Which is the most useful source of information ... - Thyroid UK

Thyroid UK

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Which is the most useful source of information to you concerning your thyroid condition?

lynmynott profile imagelynmynottPartnerThyroid UK301 Voters
111
Patient group forums
102
Patient group websites
50
Medical websites
24
I have a favourite book
9
My GP
5
Family members
3
My consultant
1
Friends
48 Replies
wildgoose profile image
wildgoose

The book is Barry Durant Peatfield's.

Fleur profile image
Fleur in reply to wildgoose

Brilliant book and if you can talk to Dr Peatfield too it's an amazing bonus :)

halifaxlass profile image
halifaxlass in reply to Fleur

Hi,

My friend & I are both underactive & have recently had appointments with Dr.Peatfield. Not only is he a lovely man, but we're both feeling so much better in quite a short time. I know it's early days for us but after the slog with GP/Consultant & getting no further for over 2 years I hope we've finally found a bit of light at the end of this tunnel.

Good luck :-)

Cath

wakeham profile image
wakeham in reply to wildgoose

Hi wildgoose,

I agree with you the book is very good, when I read that he said if you get a pain in your chest it might mean that because your thyroid problem has not been treated it could be that you now have a heart condition!! and a few months later that is the position that I am in, but the GP's do not tell you this. The book is a must I think.

Regards wakeham.

HEA72 profile image
HEA72 in reply to wildgoose

Mine is too! It's so interesting, easy to read & very comprehensive too.

Zephyrbear profile image
Zephyrbear

Wish I could choose more than one option! I would certainly choose this site as my first choice and Dr Peatfield's book a close second. Reasons: I can ask a specific question here and get lots of useful answers; and the book is a terrific starting point for taking control of your own condition and coming up with solutions that work irrespective of 'normal bloodtests'!

waveylines profile image
waveylines in reply to Zephyrbear

here here Zephybear -I agree!

in reply to waveylines

yep book makes sense but forum folks reply

parafluie profile image
parafluie in reply to Zephyrbear

Thumbs up.

pimalai141 profile image
pimalai141

Hi I bought Dr Peatfields book and it is good but it really focuses on underactive thyroid and not over active with Graves. Does anyone know of a book more suited to me? Thanks

lynmynott profile image
lynmynottPartnerThyroid UK in reply to pimalai141

Healing Options by Kate Flax - it is out of print, though, so you need to find a second hand one.

margarita profile image
margarita

These results don't surpise me I got the most help from this and another website and forum. Taking to people who have thyroid problems !! Thank godness I did I'm well again now after 20yrs !!

smudgerthepainter profile image
smudgerthepainter in reply to margarita

So 10 years in there is hope fo me yet!

Bumley profile image
Bumley

This site is by far and away the best. Dr Peatfields book is great, but by far and away the help given here is wonderful.

hblower profile image
hblower in reply to Bumley

I agree this site is the best, its a comfort to know you are not alone, and gaining knowledge, from others experiences.

best wishes Helen

reelingenious profile image
reelingenious

Dr Skinner's book is ver useful, together with sites such as this. Off to see the said Gordon Skinner on Wed.

AlyM profile image
AlyM in reply to reelingenious

Could'nt agree more, this man is a wonderful doctor, a credit to his profession.

margarita profile image
margarita in reply to AlyM

Dr Skinner is the best its doctors like him the nhs needs.

christina profile image
christina in reply to reelingenious

how did you go on with dr skinner ??

christina profile image
christina in reply to reelingenious

how did the visit to dr skinner go ?

Daisy profile image
Daisy

I had to vote for my GP who is just wonderful. After routine blood test he asked if I had any symptoms which were worrying me as the bloods showed a thyroid problem. Just thought my symptoms were to do with age and I quite liked the afternoon naps. He gave me a printout and suggest taking the basal temp for a week and to list symptoms I was experiencing from reading the printout and to return a week later to discuss findings. Offered to send me to an Endo which I refused. He put me onto a small dose of thyroxine which has been increased over the past year. This last week i have felt how I used to feel when younger. Think I am missing the naps though!!! Realise I am one of the lucky ones from reading the blogs.

Kangagirl profile image
Kangagirl in reply to Daisy

Diasy, I'd love to know where you live - your GP sounds fantastic. How I wish there were more like him, you are indeed blessed.

this forum has been a minefield of information as it deals with all the symptoms and problems associated with the thyroid gland. As no one has the exact same symptoms, it's nice to know there are others with wish you can discuss your with. My GP is quite good, but it is very generalised information that is given.

nanniejan profile image
nanniejan

And you get to speak to such lovely people , thanks everyone XX

robbie profile image
robbie

I came across this forum by accident. I am so glad I did reading about peoples experiences and helped me such alot. I have not had any support my doctor put me on Thyroxine and that was it. I have learned so much about my condition and I am making changes from what I have read here. Thanks to everyone who has helped me . xx xx

jugemvicsar profile image
jugemvicsar

It is a pity we couldn't tick more than one box, I would have ticked a further FIVE and it would NOT have included the Consultant or GP

jugemvicsar profile image
jugemvicsar

Thank you Lyn and all Thyroid UK staff for without you where would we be. When oh when will it all change, when will we all get the help needed to start to feel better, I, like many of you, are getting very close to the end of my tether with 'experts' they are not the ones living in these bodies?

