Feel dreadful. The side affects from the PTU me... - Thyroid UK

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Feel dreadful. The side affects from the PTU mean I'm seeing a rheumatologist next week. But now I've developed mouth ulcers.

6 Replies

Anyone else had this??

6 Replies
Clutter profile image
Clutter

Karen,

Are you unable to take Carbimazole?

PTU SIDE EFFECTS: The most common side effects are related to the skin and include rash, itching, hives, abnormal hair loss, and skin pigmentation. Other common side effects are swelling, nausea, vomiting, heartburn, loss of taste, joint or muscle aches, numbness and headache. Less common but serious side effects have occurred with PTU therapy. A decrease of white blood cells in the blood (agranulocytosis) may occur. Symptoms and signs of agranulocytosis include infectious lesions of the throat, the gastrointestinal tract, and skin with an overall feeling of illness and fever. medicinenet.com/propylthiou...

Carbizamole started this so doc change to PTU but thyroid still over active after 6 months of treatment. Feel so unwell weak and achey can't wear trousers coz I can't pull them up. Can't undress at night. Takes me 7 mins to put bra on. Sooo fed up now ulcers

Fruitandnutcase profile image
Fruitandnutcase

Don't know about PTU but mouth ulcers when you are taking Carbimazole are quite serious. I would speak to your GP tomorrow morning and get advice in case it is the same when you are taking PTU. Better safe than sorry.

in reply to Fruitandnutcase

Thank you

Jackie profile image
Jackie

Hi sounds like autoimmune thyroid disease. other autoimmune likely. Check B12,vit D ( calcium if not OK) caeliac disease. and yes, Ra and O A , Lupus and Sjogrens etc.

Jackie

ERSH profile image
ERSH

Hi Karen,

I know this was three years ago but , if you're still using the forum, I was wondering what the outcome was for you? Ive been having a v similar experience.

Hope things turned out well!