Thyroid UK
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does anyone have strange sensations in the head like pressure building that wakes you up

i have yet to find anyone who has the same, and i cant explain this to the doc, or consultants, a sensation like heavy pressure 'building up inside my head as if it will eventually burst' ----it is intolerable and eventually dies down but then comes back, it wakes me constantly and i have had no rest or sleep or peace for 3 years now, no one seems able to understand this or even know where to look or what to look for, to live like this for the rest of my life is going to be awful, i have constant throbbing in my spine and nerve endings are all tingling...

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Just a suggestion. Have you tried a cranial osteopath? It actually makes me fill ill (not a good recommendation I realise), but I know other people who think cranial osteopathy is fantastic.

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What you are describing sounds to me like a type of migraine. Not all migraines have pain. some have pressure. Have a look on the Migraine Trusts website and see it there is anything that rings any bells.

Have you ever had a head injury or TIA or stroke? Pressure headaches can be a post traumatic headache that results from one of those.

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I have these symptoms when I am hypo (have been severely so) and they are slowly resolving as my levels increase. Have you had recent blood tests?

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yes i have and have been upped so to speak, but after 3 years and still there i wonder what damage is done to my head inside brain etc--- it is getting less at times but then returns severly...

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Yes mine varies and is much worse if I am tired. Reading your reply further down our experiences sound very similar. Mine happened following a TT nearly 3 years ago. It seems I wasn't converting the T4 so was actually very hypo though kept being told nobody ever had problems and it must be psychological! I have since seen a private Dr who says I was seriously ill! I am therefore inclined to think my symptoms are thyroid related as I did not have them before my TT.

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Hello Pettals

I have been having a weird head pressure and also tingling sensation since February. It comes and goes. Also developed tinnitus a couple of weeks later which I still have.

It sometimes feels like crawling insects on my scalp. I know it sounds mad.

Mine seemed to start with a bad neck which I have now found out is arthritis as I had a

neck xray a couple of weeks ago. Doc says its referred pain from the neck. I have an

an appointment with specialist this Friday which I hope will help.It's horrible feeling and quite scary.

By the way I am hypo and on just T3.

Good luck

B

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hi heritage mine started after being very very ill i think i had an adrenal crisis that wasnt recgonised-- as they hate the word adrenals- but i had all the symptoms plus swelling in my face and eyelid skin etec, i was given a high dose of prednisolone for 9 days-- then i had to stop= i think i was very low on cortisol prior hence i was so ill, so my theiry is that my adrenals thought hey we dont have to struggle now we are having outside help with this prednisolone, so they rested and then when i stopped i had NONE!. THEN ALL HELL broke loose, i was dysfunctional, nerev endings kicked off tingling everywhere , throbbing in my brain stem and spine, head pressures so severe it would not let me slepp at all for 2 years, i was hypoglcemic sweating, weight loss of a stone nauseous unable to eat throat like cardboard bp up down , dizzy weak fainting , all these are adrenal crisis symptoms and i felt so dreadfully dreadfully ill i thought i was dying but it took a lot of rsaerchmg an d reading and taking supplement to up my cortsiol iuntil i as given pregneneolone but so many things went wrong in my body it was left too long and now i am suffering i will get there i hope t but it wil be ages still want o know what the head pressure s are and no one has a clue..

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OMG You poor thing. Makes mine seem like a walk in the park.

I hope you can find answers to everything. Maybe if you could

go private to get help.

I wish you all the best, sorry not able to help.

B

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Hi blue , sorry to hear your going throw so much but i Totally understand , this is a old post hope you get to read my replay as i need so much help iam haveing the same issue as you described doctors seem to know to littel or nothing thats going on , its been 7 months now i had a minor head injury that resulted in head pain facial pain crawling sensations huge head pressure worse on my tempels tongling on scalp and face , wierd sensetions thro out my whole body iam 32 this has stole my life i cant find hope anywhere from this pain and i just want to know does this get better then how it is i stoped looking for a cure but how am i going to manage this pain

Hope your feeling better and say you are feeling awsome

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Heritage, did you ever find the outcome to your head problems? The 'insect crawling on scalp' sensation is exactly how I feel, but I felt crazy for thinking it until you wrote it too.

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Hello again

I do still get that horrible head feeling now and again but nothing like

I used to. I am not scared of it like I used to be as am sure it is my neck

causing the problem. It usually comes back when I have the neck and shoulder pain after working too hard in garden etc.

I did have loads of physio on it but tbh not sure it helped really.

