I'm new here
A few days ago I was diagnosed with mild Emphysema in both upper lobes....
I have seen Dr. Erkan at Hospital For Special Surgery ( he dedicates all his time to APS research ) and waiting to speak to him after the tes...
They was a guy there who’d had a six organ transplant omg he’d been in 7 weeks but looked fantastic . If you goggle Msn who had 6 organ trans...
Awaiting liver transplant - Kings College Hospital
Hi My husband Les ( 60 ) has just been put on the waiting list for a transplant and we are both obviously scared and worried. Has anyone else...
ET and travel insurance (Australia)
Hello, I am new to this forum and am very pleased to have found it to talk with others with similar issues. I was diagnosed with ET 3 years a...
immunoglobulin replacement therapy
I have an immunology appointment on Monday with a view to me starting immunoglobulin replacement treatment as I keep getting chest and sinus ...
Still in hospital, now worse than before visiting A&E
My wife was sent to A&E on the 23rd July after being discharged on the 14th July when she already had a distended abdomen from what we now kn...
Aps tests equivocal
Hey has anyone else had the APS tests come back equivocal ? I’ve had 3 tests so far one of them showed positive for lupus anticoagulant and t...
Never Ending Journey!
So yesterday I was back at Kings College, MRI scan and appointment with the Hepatologist. They have picked up a few new lesions on my liver, ...
Hi all, today is the fifth anniversary of my liver transplant op....
Any advice on follow up from Love Your Liver Roadshow? Private fibroscans in Glasgow?
Anybody know where you can get a fibroscan in west of Scotland. Love your liver show liver scan showed me at 7.3Kpa....
Recurrent miscarriage has tested me for APS and one of them was borderline positive. I’m already on Fragmin for my blood clot ( I started thi...
Antiphospholipid Antibodies and Recurrent Thrombosis after a First Unprovoked Venous Thromboembolism
[ i]Blood 2018 :blood-2017-09-805689; doi:[ /i ] doi.org/10.1182/blood-2017-... [ b]Interesting little study....
Hello again I've had contradictory advise from my hepatology consultants about using oxcodon to control gut pain. I have a PVT and thrombosis...
Hello all I've just had a call from my sister saying she has got 6 very large blood clots in her lungs 4 in one and 2 in other she suffers de...
I had went to the ER a couple weeks ago and they said I had at the beginning stages of emphysema and I had a lung test done spirometry test d...
Engineered T cells promote long-term organ transplant acceptance.
Organ transplant rejection is a major problem in transplantation medicine. Suppressing the immune system to prevent organ rejection, however,...
I think I had a miscarriage...on implanon?
I’ve had this particular contraceptive implant in for about 2 years and 3 months. I am also considered morbidly obese at 175cm tall and 148kg...
LSU Health Research Discovers New Link between Hypoxia and Blood Clot Risk.
Research led by Rinku Majumder, PhD, Associate Professor of Biochemistry at LSU Health New Orleans School of Medicine, has found how hypoxia ...
Not Missing in Action
For those of you that don't know I have Liver Cirrhosis and Portal Vein Thrombosis along with PV....
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