Anybody with experience of insomnia on T3 only? - Thyroid UK

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Anybody with experience of insomnia on T3 only?

Neeta-K profile image
18 Replies

I'm on T3 ONLY. On Monday I increased my dose from 30mcg to 40mcg. Since Monday I have had insomnia. I looked at the side effects on liothyronine and insomnia is one of them, and it tells you to change doses. I don't know whether to go up or down. My last blood test was done 2 weeks ago and my FT3 was 5.1. So I'm not hyper and don't have any hyper symptoms. In fact last night my legs were aching like i'd run a marathon. I had to take painkillers. I was on 10, 20 and 30mcg of T3 and I had no insomnia. I normally don't get insomnia. I normally sleep through the night for 9 hours.

I'm exhausted. It takes me 3 hours of tossing and turning to get to sleep. I tried reading last night (to help) but my eyes were too tired. Then after tossing and turning for 3 hours, I sleep for 3 hours and wake up! I feel like a zombie!

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Neeta-K profile image
Neeta-K
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18 Replies
Hennerton profile image
Hennerton

What was the reference range for your T3? It is just that by the range my GP uses, your T3 would be near the top of the range and I wondered why you increased it on Monday. Are you gradually and slowly increasing to a higher amount, because the jump from 30 to 40 is quite big? You might be better trying 35 first for a week or so. Another thought: what time do you take your last dose? I assume you are splitting it and multi dosing? If you take it late on in the evening it might be affecting your sleep pattern. Strangely I take my last dose at bedtime and immediately turn off the light and it is amazing at getting me to sleep and even if I wake, I drop off easily again. The trick is that you must not take it and then carry on reading/ chatting, whatever. You must just lie quietly and wait for sleep to happen, which it will in about five minutes. Might be worth a try. (I am not the only person to do this on this site)

Neeta-K profile image
Neeta-K in reply to Hennerton

Hi Hennerton. The reference range for FT3 is 3.5 to 6.5. I'm 5.1.

I'm increasing 10mcg every 3 weeks directed by Dr S as I still have hypo symptoms.

I was taking 20mcg when I woke up and then 6 hours later another 20mcg. The last 2 days I tried 30mcg when I woke up and 10mcg about 6 hours later to see if it made a difference to the insomnia. It didn't. I go to sleep after 7 hours of taking my 2nd and last dose.

I might try what you suggested, thanks.

Hennerton profile image
Hennerton in reply to Neeta-K

I see Dr S but also use Paul Robinson's book, recovering with T 3 which is very helpful on dosing and he is more inclined towards multi small doses. When I started on 20, I took 4 doses of 5 mcg and gradually worked up to 60. Strangely I have found that smaller frequent doses have given me better temperatures than large ones, three times a day but maybe that is just my funny body. I hope the bedtime dose works for you.

Neeta-K profile image
Neeta-K in reply to Hennerton

Thanks again. I'll try that, and I think I'll buy Pauls's book too.

mrsmac profile image
mrsmac in reply to Hennerton

I've been on levothyroxine for 20 years now still can't get a T 3 test they keep saying their T 4 test is enough I'm now on 225 mcg day

Hennerton profile image
Hennerton

I have just sent you a reply but HU is telling me they "cannot find the post" so I hope it arrives eventually.

Neeta-K profile image
Neeta-K

Is it the one above?

Hennerton profile image
Hennerton in reply to Neeta-K

No, it has disappeared!

Hennerton profile image
Hennerton

I think the missing post was telling you how I dosed, which was morning, as soon as I woke, then in the afternoon around 2.30 to 3 pm and then bedtime. That was 3 doses at 20 each, for an easy life but I def do better with smaller doses more frequently. I am now going back to that but in a different way, as Dr S wanted me at some point to add in some T 4 or NDT This week I have started adding T4, hence am back to the drawing board, as they say! Cannot seem to get on at all with NDT, sadly, as would be better for me of I could, I think.

Neeta-K profile image
Neeta-K

Thanks. Why do you need to add T4?

I don't understand if T4 is inactive why do people take t4 and t3 together? Wouldn't people just take T3 only?

Hennerton profile image
Hennerton in reply to Neeta-K

The reason is that T3 is very fast acting and disappears quickly, so that if possible, it is good to have the longer lasting effects of T4. I see it as a kind of safety net! There are also many studies that show that T4 does have other roles to play, (see, for example, TiredThyroid.com) so as usual we are left in a total quandry wondering what is best. In the end it is down to the individual body and reason for being hypo. That's why we are all here asking questions, I suppose! It is all a minefield.

Neeta-K profile image
Neeta-K in reply to Hennerton

A minefield it is!

marmaris profile image
marmaris in reply to Hennerton

I agree Hennerton and I will look that site up.

Hennerton profile image
Hennerton

Hi Katkin I think you should be replying to Neetam as she is the one with trouble sleeping. I am the one who takes T3 at bedtime, immediately turn off the light and go to sleep. It works for me!

Katkin1 profile image
Katkin1

Oops sorry. Will do again.

Katkin

Katkin1 profile image
Katkin1

Hi

I actually do have the same problem as you with sleeping and tossing and turning. I take 100mc of T4 (am) alongside 45mcg of T3 a day in 3 doses (still testing the dose) and I have terrible trouble sleeping. However, if I take my T3 at around 4am or 5am if I wake early, then I fall into a very deep sleep for a couple of hours and have difficulty waking. I really can't work out what's happening with T3 and sleep either. I have tried taking it at all different times of the day and it doesn't make any difference. I do wonder, though, if taking it before bed might work, although I haven't tried this. I don't know if anyone else takes it before bed?

Stourie profile image
Stourie in reply to Katkin1

I take all of mine at bedtime and usually sleep all night.

Jo xx

Stourie profile image
Stourie in reply to Katkin1

Hi meant to say that l am on t3 only

Jo xx

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