I saw a rheumatologist on Thursday who was very nice and explained things well. He confirmed I have fibromyalgia after an examination of trigger points and also said I have joint hypermobility syndrome (it seems I have passed this syndrome to my children with my 22 year old suffering badly with her knees) He explained all my symptoms I am having are due the fibromyalgia and the joint hypermobility syndrome. I said I knew about fibromyalgia and it can be linked to hypothyroidism which he agreed with.
My doctor admitted on my referral that I have hypothyroidism which amazed me as she keeps saying it's not my thyroid despite having a positive TPO antibodies blood test a year ago.
He suggested some physio and a visit to the pain clinic which I told him I have had attended them already on previous occasions and it has not helped. He asked me if there was anything I wanted included on the letter to my doctor and I said I would like to have an increase in my levothyroxine (taking 50mgs at mo) as I found when I started it first it relieved my symptoms for a while before symptoms came back. He said he would put that in the letter so I hope my GP agrees I might benefit from a higher dose and told him that my GP has said the Levothyroxine may do more harm than good but he said our GP's do a good job. (Bit my tongue thinking of all people on this site having trouble been diagnosed with thyroid problems by their GP's)
He could see I was not looking happy at the end of the appointment and asked why and I told him I already knew I have fibromyalgia before I even went there and felt it was a waste of time.
Now just got to wait to see what GP thinks of his letter and I am hoping that she will up my Levo.