I also had a couple of sessions if acu puncture which again don't really think helped. Main thing which seemed to help was normal things like

trying to relax more and be more careful of overdoing it etc.

pretty sure mine will never go completely. I do still have the

tinnitis too.

That crawly feeling is very scary but knowing other people have it does

help. Having looked on line over the year I have found a few people who have described exact same thing as us.

By the way doctor and physio people all said neck related. I did read an article in Daily mail (saddo that I am I have kept it to reassure myself) with more or less same thing, person described hers a prickly feeling in head and numbness. Doc reply

said nerve irritation to scalp caused by occipital nerve which branch off from spinal cord into neck.

Hope above helps to reassure you. Wishing you all the best.

B

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You haven't ever had a head injury, have you? One of the results can be sleep apnea which could explain your terrible nights. You could ask for a polysomnography test which would diagnose this. Another result of head injury can be tinnitus and Menieres-like symptoms. This article about Menieres and sleep apnea talks about the 'hydropic distension of the endolymphatic system" which might account for the bursting feeling, which gets worse at night. journals.lww.com/co-otolary...

(Even if you haven't had a head injury, I would recommend looking into the sleep apnea possibility. Sleep apnea can have many causes, and a CPAP machine might help you.)

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That sounds exactly like the sensation I have been experiencing over the past year. It started very seldom and has been slowly increasing. It's such an odd feeling, the pressure just builds and builds. . I worry more about what this is a sign of. For now I can handle the episodes.

I am definitely interested in hearing who else is experiencing this

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That sounds exactly like the sensation I have been experiencing over the past year. It started very seldom and has been slowly increasing. It's such an odd feeling, the pressure just builds and builds. . I worry more about what this is a sign of. For now I can handle the episodes.

I am definitely interested in hearing who else is experiencing this

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I have recently sol tarted having this happen to me. I have found anyone yet to explain it.

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Hello Bluepettals2.

Do you still get the head pressure or did you have any luck finding out what it was about? I have been getting unbearable head pressure like when all the blood rushes to your head and eyes feel like they popping.. this happens when i lie down or when i bend over.... accompanied by dead arm sensation when bending them for a few seconds or if bent in the night it wakes me up....

I hope that yours is better now...

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hi HW, no I don't know, I had a sleep study done  as it was horrendous andpainful likemy head in a crusher, or brain swelling or blood  vessels narrowing, I have no idea but I had the sleep study wired up to electrodes, and I couldn't sleep with all th etrailing wires, so no head pressure that night- I have waited 6 years fo rthat and should have that doen wheni twas horrendous, it dies down but always come back, I doubt they will ever find out, but now I a thinking that lyme hs got into my nervous system I hop eto God I am wrong!

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Thanks for your swift reply. So bizarre it only happens when you are asleep and wakes you up.... there has got to be a reason for it. Mine is still intermittent but mostly bending / laying etc. Best wishes.

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you too my daer..

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Hope your condition has improved over three years! It sounds like blood pressure problems

to me - avoidance of salt may help as this can put your blood pressure up - it might even

affect your brain arteries, which swell.

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hello I dontthink it is blood pressure a sitis generally low but itdoes fel likemybrain is swelling- I have theories, spinal fluid with infection, or too much Substance P, or lyme, no one has ever found out , at the moment it is in a bit of remission. but this has happened before.....

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Another idea is to see a chiropractor - they work on the nerves whereas osteopaths work on the blood supply. Chiropractors use x rays and will probably be able to give you some idea what is going on. gadgrant

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I couldn't afford their prices and had seen one yearsago.

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glad you are in remission - you never know it might be some supplement or food that is

affecting you - gingseng can make people feel odd - as you say you are better may be it is

not lyme or infection - I head of someone who had symptoms a bit like yours, she was elderly

but after investigations she had vascular head arteries swelling. She was given steroids after

going to hospital, and was perfectly ok. So if you are eating anything like soya or even lentils

you could have a food intolerance which can affect your brain - gluten might be something

which could affect you. Certain chemists have allergy kits which you can send back for analysis.

They test for a range of foods which can cause side effects. Keep well.

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are you using aluminium or non stick coated cookware or foil or gadgets like george foreman grill,slow cooker,new coffee making pod machines

heat alumi ium and it affects the food and causes havoc in the body

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if you mean me reallyfed up no I use stainless steel, no gadgets. foil cling film etc I have lyme

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Yes I get that sensation worse when lying down,seems mine is due to bone spurs and degeneration in cervical spine also gives thick head type head and neck ache.

