Is There anyone that suffers with IBS C+D. Tha... - IBS Network

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Is There anyone that suffers with IBS C+D. That also has no gall bladder.

Justfrog profile image
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Ive been suffering with IBS C+D since i can remember over 15 years now and I'm only 25!!! Ive tried most things that the doctors like to fob you off with and nothing seems to be working. Ive had my gall bladder removed as they thought that was the issue but sadly it wasn't as i found out it only made my IBS even worse :(. Just before Christmas i ended up having my appendix removed, again IBS even worse since the swelling from the operation has gone down. Ive got to the point now where I've really had enough Ive gone back to my GP who has referred me back to the Gastro team at the hospital but i just feel like im going round in circles. Things i eat that are meant to be "good" for you make me even worse like veg and fruit and slightest bit of fat goes through me due to no gall bladder.

Since finding this site I've never felt such relief to know that I'm not alone, like most have said friends and those around just say oh its belly ache you'll be fine just get on with it.

Id be grateful of any help or advice anyone can offer.

Thanks in advance.

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Justfrog
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John43 profile image
John43

Hi, well I am not as young as you but had my gall bladder removed and do fluctuate between D and C though mostly loose. I watch the fat I eat and have tried various probiotics, psyllium husks etc.

On balance the Imodium capsules slow things down when needed, but I do not take too many.

jsc2012 profile image
jsc2012

Hi, I'm not sure if my situation matches yours exactly but hopefully it can help it a little bit. I never had IBS before, but then after my gall bladder was removed, it seemed I got severe IBS out of no where. It turns out that due to the gall bladder removal, I was suffering from bile acid malabsorbtion, where the bile acids that used to be stored in the gall bladder were getting dumped, irritating the intestines and causing serious diarrhea. Luckily, I found a solution.

Very soon after my surgery, I found that I would have extremely loose bowel movements after the first meal of the day. Sometimes this would happen after the first cup of tea or coffee or whatever. I did notice that the volumes I consumed would affect the urgency. i.e. more volume consumed meant more urgency immediately thereafter. This condition lasted for years. I was able to mitigate the condition somewhat by modifying my diet somewhat, such as eating a lot of non-soluble plant matter, eating very small breakfasts, low oils and fats, though at best these ended up working as half measures for me. I also tried a number of binders, enzymes etc.

Eventually what I've found works perfectly for me, though dosing might need to be adjusted. Basically I start by taking 250mg ursodeoxycholic acid and 2 mg loperamide three times a day. It usually takes three or four days for the morning urgency to subside. Eventually it does. Once I get into a routine where the urgency is gone, and I have a movement only once a day or even once every two days, I cease taking the medication. Eventually, some time later I will have a loose but not too urgent bowel movement, at which point I immediately take 500mg of ursodeoxycholic acid and 4mg of loperamide. This generally returns me to a regular schedule. If it doesn't and the urgency continues, I start again by taking 250mgx2mg three times a day etc.

I've been doing this for over a year now and it's made things much much easier.

Generally, the lower fat/oil and more fresh fiber in my diet the longer the periods of stability last. Hope this helps you and others.

kdhr profile image
kdhr

I had my gallbladder removed in 2010 and have suffered from severe stomach pain and diarrhoea ever since. They started doing tests in the summer of 2016 as they found that I had an elevated rate of 'inflammatory markers' in my blood. They tested through scans; ultrasounds; a colonoscopy and tried to establish whether I had IBS, Chrones, Ulcerative Colitis, intolerances, allergies. After a SehCat scan, I was finally diagnosed late 2017 with Bile Acid Malabsorption. A lot of people - even my GP - have never heard of this but now I have the right diagnosis and treatment, it has made a world of difference

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