It's back

[carefulkate]

First diagnosed in 2011 have had 3 years of remission and it is back so just started carbimazole again and appt with Endo next week hopefully I know what to elect this time so don't feel so much in the dark just wanted it to stay away for ever

[Fruitandnutcase]

((((Hugs)))) I'm really sorry to hear you have relapsed. I know the feeling when you say you wanted it to stay away for ever, that's how I feel right now.

Hope things are easier for you this time round as you say you are more knowledgeable this time round.

[Clutter]

Sorry to hear that, Carefulkate. Don't let your endo bounce you into surgery or RAI if you are comfortable on Carbimazole. Research carefully before agreeing to your thyroid being destroyed.

[carefulkate]

I am just so bored by sitting still but my pulse races if I do the slightest thing and my muscles all shake Hopefully seeing Endo early next week just to discuss things hopefully I won't react so badly to carbimazole this time as I will keep the dose as low as possible Due to retire so hopefully that will help

thanks for the support x

[Hidden in reply to carefulkate]

Don't forget that there is an alternative to Carbimazole if you suffer side effects: propylthiouracil. It's usually known by its acronym (which I can't recall, now I need it! sorry). PPH? PPC? And although hanging on to your thyroid is, obviously, desirable - if you react badly with hyperthyroid meds there ARE alternatives. But you certainly don't have to go back on Carbimazole (which sounds as if it didn't suit you?).

[Clutter in reply to Hidden]

PTU, Humphrey

[carefulkate]

I am not sure whether it was the carbimazole or just the hyper symptoms I lose muscle bulk and last time it was only my legs but ended up only able to crawl up the stairs and it was after I started the drugs this time started to lose before I took the drugs so it might be the hyper this time my hands are affected too which is miserable can't do much Still onwards and upwards the recovery was a could of months last time hopefully this time I will be as lucky x