I am hoping that someone here will be able to help me with my arguments with my doc tomorrow. I have for ages wanted to have combination therapy and he was agreeable until my test results same back.
I am 144 kgs.
In desperation after putting on 25kgs feb 2013 when on the prescribed dose of 175 mcg levo I went back to self dosing of a pill and a half. I had been doing that before taking the prescribed dose to prove that it doesn't work for me. (Had 35kg rapid weight gain in London (2007) over a few months with the same dose but was not taking any soya products there.)
To be honest when I was first diagnosed in 2000 they really didn't say much, only that it was underactive and here, take this pill everyday. Come for a blood test every so often and she'll be right. I should have informed myself better but I thought my doc in the UK was nice and hey, if it was something serious she'd tell me right? At no time, ever, have I had a doc or nurse tell me that the meds should be taken without food and to avoid soy.
As I am milk and gluten intolerant for the last 7 years I have had soya milk and during the last 3 or so years have had soy protein powder with soy milk for breakfast. I have always told my doctors this. (Sometimes lunch and nearly always after a gym class that used weights)
To be even "healthier" I subbed out meat for soya mince, tofu and soy sausages.
When I discovered this website and all the information in it, I was truly shocked.
I have felt for years that the meds were not working and you can see from my blood tests (attached as a scanned pic) that actually I should be over active maybe as it def implies that I take too much levo. But if that were the case how come I still have so many hypo symptoms- and can't lose the weight?
I did Herbalife for a year with weekly weigh ins, for the last 3 years I have done 4-5 gym classes a week and I don't lose weight. For a year and a bit I went through a stage of doing double classes on a Tues and Thurs. Nothing.
I can get incredibly tired that all I can think about it when can I sleep, hair loss, really bad memory etc All from childhood. I was very overweight as a kid too. If I get a cut it takes AGES to heal.
I wonder if the soy products could have stopped me from losing weight when doing the shakes and working out because it blocked the Levo? Has the soy stopped me from feeling well all these years?
I am no longer on anything soy (a month or so) and replaced the milk with almond milk. Interestingly I have "felt" the meds working and maybe not in a good way. Some days at various times I feel quite "awake" but often in the afternoon I still feel such an overwhelming tiredness that I could literally fall asleep in any spot.
I have also lost a couple of kgs. Note: I have NOT exercised since Easter as I twisted the ligament in my knee at a boxing class!
I am going to suggest to the doc that I go down in overall levo (currently 260) and that part of it to be the T3.
As I believe T3 will help with my memory and hopefully my weight as well.
What do you think- any other explanations? Any other arguments for my doc? This is my last meeting with him, as it has been going around in circles from Nov. If he faffs around one more time I am changing docs.
Thank you for any input!