Frustrated to say the least!

I'm British, lived abroad for 7 years and while 'away' I find I am hypo, B12 insufficient, D deficient & pre-diabetic. It's a LONG story, and I won't bore, but below is the 'short' version.

Many years of pain/frustration/fog/tears/research/reading/web forums/doctors/endocs/£ (the list could go on) - you all know what I mean. Only for ME to to find out what is wrong with me, and for me to ask a doctor for ERFA.

It took time, but I got what my body needed.

I used to get a script and have them shipped into the Country I lived in.

Years go bye, 3 Endocs (3 different countries) I've lost count of doctors, and as for bloody tests....I'm surprised I have any blood left in my veins!

I return to the UK......NIGHTMARE

The doc refuses to give me a prescription for ERFA as he 'cannot' BUT if I wait for 7 weeks 1 day (I've book my apt this afternoon, and yes, it's the earliest!) an Endoc might give me a script....MIGHT!? It's ok though he can give me Levoxine. You mean the stuff that doesn't work on me, hence why I take ERFA? A shrug of his shoulders said it all.

The doc has seen my meds, knows I take the med, I have been for blood tests, yet he 'cannot' give me a script! By the time I get to see said 'MIGHT' Endoc, I am out of meds.

I come home, upset, I start the research AGAIN. It read, he could give me the script on a 'named-patient basis'

Has anyone else come across or know of this, if so any advice?

Also, as I refuse to go what I can only describe as HELL again, I am now looking for a private Doc or Endoc who can/will provide me with a script for my meds. Does or can anyone PM me if they know anyone within the NW of England? If someone does know of a Doc/Endoc and he/she isn't within the NW, please still share with me. I am willing to travel.

Recommendations for doctors &/or where to obtain Erfa via private messages in line with posting guidelines #22 and #24 please, thank you, Clutter

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Swoozie1
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galathea profile image
galathea

Its legal to buy your own medication and Import it, if its for you or your household.... Erfa not so easy to get hold of because its Canadian, but Naturethroid, armour and a couple of other brands are easy to source.

Of course its better to be prescribed the meds because of continuity of supply and money, But. I personally find it easier to just self treat than argue with the brick wall which is my doctor.

Xx

Swoozie1 profile image
Swoozie1 in reply to galathea

I cannot buy from Canada anymore as they require a script. Which site do you buy from?

Again, thanks!

Clutter profile image
Clutter

Swoozie, Welcome to the forum.

email louise.warvill@thyroiduk.org.uk for a list of recommended doctors and endos.

Erfa and other natural dessicated pig thyroid (NDT) brands aren't licensed for use in the UK although doctors can, but aren't obliged to, prescribe on a named patient basis. thyroiduk.org.uk/tuk/treatm...

Few members of the forum are able to get NDT on the NHS and even if it is possible to get a private prescription it can be cheaper to buy online.

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