Is anyone else intolerant to lactose and on liq... - Thyroid UK

Thyroid UK

140,403 members165,173 posts

Is anyone else intolerant to lactose and on liquid levothyroxine? 1 in 5 of all UK folk are intolerant.

Suegol profile image
13 Replies
Written by
Suegol profile image
Suegol
To view profiles and participate in discussions please or .
Read more about...
13 Replies
Moggie profile image
Moggie

You don't have to go on liquid levo if you are lactose intolerant as there are lactose intolerant pills available. A company called Martindales do them and I was quoted a price of £46 for 100 x 100mcg's (although I'm not suggesting you fund this yourself). I enquired about the price from Boots so that I could show my GP.

Moggie x

boo16 profile image
boo16 in reply to Moggie

Try superfoodsuk.com - Lambers lactase complex 200mg 60 tabs £7.36 and free delivery. These are high strength and if you only want 100 mg can cut in half and then get 120 tablets for a fraction of the boots price.

I went lactose free on the advice of Dr P as I had a continuous upset tum and the runs every night. Bought Arla milk, butter, yogurts and cheese spread and the difference is amazing...... x

Suegol profile image
Suegol in reply to boo16

I have symptoms of intolerance if I have to take the tablets every day for a course of treatment. I have been off dairy for 30+ years so am more intolerant because of this. I am intolerant to lactose but also milk protein so adding lactase to milk does not help. I may be unusual. If 1 in 5 people in the UK are intolerant to lactose I have to ask why the pharmaceutical industry uses lactose as a filler when other substances are available. Might be worth a try although I'm used to non dairy and don't like the taste of dairy!

Suegol profile image
Suegol in reply to Moggie

Thanks for this. I will look into it. Gives me hope. The thought of getting through an airport with a brown bottle of levo is more than I can face.

RedApple profile image
RedAppleAdministrator

Instead of the very costly liquid levothyroxine, your GP can prescribe the much cheaper European lactose free levothyroxine tablets that are imported from Germany. Details here - click on purple bars that say European lactose free:

thyroiduk.org.uk/tuk/treatm...

.

Suegol profile image
Suegol in reply to RedApple

Great. Will follow through on this. It gives me hope. If i spill a liquid dose I have lost it. If i drop a pill I can retrieve it. Going abroad is easier with tablets. Thanks

Suegol profile image
Suegol in reply to RedApple

Thanks for this. Will use the yellow card scheme. Wonderful what I don't know or have forgotten even though being a retired, over educated Registered Nurse! Appreciate this.

Fredbra profile image
Fredbra in reply to RedApple

Are the lactose free tablets still available in the UK? If the doctor prescribes any of those, will boots be able to order them for me?

RedApple profile image
RedAppleAdministrator in reply to Fredbra

Fredbra, Any pharmacy that has an account with IDIS, (the importers of the European lactose free levothyroxine tablets) can get them for you. Your local Boots may do, but you'll have to ask them.

Take the product details given on this page with you so that they know what you're enquiring about. thyroiduk.org.uk/tuk/treatm...

Your GP will need to agree to specifically prescribe them, and as they are more expensive than standard UK levo tablets, GP may first require proof that you actually need them (i.e. you are lactose intolerant).

janiebell profile image
janiebell

I've given up dairy recently and have been wondering about the lactose in my levo. I have just read that the lactose in pills is so minute that it shouldn't actually cause any reaction even for people who are intolerant. Can anyone feel the lactose in their levo?

Suegol profile image
Suegol in reply to janiebell

I have symptoms of intolerance if I have to take the tablets every day for a course of treatment. I have been off dairy for 30+ years so am more intolerant because of this. I am intolerant to lactose but also milk protein so adding lactase to milk does not help. I may be unusual. If 1 in 5 people in the UK are intolerant to lactose I have to ask why the pharmaceutical industry uses lactose as a filler when other substances are available.

boo16 profile image
boo16 in reply to janiebell

Hi janiebell, I don't think that it is just the small dose of lactose in the levo. If you take other prescription meds (I take 12 all with lactose) and then add in all the supplements that we also take, it is more than a 'small' amount if added together. I suppose it just depends upon individual sensitivity.

My daughter in law is lactose intolerant since a baby (she is a very dippy girl - but lovely with it) instead of taking lactase tabs she has the doctor prescribe loperamide (liquid without lactose) to stop the runs that eating lactose gives her. (told you she was dippy)

Can't get through to her and nor can my son, he shakes his head in dispare when she comes home ill after going to piza express for a four cheese LOL xx

janiebell profile image
janiebell

Very annoying that they put lacose in medication. The vitamin industry seem to be able to avoid it! I've given up dairy because I always feel so clogged by it. I don't really have the runs or stomach problems. I read an interesting blog by an American girl who was controlling her tsh and hashimotos by avoiding dairy. I do think food stuffs can cause our immune systems to react and therefore cause/worsen hashi.

Not what you're looking for?