My first post (i hear it's allowed to be long) so i'll explain EVERYTHING from the top...i just need answers! please
Born in 1993, making me 20 now. Aged 13 in 2006, I was taken to a GP who had me sent for a blood test because of plain weakness, skinniness and according to my dad being short which showed I had hypothryroidism. Had no complaints at all other than those. There I was a kid, blind to the Hypo world but to be honest, I felt good other than those 1-2 symptoms. Swiftly started on on Levo 50mg soon upped to 100mg.
During these years, I was sent to a Endo specialist who would monitor my height and weight (and suspiciously once, my privates LOL.) Nothing much came out of it, so, not knowing much I gave up going and continued to be the normal happy kid...
Come 2009 and a little before, I started college and I could sense something in my body was not right. I would sleep for ages and feel worse. Only felt a little good at night. My face became BAD! acne and all sorts. Puffiness, darkness. I felt confused always, totally lost and fogged. Use to drag my self around everywhere! Everyday I've had leg muscle aches from top to bottom. Doctors didn't do much apart from up the dose on thier beloved LEVO! Struggled in college from a bright A student to one just above a U.
2011 forced me to take a gap year as I didn't get my grades. Socially, mentally and physically effected. Would get in trouble at home for being, what the world call us, LAZY (who by the way, did you know are all HYPO specialists?...NOT)
My body became bad! I had terrible hair loss untill my scalp was exposed. Thin dry hair. People who would see me would say "what's wrong with you" "what's happened to you"
Luckily, I resat and scraped the required grades and made it to uni. Results came out this August, meaning I was freeeeeeee untill October. Stress freeee, tension freee but little did I know...
...Past 4 months I thought I will collapse. I have 90% of Hypo symptoms. Never really had weight gain but always had a small pop belly. Still skinny, no muscles. Can't go gym or play sports, im tooo weak. Can hardly walk. Im on 125mg Levo atm. Tbh past few days I stopped...Levo has increased my hair loss a LOT and damaged me.
LEVO DOES NOT help my symptoms. It's just made things worse. I feel ashamed to name the basic symptoms because I have them all (apart from weight gain)
I get chest pains, difficulty breathing, confusion, being lost, slow speech, MUMBLE AND SLURRED SPEECH. Heavy sweet craving and all symptoms of low sugar levels especially after meals.
Visited my GP a LOT, and other GP doctors. Just said they cannot prescribe anything but levothyroxine and the endo who I will visit soon should be able to do something..I hope.
My blood test result from August 2013 are as follows:
FULL BLOOD COUNT: (normal apparently)
- Haemoglobin = 14.7 (12.5-17.5)
- Total White cell count = 5.1 (4.0-11.0)
- Platelet Count = 180 (140-450)
- MCV = 88.9 (78-96)
- RBC count = 4.89 (4.6-6.0)
- Haematocrit = 43.5% (37-54)
- MCH = 30 (27-32)
- MCHC = 33.8 (31-36)
- Red blood cell d. width = 12.7 (9-15)
- Neutophil count = 2.5 (2.5-7.5)
- Lymphocyte count = 1.9 (1.5-4.0)
- Monocyte count = 0.5 (0.2-0.9)
- Eosinophil count = 0.1 (0.0-0.4)
- Basophil count = 0.0 (0.0-0.1)
- NRBC count = 0.0 (0.0-0.01)
UREA + ELECTROLYTES
- Serum Sodium = 140 (133-146)
-Serum Pottasium = 4.2 (3.5-5.3)
-Creatinine = 85 (62-106)
LIVER FUNCTION TEST
- Albumin = 50 (35-50)
-Alkalie Phosphatase = 65 (30-130)
- ALT/SGPT = 9 (0-45)
- Serum glucose = 4.1 (2.5-7.8)
->90 all normal (90-170)
now comes the abnormal tests:
SERUM VITAMIN D
- total Vitamin D = 22.8 (50-150) **on D3 25mcg
- serum ferritin in august 2013 = 73.4 (25-300) ** surely these are low for a hypothyroid patient? **
-serum feritin in september 2013 = 42.8 (25-300) ** surely these are low for a hypothyroid patient? **
now comes the awaited thyroid ( i was rejected total3 and other tests at the lab even after the GP requested it.
THYROID FUNCTION TESTS
Dec 2012 - TSH= 15.72 & T4 = 12.5
July 2013 - TSH= 2.19 & T4 = 14.5
Sep 2013 - TSH=7.67 & T4 = 12.9
Firstly, notice how my T4 is always being almost in range, its TSH that is the wierd one. Nevertheless, I don't think i'm reacting to any T4.
Also, I think my iron levels, although in range, are also low. Any suggestions on this too?
I was prescribed folic acid 5mg once daily due to that also being low and colecalciferol(D3) 25mcg once daily.
Pretty much given up on levo, stopped taking it as its made my hair worse!
I just remembered I also have these scary head spins since 2012. I'll be sitting there and suddenly everything around mean spins crazily for a second, I loose balance and have to wait for a moment.
According to my old endo "it was clear have a auto-immune disorder" whatever that means in relation to this. Its just such a broad term.
My T4 from 2006 - 2007 has changed from 12.3/15.2/17.1/17.6/16.9
My TSH from 2006- 2007 has been 25.4/8.97/6.01/7.76/0.89 respecitively
I just don't know what to do.
All and any advice will be pretty much appreciated. Im sure i've missed thing but hey, thats what being hypo is all about haha...dont even know which category this should go in as it hits em all..
I'll add and can provide more if anyone needs to know