Private script for T3 has nearly doubled in pri... - Thyroid UK

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Private script for T3 has nearly doubled in price from £72.00 to£139.00 , amdipharm say it's not them that's put up prices but the dept of

lainey profile image
31 Replies

Health , I can't believe the big jump in the price , has anybody else know about this ? , thank you , Elaine xx

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lainey
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31 Replies
puncturedbicycle profile image
puncturedbicycle

Wow, my gp said it was too dear when it was £70. I get it online, costs about £40 for almost a year's supply. Doesn't bode well for the NHS that they are paying these kinds of prices.

lainey profile image
lainey in reply to puncturedbicycle

I know puncturedbycicle , it's a disgrace the prices , no wonder the nhs don't want to give it out , it's all about the costs , I know we can't discuss names over the site but could you please pm me the ones you get online , I couldn't pay £139.00 for a month , I was struggling to pay £70.00 Elaine xx

Hennerton profile image
Hennerton in reply to puncturedbicycle

Would you please pm me the website to buy T3 online. I am currently getting it through my GP but have a feeling the axe may be about to fall, if prices have gone up that much. Is it Liothyronine you are buying? Many thanks for your reply.

lainey profile image
lainey in reply to Hennerton

Did you see the conversation hennerton ? Elaine

Hennerton profile image
Hennerton in reply to lainey

Yes, thanks. I have had replies so am now well prepared.

gingo profile image
gingo in reply to Hennerton

Me too!

gingo profile image
gingo in reply to puncturedbicycle

Please could you PM me with the info about where you buy T3

fran5-tess profile image
fran5-tess in reply to puncturedbicycle

Hi puncturedbicycle, I too would be grateful to know where you get your T3 online as my new endo is writing to my doctor requesting that I be given T3 in addition to my T4. I have heard that doctors are now refusing to prescribe it to new patients and I think this will happen in my case. I am willing to buy it but not at NHS prices!

Coastwalker profile image
Coastwalker in reply to puncturedbicycle

Hi Puncturebicycle, I'm also interested in how and where to get T3 online at that price, do you need a prescription for it or not ? Please could you kindly PM me too :)

essdobs profile image
essdobs in reply to puncturedbicycle

Hi, I have had T3 liothyronine for about 10 years but I have a feeling that the docs are looking to save money, so could you please pm the address of where you buy your annual supply? Thanks in advance

helvella profile image
helvellaAdministratorThyroid UK

I'd very much like to see some evidence for this.

As far as I know, the DoH negotiate a price with the supplier(s) and I really find it difficult to see why they would get the price increased if AMCO were perfectly happy with what they were charging. But as it is surrounding by commercial confidentiality, I have my doubts we will ever get to really know.

Rod

lainey profile image
lainey in reply to helvella

Yes I know helvella , I thought it strange when I phoned amdipharm and they says it wasn't them that put the prices up but if they are the only supplier of T3 in Britain I think they know that they can charge what they want , I think I will write to the health secretary to see if they can get an answer to this , Elaine xx

helvella profile image
helvellaAdministratorThyroid UK in reply to lainey

I think that is a good idea - though you should probably go through your MP (as well?).

People do indeed need to call to account.

Rod

lainey profile image
lainey

My son was a parliamentary assistant to lord mcavoy while he was going through university , I should maybe start using my contacts lol , Elaine xx

mumcat2 profile image
mumcat2

Not on the topic of the T3 increase,but a sideways comment on the costs paid by the NHS for medicines.

I'm hypopituitary too,and one hormone I lack is melatonin (makes you fall asleep properly) My Prof consultant in Sheffield happily prescribes it for me but I can't use his scrips -they're only redeemable at that specific hospital's pharmacy and they don't keep them in;only when a scrip is received will they order them. As it's a 70 mile round trip, I can't go every 2 weeks (Max he can prescribe from there) Neither can the hospital pharmacy post them on - they're not allowed. My GP can't prescribe it, as our PCT will only fund it for children. Consequently, I buy it online from the USA. My last lot, as I remember, cost me about 15p a day,for one tablet. I know,from asking,that UK pharmacies have to pay over £1 for each tablet. I wrote to our local health authority months ago asking why this is so but I've had no reply. Who is making this ginormous markup profit? Somebody must know. I'm lucky - I can afford to fund myself,especially with my multiple other medications free because of the thyroid. But...

