This group was recently set up on Facebook - facebook.com/groups/NeuroLyme/
In it's introduction the founder says this (and I hope she doesn't mind me copying and pasting)
" Lyme can lie dormant for up to 30 years. It can be passed by arthropods (ticks, mosquitoes, fleas etc), sexually transmitted, in utero (pregnancy), breast milk, blood transfusions, organ transplants (blood is NOT screened for Lyme or co-infections) You DO NOT need to become deathly ill or have a bullseye rash when you are bitten to have Lyme. It is stealth, not easy to diagnose or treat."
The founder is a member of a FB adrenal group that I belong to. She and a fellow member that I was chatting to a few night's ago are firmly of the belief that most people suffering from thryoid/adrenal/auto-immune problems actually have Lyme disease and possibly co-infections.
Her arguments are strong. She believes that only a few labs do effective Lyme testing. She recommends one in Germay and Igenex in the USA.
I can't comment at this stage beyond suggesting that anyone who is interested should ask to join the group. I had an NHS for Lyme done last Nov, when I requested it. Unfortunately no trace of it can be found - it seems to disappeared en-route to the lab. These things happen, so I've made an appointment to have it done next week. I have to pay for it - £49. The receptionist at my surgery said "It's £49 if you don't have symptoms". My brain did back flip and refused to even enter the conversation.