Advice and experience required please - Thyroid UK

Thyroid UK

137,632 members161,408 posts

Advice and experience required please

Lettie999 profile image
2 Replies

Hello, after many years of being ill and enduring countless disheartening visits to GP's and Consultants I eventually managed to stumble across Dr S ( I can't really remember how I made this happen due to being really unwell), thanks to having private medical insurance I was able to have an appointment with this lovely doctor and I am hopefully on the road to recovery.

My question is this, how does my equally unwell cousin get help ? he has no private insurance, has been left with no confidence after countless unsupportive and often downright rude doctors visits. Can you please share your own experiences of how you managed to fight the system and get the help you needed please, my Cousin needs to see that what he is going through is a common experience of many but can be overcome.

PS experience of convincing GP's to continue Doctor S's work would also be appreciated.

Cheers for reading this.

Written by
Lettie999 profile image
Lettie999
To view profiles and participate in discussions please or .
2 Replies
shaws profile image
shawsAdministrator

The first thing your cousin should do is get a new thyroid gland blood test if he hasn't had a recent one - and post the results complete with the ranges on a new question. He should also have a vitamin B12, Vit D, iron, ferritin and folate. The first two are often deficient in hypo.

You don't say whether or not your cousin has yet been diagnosed, if so, what dose of levo?

We can also register for Dr S's World Thyroid Register:-

worldthyroidregister.com/Le...

Lettie999 profile image
Lettie999

I have registered, my cousin has been told he has M.E and 'to get on with it'. He is now too ill to do the job he loved. I am hoping I can show him this site and reassure him that he isn't the only out there suffering and who has encountered unsympathetic doctors. He has never seen an endo or had any recent thyroid tests in at least the last five years. It really is a terrible shame.

You may also like...

CGM self experiment advice required

Hi all I want to experiment on myself using a CGM to work out which foods are good/bad for me....

Blood test advice required please

absorption. Does anyone know for certain about how long you need to wait after taking NDT to take...

Switching From T4 to Thiroid NDT + Iodoral 12.5mg Advice Required please.

like to know if anyone has any relative experience or advice please. I was advised to switch from...

Hair loss Advice required please

Blood Test advice required please

appreciated as feeling pretty lousy at the moment Many thanks