Thyroid UK

NHS GP and endo for East Midlands

I know this has been asked before, but I couldn't find any recent replies and I didn't get to know about Dr Skinner until after he passed. Does anyone have any recommendations, please? I've had hypothyroidism for 11 years and never been optimally treated. I don't have private medical, but would try to afford it if it meant I could walk my dog. I barely have the energy to keep up with a full time job and am in agony all the time. GP reduced my levothyroxine from 200mcg to alternating days of 175mcg and 200mcg. Doesn't look like it, but it's been a major difference.

I'm at the point of crying every day about it and thinking I'll never be able to cope again. What's the point of living like this??

4 Replies

Sorry you feel so poorly, why not visit GP, explain how you feel. Then increase back to 200mcg. If you feel better, go back and tell GP again. If you don't like response, get new GP!


I've tried that. Even the last endo I had agreed that my TSH was being suppressed too much for too long, so wouldn't keep me on the 200mcg. I spent ten minutes sobbing uncontrollably in the last doctor appointment, trying to tell them how frustrated I am, how sick I am and how no one in the medical profession is listening to me! I've tried three doctors in the same surgery. Might try a different surgery next. :(


It's really awful that people suffer for years due to the horrible guidelines laid down by the BTA and RCoP. We have to be pro-active if we are to try our best to recover.

This is an excerpt:-

Go to date January 25, 2002 to read the whole q/answer:

Dr Lowe: Your observations don’t suggest to me that your pituitary gland isn’t functioning properly. In fact, your observations are consistent with what science tells us about a patient's T4 dose, her TSH level, and her metabolic health or lack of it. If the goal of a doctor is metabolic health for his patient, he has no scientific basis for adjusting her thyroid hormone dose by her TSH level. If the doctor is going to make the imprudent choice of treating the patient with T4 (rather than T3 or a T3/T4 combination), he should be aware of the relevant physiology and treat her on the basis of it. Otherwise, he's likely to ruin her health, as your doctor appears to be doing to yours.


That's interesting reading. Thanks for that.


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