Petronella profile image
Petronella

My favourite book is the BMA's "Family Doctor Guide to Thyroid Disorders", but, like others who have commented, I would have ticked several more if I could!

justmaz profile image
justmaz

Thankyou all Thyroid UK staff and members....this poll to me was a 'no brainer' without this forum I would know virtually nothing about my condition. There is such a wealth of information to be gained it has helped me cope!

cas012 profile image
cas012

as i have cowdens,. a genetic condition everyone in the family is a thyroid expert!!!

Mrsmoon profile image
Mrsmoon

Not sure of difference between patient forums and patient websites. I consider HealthUnlocked both.

nanniejan profile image
nanniejan

Why can't we "like " something now on comments ???

lynmynott profile image
lynmynottPartnerThyroid UK in reply to nanniejan

Hi nanniejan, I'm afraid we lost a lot of functions when HU did the upgrade. We are hoping that they will come back soon! You could always ask them via the feedback button....

harry1416 profile image
harry1416

I have bought all the books recommended by people on health unblocked and found BMA's "Family Doctor Guide to Thyroid Disorders and also Hypothyroidism type 2 the epidemic by Mark Starr to be the most helpful to me.

morvan profile image
morvan

I thik it is shocking that we have to suffer for ten years and more because doctors in this country wont update their views I took a load of literature to one of my gp and was told diagnosis in this country is very controversiol i asked if she would like to read the informatoin and she said no in the meantime i have to suffer and its getting wost as i get older i have lost tenn years of my life to an underactive thyroid already I read once it is like having a piano strapped to your back while going uphill thats how i feel I feel like i am pushing myself through treacle every time i go to the gp i am sent to a dietiction i eat a healthy well balanced diet fruit and veg dont posses a chipan grill everything est small portions i am made to feel like a fat pig who overeats which i dont i am so frustrated and am sick of feeling the way i do I despair morvan

morvan profile image
morvan

ps I wish my gp would put me on low dose thyroxine if i could buy it over the counter i would i do take kelp tab s

oldman profile image
oldman

This site and books certainly not the local GP total amateurs and not that interested

jdm122000 profile image
jdm122000

I have found that since my nurse has left my local doctors, she was amazing, I haven't heard anything from the doctors or nurses about my problem. Thank you Nurse Kath Day for all your help while you were there, I couldn't have gotten through it without you.

kayleigh profile image
kayleigh

Hi Everyone,

What is the name of Dr Peatfields book? I've been treated for an underactive thyroid for the past 16 years and not a single doctor or endocrinologist has recommended any reading material to me, baring in mind I am only 23, you would think that they would have!

RedApple profile image
RedAppleAdministrator in reply to kayleigh

Take a look here for details:

thyroiduk.org.uk/tuk/pages/...

If you prefer to buy through Amazon, please use the Amazon search box below the menu on the left of that page, so that Thyroid UK can benefit from your purchase.

parafluie profile image
parafluie

I learn so much from books, websites, group fora, and patient websites. My friends, doctors, and consultants are of precious little use to me, and I do NOT feel they have my best interests in mind.

I research confidently, listen to all opinions and so far, seem to extract enough information to apply to my body, which I know and monitor better than anyone else.

I am no longer willing to ask a doctor whom I do not trust (and consider him to be my employee, such as a mechanic) for permission to do something in my own best interest. So, I have taken back my own power.

I continue to search for a good medical partner (just as I would for a good mechanic or good school) and realize that at times, I must accept inferior performance (I don't need a major meeting of the minds to hire someone to change my tire or fix my transmission unless I'm away from home. And, if he messes up, I can get a new car). I would like to have someone on my side with even more training and expertise than I have.

And I'm eager to partner with someone who will be on my side with medical expertise and training as well as my best interest, who would work with me, listen to me, and trust my reports about my monitoring and awareness of my body, but so far, that job is unfilled.

thyriodpest profile image
thyriodpest

Study a lot and have found that the THYROID U.K. is really fantastic and a great help to me...also the book 'Stop the Thyroid Madness' by Janie A. Bowthorpe' must buy the book of Doctor Peatfields... so far no one ever helped me over the Thyroid problem.. even in 'Nursing School' we only touch a little about the anatomy...next to no expierience during my time working with patients....only since I myself have thyroid problems have I began to 'waken up'After I became 'thyroid resistant' there was no help for me...by chance studying something else I came across the book 'Stop the Thyroid Madness' and then I began taking 'Armour' am much better..but God alone knows the damage of having 18 years of the wrong treatment.

Thanks to Thyroid U.K. things are looking up. Bye bye until the next time.

Thyroidpest

damehypo profile image
damehypo

TUK.......and Peatfields book and also Paul Thompson's on T3.

digby profile image
digby

Stop the Thyroid Madness and Dr. Skinner's book, and of course this site. Thank you.

ravenhex profile image
ravenhex

Having read a few bits here, I'd say here as Ive learnt far more than my GP has ever said. Mostly I find sites/forums run by patients are more knowledgable and understanding.

Most DRs ( ive seen) seem to be patronising and pig headed.

shaws profile image
shawsAdministrator

First, ThyroidUK, Dr Peatfield and his book, Dr Skinner and his book. Dr John Lowe's site and Stopthethyroidmadness.

Many GP's not sympathetic to the illhealth of their thyroid suffering patients - really not having a clue how ill you can feel and wondering why, when taking medication (Levo) you are not feeling better and being told your blood levels are o.k. so everything else is not connected.

mushroom13 profile image
mushroom13

Definitely this site. Thanks everyone.

digby profile image
digby

, My sister, Dr. Skinner's book, also "Stop the Thyroid Madness" but most of all HU. Definitely not the Doctors or Endos.