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I know this is an old post but writing here just in case anyone's still reading. 33 year old male here. I was the toughest, strongest, healthiest horse for years until about 4-5 months ago when I started having the exact same symptoms at night. Starts with a strange feeling of lightness around the chest/trunk, like an engine has been suddenly switched off, then a feeling of rising pressure from the back of the neck and head and pressure behind the eyes. Wakes me up. Goes away quickly when I sit up for and comes back when I lie down again. I feel like I might end up bursting my head if I continue to lie down. Funnily enough this happens only in the first half of the night and I am able to sleep well after several of these episodes. It was rare in the beginning, but then increased in frequency to every day, practically. I also had other issues during the day like random stinging pain, temperature changes, head/eye pressure, morbid thoughts and depression etc. I was diagnosed with sub-clinical hypothyroidism, vitamin B12 deficiency and a vitamin D insufficiency. Nothing was prescribed for thyroid as it was borderline, but treating Vit B12 and D deficiencies. Most symptoms went away or improved except this sleeping issue. Did plenty of tests. Blood sugar, pressure, complete blood count, lipid profile, heart tests, ultrasound of abdomen, brain MRI and EEG, thyroid, liver etc. - all normal except thyroid.

For thyroid, I have started experimenting with alternate therapies including naturopathy/ayurveda. All doctors and family think I am just hypochondriac and just need to relax.

For now, it seems to be under control and I haven't had too many episodes recently. I did find that exercise, yoga and breathing exercises, tiring myself out in the evening with gym or some heavy reading before sleep, and putting off sleep until late in the night seem to help A LOT along with the ayurvedic herb which helps with a lot of things including sleep. I am also making changes in my diet to eat healthy, include high protein, good amount of beneficial fats, fibre and all the other nutrients and cutting down on carbs, all forms of artificial/processed food, sugar etc. generally eating less helps with my overall sense of well being especially on waking in the morning. And cut down or eliminate caffeine (no coffee or tea). My goal is to strive for a stress free living, healthy eating, good exercise, and thinking positive thoughts. I try to watch a lot of inspiring movies, read articles of listen to tracks meant for meditation and positive thinking, especially before bed.

I am strongly convinced this can be resolved, only trouble is in singling out what is causing it, but it is only a matter of time. Will keep you posted if I discover something new.

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Hi. I found this site because I googled "strange head sensations waking me up at night". The sensation I get is a little different, but has alot of similarities and everyones reply has struck me as relevent too and had entered my thoughts: vestibular issues, apnea, blood pressure, migraine, vascular swelling, pathogenic (e.g. Lyme), lack of blood flow. Mine are horrific - I get two sensations, not always both the same night. One of them is I feel a sudden "surge" in my head - feels like an electric type sensation that moves from place to place; it wakes me up the moment I start to fall asleep and does this repeatedly for the first 2 or so hours of the night. its' maddening! It's a strong surge, and lasts for 10 or so seconds (I think) then i go back to sleep, or try to, and its just "rinse and repeat" over and over and over. The other sensation is something like vertigo, but not rotary vertigo. I have a sensation that my head is flying away in all sorts of different directions; same thing, wakes me up with a start just as trying to fall asleep. goes away, then repeats.

its interesting the original poster mentioned lyme. These "zaps" for lack of a better term started with an infection that was either shingles or simplex 1 (cold sores); the spots were in two places - forehead and chest -; started then and btw, also get zaps to the chest but not as often. Whenever I get a relapse, the head zaps come back and lasts 6 weeks. but i get lots of relapses and often just have a few days off. Now after 3 years, the zaps are starting to uncouple from the relapses so that I can't swear I have a relapse, but get the zaps anyway.

docs of course just say "impossible" or get the blank stare meaning they cannot squeeze it into any pigeon hole they learned about in med school.

Note I am also very sensitive to tyramines in foods and other biogenic amines. also note on lyme that I have been wondering if i got a bartonella infection when this all started. bartonella isone of those little talked about bugs that can also occur from tick bites. i say that becasue I did a microbiome test on skin (for fun) and much to my surprise found an unusual bacteria on my sikin : bartonella. But if so, I don't know how its related to the herpatic-looking lesions that have co occurred with the "zaps" at least at first.

as for finding out source of lesions, they no longer split open (except once 2 months ago) and there is nothing usually to scrape, or can't get to doc fast enough when once in a blue moon they split open.

but not sure if will help the zaps.

Keep thinking I will get a stroke or something. I've had so many tests both conventional and unconventional. I do know from these i have an excess of dopamine, tyramine, sometimes histamine, sometimes epineprhine and norepinerphine (adreniline and nor adreneline) and I also have an excess of glutimate, though my GABA seems to be keeping pace. Large amounts of taurine in urine but don't know if that's high taurine in blood, or low taurine with taurine wasting. Feels like my symptatheic nervous system never shuts off ever since this all started.