gingo profile image
gingo in reply to mumcat2

How can I buy these from the States please. Also how do you know that you are hypopituitary as my melatonin is also low and I have never heard of this condition before - in spite of having had Cushings disease and surgery on my pituitary gland. I have to go to hospital next week for tests and I can ask my consultant to check this . Thank you Ging.

mumcat2 profile image
mumcat2 in reply to gingo

Two reasons I know I'm hypopituitary - one is that when I had pituitary surgery almost 40 years ago, my consultant warned me that I'd go that way as (or if, as they only gave me 6 months...!) I got older, and even more simply, my current endocrinologist describes as such in all her letters.

I buy my melatonin from eBay - just put it into Search. I now usually buy from a UK supplier, not the States. The problem with buying from the USA is that though the initial cost is slightly lower, when the package enters the UK they impose both import duties and a handling charge. This added £20+ to my last USA shipment, with the added inconvenience that you get a card saying that you have to go to your local Post Office depot to pick the parcel and pay the duty and handling. UK price as a ball-park figure is £9 for 60 caps or tabs, but they do come in different strengths. I take 5mg in the mid-evening and another 5 as I'm going to bed. The reassuring thing about experimenting with the dose to get it right is that it doesn't build up and do you any harm - it's readily broken down (like most hormones) and the only side-effect you might get if you do overdo it, is drowsiness when you don't want it! Good luck. Multi endocrine probs are pretty horrendous.

lainey profile image
lainey

I know mumcat it's terrible , who are the ones making out of all of this certainly not us , we are not benefiting , they would leave us all ill if it was left to them , I never received your whole message there mumcat but I know how you feel , Elaine xx

Have you tried pharmarama in Essex? I dont know about T3 but i got 100 armour tabs couriered to my door for £35. (Superdrug quoted £280 for same). You can scan and email the prescription, so it's all done online.

lainey profile image
lainey in reply to

Thanks Bluedaffodil , I will look online today , Elaine xx

lainey profile image
lainey

Thanks Lola , I can't understand the big jump in T3 price it's nearly doubled in price , I got a shock when I went to the chemist yesterday , it was bad enough with the thought of parting with £70.00 , Elaine xx

HarryE profile image
HarryE

Can you just buy it over the counter in Spain?

dwsmith profile image
dwsmith

Hi, I had to come off T3 last year because my prescription was quoted at £750 for 80mcg x 3 months!! The last one i had paid previous to that was £450 again astronomical!! I then had a prescription for Armour from Dr S,, this works quite well, i am now self medicating and adding a little T3 bought privately at a fraction of the price, needs must!

puncturedbicycle profile image
puncturedbicycle in reply to dwsmith

That is absolutely shocking. I'm so glad - just on principle! - that you found a reasonable alternative. It is crazy to make sick people pay through the nose for meds which are available so cheaply elsewhere.

dwsmith profile image
dwsmith

Hi Lola1956 can you tell me the name of it in Spain? Is it Tryotex?

susie59 profile image
susie59 in reply to dwsmith

hi, I use the T3 (Cynomel ) from mexico, I know a few people on here take it, as they recommended it to me, it is very reasonably priced.

I buy 300 x25mcg at a time, although they come in 100s,

good luck

rubyred profile image
rubyred

Hi do all pharmacies charge the same for a privat prescription or are some cheaper than others. X

lainey profile image
lainey in reply to rubyred

Hi ruby red , I have seen it on here that people get it at different prices but it's usually between £60.00 and £70.00 , I usually paid £70.00 and then went to chemist the other day and they says it's up in price to £139.00 , I couldn't believe it , I actually thought they were maybe charging me for two months instead of one month but no , it was for 28 tablets , it's a disgrace , Elaine xx

in reply to rubyred

Bif diff in price. Tesco charged me £15 for 5 b12 amps - Superdrug charged £5 for same. Private script that was

Amandajl profile image
Amandajl

Hi could I also have the details of where you buy it on line

Kind regards

Amanda

lainey profile image
lainey in reply to Amandajl

Hi Amanda , everybody on here saying mymexicandrugstore , you dont need a prescription and meant to be very reasonable , I'm going to try them as well as I can't afford the t3 in Britain , good luck and I will let you know how I get on with them , Elaine xx