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Hi guys come to a total stand still , not sure which way to turn anymore , I am fed up of feeling shocking aches pains , now dizzy tired sleeping better! Til about 4 then wake with worry . Currently on maintenace dose of Carbi 5mg for Graves' disease , now having stomach issues , taking its toll on me help anyway has good experiences. Binky noo not know what to do.

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  • Binkynoo, Are your ferritin, vitamin D, B12 and folate good? Deficiencies and low levels can make you ache and feel very unwell.

    if it is Carbimazole causing you problems your GP/endo may be able to prescribe the alternative anti thyroid drug Propylthiouracil (PTU).

  • Hi Clutter, all I know is my b12 was 444 ? My iron is 16 I'm sure that's what receptionist said il get others but I feel I need to supplement boost my body fight back a little , although no fight in me , feel like a balloon at min with swollen tummy just took some senokot see if will help then keep on trying to eat well , I suppose the only good I'm sleeping a little better if only til 4am. Gp today gonna ask for a Re referral as I was discharged I feel I'm slowing down , but far from normal !!! Feeling dizzy over last few days. want to go but done vitamins tomorrow , haven't a clue maybe vitamin b complex and vitamin d poss. Binkynoo :-)

  • Hi binkynoo have you been checked for celiacs disease because when I was diagnosed with graves thyrotoxicosis they checked for it and was positive you could try going gluten free to see if your stomach symptoms get better .

  • Binkynoo, ferritin needs to be 70-90 so 16 is too low and you need to supplement. B12 444 isn't bad although we do advise <500 is worth supplementing with 1,000mcg methylcobalamin sublingual lozenges, spray or patches. It's good to take a B complex too, to keep the 'B's balanced. Ask for a printout of your results with the lab ref ranges.

    Can you post recent thyroid blood results so we can check you haven't gone hypo on Carbimazole. Please post lab ref ranges (the figures in brackets after your results) too.

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