I have seen Dr. Erkan at Hospital For Special Surgery ( he dedicates all his time to APS research ) and waiting to speak to him after the tes...
Awaiting liver transplant - Kings College Hospital
Hi My husband Les ( 60 ) has just been put on the waiting list for a transplant and we are both obviously scared and worried. Has anyone else...
immunoglobulin replacement therapy
I have an immunology appointment on Monday with a view to me starting immunoglobulin replacement treatment as I keep getting chest and sinus ...
Never Ending Journey!
So yesterday I was back at Kings College, MRI scan and appointment with the Hepatologist. They have picked up a few new lesions on my liver, ...
Hi all, today is the fifth anniversary of my liver transplant op....
I had went to the ER a couple weeks ago and they said I had at the beginning stages of emphysema and I had a lung test done spirometry test d...
Not Missing in Action
For those of you that don't know I have Liver Cirrhosis and Portal Vein Thrombosis along with PV....
So I'm currently down to 5mg of paroxetine. I was on 40mg around November so I know I'm nearly there....
Liver transplant and HCC
Hello All, my parents are based in Abroad, my Mom has had a diagnosis of Hepatocellular carcinoma and has been advised that will need a trans...
Hi there! It's been 7 years I was d-x with Hughes Syndrome....
Inferior vena cava filters to prevent pulmonary thrombosis
My 80 year old mother is due to have a permanent filter implanted in her inferior vena cava because she is at high risk of DVT's and conventi...
Older donor lungs should be considered for transplantation.
With a scarcity of lungs available for transplantation, the use of lungs from donors older than age 60 has been shown to achieve reasonable o...
Since APS is due to a build up of fibrin, my thought is that we need a fibrinolytic. Ive seen a lot of people on Coumadin, and am wondering i...
New member, new diagnosis
Hey all, I stumbled across this forum via the NHS site and am hoping you can help me please. I'm a 39yr old female and I developed DVT in my ...
So I've never written on this page; have done on the MPN Voice ones but never needed to here before. My history is a little complicated; Octo...
Good news about new oral anticoagulants in AF and venous thrombosis - (from HSF Facebook page)
The review only looked at patients with atrial fibrillation and venous thrombosis - APS is an acquired venous thrombosis - but it's a good st...
Portal Vein Thrombosis
I am new to this support group concept, and I think it is very useful to those with medical conditions/concerns. I was recently ( 6 mos ) dia...
Has anyone who suffers from WG and has a thrombosis been taken off their blood thinning medication?...
Formula for boosting metabolism.
Generally speaking, everyone’s metabolism works pretty well. But just as you’d maintain your car, you need to fill your body with the right f...
Art project around organ transplantation
Hi all - thanks for having me in the group. I’ve joined because I wanted to let you know about an art project, ‘ Not Just the Incredibles ’ t...
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