so the dermotologist knows more than the endo!

i have just returned from the dermo after Gp said you need to see the dermo before we can get a wig. so ithought waste of time, been there before---- i am sooooooooooooo tired and fell asleep sitting up waiting inthe hosp. i see the dermo, she says and how bad does this get- i produce my photos,of hair loss and eye swelling an d tell her what happened when i was in hosp in 2007 and again that i was so very very ill for 3 years from 2010 and thought i was pegging oout-. on my doctors letter he wrote that my thyriod wa s underactive and my adrenals dont work properly and some immun e probs... i told her-- dermo doc-- how wwell i felt after the weeks supply or prednisolne in 2010 and then how i crashed after i stopped taking it-- she said well you would!..... I said that i thought i needed cortisol in hosp in 2007---------- but no one did a cortisol test---- she said YES- IT IS SO EASILY MISSED AND DOCTORS DO NOT THINK OF IT! she UNDERSTOOD IT ALL. the health care assistant said whats cortisol, Mrs dermo said -- its adrenal insuffieccy if you dont produce enough cortisolfrom the adrenals and without cortisol you can be very very ill and it CAN KILL YOU! I WANTED TO KILL THE BLOODY ENDOS AND DOCTORS THAT I HAVE BEEN BATTLING WITH FOR 9 DAMNED YEARS--- 8 YEARS AT BARTS HOSP WOULD YOU BELIEVE . AND THE HOSP CRASH IN 2007, sorry caps on, i told her how i was told i was a hypocondriac and asked her if my pictures were those of a hyponcondriac!----- bless that woman! she understood i am sooooooo gobsmacked. i think tho it has all been left too late, she has given me steroid drops for my hair and said she couldnt promise anything but also that when the endo does his tests i should have a low dose hydrocortisone or fludocortisone or what ever it is.. no one has bothered to mention that ever! bless that doctor! and also when she looked at thise awful photos she said --- this is what low cortisol does!

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HiddenAdministrator

5 years ago

Hi pettals, I know of someone who was on prednisolone because of hairloss, and she became pregnant. She came off the prednisolone whilst breastfeeding, and when she wanted to become pregnant again she had 3 miscarriages. She asked her gynae to prescribe prednisolone again for her and she refused, so she went back to the dermatologist who again prescribed prednisolone for her and she is now the mother of a healthy 2nd child!

There is a Doctor Quenby who has done research in Liverpool about off-label use of prednisolone for preventing miscarriage. She was the doctor who advised this mother-to-be. There may be a member of her team who has looked into other possibilities for its use. It might be worth checking since the endocrinology lot seem so reluctant to help.

Jane x

bluepettals2

in reply to Blue2

blue 2-- this annoys me--- cortisol should be done at 8am but they are sooooooo lax---- 9 am is acceptable but really no later and when its done in the afternoon- a one shot blood test and told you are normal it makes me so cross-- it varies thru out the day and i know my daily level has been a s low as 12nmol by genova saliva and whats more-- saliva shows what is biologically available where blood shows what is available and what is bound up by proteins making it not available so with blood you never get a proper reading, but they will not accept this ,its false and we are told we have mmore than we have in our cells. an dlow cortiosl is i thinmk what my own problem has been, but instead if accepting my sympoms and listen ingto me and giving atrial they have sent me for so mant tests all barking up the wrong tree an deven when its come back low i have been - 'normal'-. plus all the suffering inbetween. unless the tests are off the scale i think we are all normal!

in reply to shaws

dear shaws i feel so awful icant give up, i am battle weary, i look one hundred years old and low cortisol rapidly ages one----- my armour is wearing out and so am i , but i refuse to give in-- once i have had the neuro tests next week an dmy endo tests are back i am going to have to think what to do. i think i will prob get some westthroid or naturethroid again and contact dr m an dget him to give me some pregnenolone that will then convert to th emissing hormones naturally.. or i will go see dr shirley bond--- perhaps if you are around you can meet me at liverpool street if not dont worry i can go with a friend from down south, either way i think i will go th enatural hormone route, as least the last time i had preg my cortisol went from 217nmolish to 700.... its a bit scary going it alone but if i start off small...... the scalp stuff is betamethasone valerate. must not get near gas or fire or i could be burned alive!!!!!!!!!!...

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