HELP t3 not tested again.

[Afaghieh]

Need help. On thyronine.

Since last Sept tsh 01 ( 0.35-5.5) t3 8.9 (3.5-6.5)

GP was suppose to contact endo. Not happened.

Since had two more tests, t3 was not done. Complained to PLS which is ongoing.

15/05 had various tests, requested t3. today got the results no t3. I have appointment to see GP tomorrow. My result for others says no action. However tsh is plasma tsh0.01 (0.35-5.5) plasma free t4 10.9 (10.5-20)

[Chippysue]

This is down to the lab, not your GP. It is madness though as you are taking T3 so you need your Free T3 testing!

I get mine tested as my Endo is out of area so I go with my blood form from my GP and I write on the form, Free T3 and Free T4 to be tested for appointment with Dr ... of .... Hospital and they always do it.

So, you could write your Endo's name on your blood form and write taking T3.

How do you feel?

Sue

thyroiduk.org

[Afaghieh in reply to Chippysue]

Thanks Suze

My blood form is in the surgery. I do ask to make sure it's on the form each time. It's madness.

[Clutter]

Maybe worth asking the GP how s/he feels about a lab tech deciding which of the diagnostic tests are fulfilled when s/he's trying to make a diagnosis of your thyroid health.

[Afaghieh in reply to Clutter]

Hi Clutter

In an hours time I will see my GP, have double appointment hope to iron out lot of complaints.

[Aurealis]

Try telephoning the lab directly- you may be able to find the telephone number using google

[Afaghieh in reply to Aurealis]

Hi Aureals

I have, the past test wasn't done so I had complaint, it's not resolved yet. I did call the lab they only keep the blood for 5 days unfortunately.

[rubyred]

Hi when I have my bloods done the results always come back showing the free t4 and t3. My GP told me in order for the labs to do the full test he writes not on thyroxine not on carbimazole.

[Afaghieh in reply to rubyred]

Thank you rubyred.

[rubyred in reply to Afaghieh]

Hi hope you manage to get the full set do let me know if it works for you.

[Afaghieh in reply to rubyred]

Hi rubyred

My GP said she will leave everything as it is. Will write to the Endo. I gave her prints of Amoxil and Deflofenec which I have had recently, not recommended for people with hypothyroid she blames the pct. I'll give it one more go then change GP

[eeng]

How are your symptoms? Your TSH and FT3 are both low but that's to be expected since you are taking T3. Your last T3 result was high. I'm surprised the doctors haven't been telling you to take less T3. Do you have hyper symptoms?

[Afaghieh]

eeng

My last result I was on 40mcg thyronine daily. After that I have been on 20mcg thyronine and 50mcg thyroxine.

For the last week only on thyronine 20mcg

I will stay on this until the next blood test. I don't feel Hyper but, aching all over.

I am now back from my GP, not much use there. She will write to endo.

[Chippysue]

Do you make sure that you don't take your t3 before a blood test?

The head of my local lab said that they will only test free t3 when an endo or specialist has requested it. Also free t4 only tested when TSH is out of range.

[Afaghieh in reply to Chippysue]

Hi Suze

It was endo who put me on t3. Surely when on the lab form it indicates which medication I am on,lab should take it on board.

[marmaris in reply to Chippysue]

Hi Suze I agree just had my bloods done and did not take T3 before. Although like the above the labs did not test, I sent in a letter of complaint and had the test done, but there was not enough time before I saw my Endo yesterday. However she brought up the second test I went back for on the browser. This has happened to me twice before. Anyway, my results were TSH 0.07 T4 8.5 and T3 4.6 (3.00 - 6.00) sorry do not have ratios for tsh and t4 yet but saw the t3 on the doctors browser briefly. I know that a previous test my T3 was 6. something. I still do not feel well with lots of aches and pains and things going on. Having x ray on left foot tomorrow. She has now decided to up my t3 from 20mcgs to 30mcgs nhs (weak) and wants me to reduce my Levo down to 50mcgs from 100mcgs. Confused about it all. Have not got tablets yet as I had just ran out yesterday and endo give you that silly yellow form to take to gp and then you have to wait until they give you a prescription although she has marked urgent. I think I will have to take my cynomel until I get nhs. I am so confused fed up and feeling unwell, weight gain etc. I spoke about optimized vits, and told her I was taking Vit D but in the spare of the moment all gets lost in the conversation. I mentioned the nodules I had that got lost also, as I had an ultra sound and a nurse advised me to ask for a scan that is deeper. I have been having difficulty in swallowing tablets etc and have choked on food. She suggested fribromyalgia etc etc. Going around in circles, only been 20 years of my life. I have studied and read so much and educated myself, and here I am still not feeling well. Sorry for the rant just so very frustrated with it all.......... all comments would be welcomed.

[Afaghieh in reply to marmaris]

Hi marmaris

I know how you feel. Is there another partner that you see in your surgery. Each one has it's own opinion. Yesterday I came out as I went in, nothing changed Im still in pain. The only pain killers use to work was Distalgisic. I asked her to hand write the prescription She said PCT won't allow it. Big lies, I'v had it before but it was another Dr. Hope you feel better soon.

[Chippysue]

Oh my! When did you last feel well?

[Afaghieh in reply to Chippysue]

Long time ago when I was on Eltroxin.