Very hard to untangle the mess since was sick with chronic AI even before this started - docs pay even less attention then, since they just figure just one more symptom even though is very different. NO help from infectious disease docs, neurologists, rheumatologisits.

as for thryoid, Hashimotos runs in family but so far my levels have been constant and look good.

Only happens when I sleep - (although am prone to vertigo and imbalance during day - but is different) question for OP is whether you've tried sleeping sitting up - I don't hae a chair where I can do that so have not tested that.

besides stroke, i think some form of neurodegeneration is around the corner from it all.

(no recent head injury though decades ago, jarred my head badly and repeatedly skiing one day)

my money is still on herpes doing something to vessels and/or (cranial?) nerves, but I just don't know anymore.

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same here night after night all night every night 2010 to 2015, horrendous painand head pressure- had telemetry showing electrica charge in rightside of hed but i also wory aboutnerve degeneration.. no conclusion at all. its 2017!

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Hi hope everyones feeling better iam 32 had a head injury 7 months ago aince then ive been haveing huge pressure tingling crawling sensetions in my head and face , the tingling crawling also affects me around my whole body onec i get them havy pressure type of head adches with the facial pressure it so sever i just dont know wat to do my mind gos blank from the pain take 3 days until i feel bit better the pressure is constant but not as bad when in a huge attacks of pressure , feels like my heads going to burst , i also have a wierd mettalic taste nearly constant

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ibo47 get a lyme test andlike promethius has sggested a herpes test too with lyme come co infections.. i also got throbbing down brain stem and spine i still do and nervetinglng all over body, check b12 as well. and vitd 3

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Promethius your disecription is the nearest i have found to mine--- 7 bloody years, the worst were 2010 2011 2012 2013 2014 less 2015 back2016 lss 2917 but occasionally th ehead pressur epain is there- but fo rthe first 4 years - repeated each time i dropped off to sleep pressure just built and built til i thought

my head would burst it lasted prob seconds but felt like minutes then subsided and idropped off to slep and it repeated again and again allnight every nigh 4 years on trot i was exhausted.. i thought it must be infection in my spinal fluid or

brain, and as a result ALSO excess SUBSTANCE P. i did have apositive lyme test but withlyme comes co infection ie. bartenella/ i cant remember them all- andlossof memeory! am,ongst other things.. no conclusion! it happens worse

now when i am stressed.. i never want to go back to those horrendous days i just wante dto die.. i hope you all find relief somehow if you suspect supstance p- go onto tho ssite wellnessresources and read about substance P by Byron Richards, sadly thi slovely man died but his family keep his site going.

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I started to have this same kind of condition since last year. I thought it was normal but then since last week I felt almost unbearable pressure that makes me wake up from my sleep after that I feel the crawling feeling inside my head. I was looking over the Internet to see if somebody Had it. I went to the doctor days before I started to have the crawling feeling, and from what I had at that time ( burning sensation in half of my head, left side) he said it is migraine and gave me topamax 25mg two months Course.

Did someone find out what causes this and how to manage it?

I stay up late scared to sleep because of the pressure and crawling feeling. :( I’m feeling tired.

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today i was justthinking- my head pressue died down a lot and fo rthe last year or so and especially the last couple of months it has been horrendous again. i dontget burning, but the pressure feels like my head will explode- i cannot think straight it happens at night and wakes me up all th e time--- and it feels like i am in a ' twilight' i have throbbing internally through out my body and tingling. the head pressure awful. i can only put mine down to some sortof bacteria because i got so bloody ill in 2010 and all sorts of weird stuff happened to me totaly off the text book so although i have had telemetry overnight, and nerve conduction , and mri nothing has shown up- i really should have alumber puncture and although i am scared i am goingto ask for it.

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Would acupuncture help it! I hope it does.

I took a painkiller (paracetamol) and slept, so I was ok last night. Strangely, it happens when in bed, and moment when sleep comes.

I feel a bit relieved to know I’m not the only one. I hope we find some way to cure it.

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yes as soonas sleep whichis weird something to do with para sympathetic not kicking in?

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Hello! I am so intrigued by your post! It could have been my story word for word. I chased everything. Started with vertigo and then my sleep disappeared and then had weird vice grip like head pressure. It is awful. I won't even begin to tell my sage but long story short.... I tested positive for Bartonella and Lyme. Bartonella being the main problem. I am still under treatment. I also have poor conversion of T4 to T3. So that could be a player too. Seems more likely it's bacterial. How are you at the moment? Did you receive treatment for Bartonella?

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