What did you do after reading our information? - Thyroid UK

Thyroid UK

137,648 members161,425 posts

What did you do after reading our information?

matt profile imagematt108 Voters
50
I haven't had your information pack
13
Went to see NHS GP
13
Had more tests done
10
Changed how I took my medication
10
Went to see private doc from our list
6
Took supplements
5
Changed my medication
1
Your information pack wasn't useful to me
11 Replies
shaws profile image
shawsAdministrator

I learned a lot from your website and felt supported in my resolve that I must surely be able to get well. The stumbling block initially was the 'one size fits all' levothyroxine and it was a struggle. I also looked at Dr John Lowe's site also STTM. The Endocrinologist agreed to a trial T3 with reduced T4 and I have, I think, at last found the combination for me which has given me back my health and I feel well.

Zephyrbear profile image
Zephyrbear

I went to see my GP to see if I could get a follow up appointment with the endocrinologist, but trying to get anything done is almost impossible. She did suggest I write all my concerns down and she would pass them on for answers from the endocrinologist, which she thought might be a faster way of doing things... I haven't as yet as I've now also been diagnosed as asthmatic and have been concentrating on getting the medication for that right. Wonder whether the two conditions might be related.

crow profile image
crow

I take it that because I am not a member I have not received the information pack. While I fully understand that membership fees help pay for the contuniation of Thyroid UK work (which is vital), I am unfortunately unable to afford membership fees as I also have been diagnosed with CFS/ME and am in the process of losing my job and trying to get onto some kind of benefits - if I had the money, I would support you.....until then all I can say is good luck.

Chris58 profile image
Chris58

Can I get an information pack?

elayneg profile image
elayneg

Can I have an information pack

COwithAMN profile image
COwithAMN

I took none of the above actions. It's not that the information was not useful, it's just that I have taken no action so far.

thyriodpest profile image
thyriodpest

Hi I am very happy with this news on thyroid!I did not receive the information pack?Would also like to know more about supplements. As I have also had 'Sarcoidosis' of the lungs...can't take vitamin D..can you tell me why?You see vitamin D is so very important! Thank you all so much you are doing a wonderful job. Bye for now Thyroidpest.

LouiseRoberts profile image
LouiseRoberts

The Information Pack is £9.99 plus £1.99 p&p, a contents list and order form can be found on our website

thyroiduk.org.uk/tuk/pages/...

hi i suffer with hashimotos disease and although i take 125mcg of levothyroxine i'm still not well at all they are putting it down to m.e but i'm not convinced especially after reading thro this, the sad thing is i had to have support from thyroid uk to get diagnosed in the first place i just don't think my gps are interested i keep asking for a new referal to specialist but they refuse and say specialist won't see me i don't know what to do next .

lynmynott profile image
lynmynottPartnerThyroid UK

This comment is from Lyn in order to see the pie chart!

vezzacool profile image
vezzacool

Well I currently live in Germany, but am British, and all I can say is that the system here is wonderful, they start treating with a tsh of three or above !

Shows how much incompetence there is in the UK.