Emergency endoscopy : Hi All, Hope everyone is... - IBS Network

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Emergency endoscopy

Catatvet05
Catatvet05

Hi All,

Hope everyone is doing well during the look down? It’s never easy being at home for so long.

I booked an appointment to see my usual gp but was asked if I didn’t mind who I saw? I chose to see a new one and I guess I was lucky to get him?!

He referred me to have an endoscopy as a potential cancer patient though he’s sure it’s not the case; he wanted to make sure because of my symptoms are quite aligned with the cancer symptoms. I’m pretty sure myself I don’t but I’ve lost nearly less than a stone in a matter of 7 months.

He questioned if I had an eating disorder because my BMI is dangerously low. I said some one who has really terrible unexplained reflux issues is bound to not be able to keep food down. I do vomit as a result of endless burping, etc. It’s not been easy to eat when I’m in constant pain either and so it has led me down the cancer route so I can be checked out.

I’m not really worried about it yet until I get the procedure done-I’m more concerned about entering a hospital during an pandemic!

One thing I know for sure now since I got some clarification from my gp is that anything from your stomach coming back up into your mouth is acidic! Regardless of what my ph test results were, what my previous gp said or what the consultant said - it’s rubbish!

That’s that.

Have a good weekend. Thank

39 Replies

Wishing you all the very best for your Endoscopy, I'm glad you've been referred. I'm sorry you're suffering like you are.

My daughter was in the hospital this week for our youngest granddaughter's regular appointment to see the Ophthalmologist and my daughter had no problem going in. I was in a while back having an x Ray and it was fine, very quiet.

Thinking of you.

Thank you very much for your kind words.

I’m glad to hear that there wasn’t any issues attending an hospital.

All the best

You are welcome.

No issues at all.

All the very best to you.👍👍😊

I had mine last week. I had to have a Covid test but as I explained to a previous writer it was one in one out and I never saw anyone other than staff who were maskedOnly downside is you are booted out very quickly so make sure someone is there for you outside waiting. I’d had Fentynal and was wandering round the hospital trying to find the door 🙈

Good luck

Tal

I won’t have anyone there so no sedation this time.

I was pretty much awake the last time I had sedation, as if it never happened! Do you remember the procedure? I remember everything. 😅

I had this in December. I was worried sick but it was fine. Worse bit was the spray felt like a space hopper in your mouth.Could be h pylori infection. Or Barrett’s. Can you swallow ok.

Stomach cancer caused by ulcers is quite uncommon. I take it your on the two week wait referral

Catatvet05
Catatvet05 in reply to A2060

I’m okay with it and have had it back in 2019. Only minor findings.

I don’t think they will find much to be honest? But I’m keen to find out if there are any damage to my stomach lining or throat area since I constantly have reflux issues.

The referrals are unfortunately limited to what a gp can offer. However, I’m grateful for this move right now.

A2060
A2060 in reply to Catatvet05

Oh if you had it a year ago your be fine! Did they test you for h pylori?

Catatvet05
Catatvet05 in reply to A2060

Sorry it was back in 2018! Sorry I’m getting my dates mixed up. I had a stool test in 2020 and that’s when they found HP. I was retested twice since then.

Catatvet05
Catatvet05 in reply to A2060

Also, yes I was treated for HP back in August. It could be that it takes time to heal? A colleague of mine had same problem and after treatment symptoms lasted for over a year.

A2060
A2060 in reply to Catatvet05

Yes me to. I suffered over a year before the docs tested. This was last September and now only just starting to get back to normal with some lapse days still. Yer at least 6 months probably longer

Catatvet05
Catatvet05 in reply to A2060

I don’t understand why doctors are so slow to get to the route of the problem? I understand they are many patients but no patients should have to suffer because doctors can’t find results. If you can go private that’s great but that was not an option for me, unfortunately. I’ve suffered a lot as a result of it. I’ve had previous stool test and endoscopy at the start and they found nothing - doctor said it could of been unfortunate for the HP to not have been detected back then.,💁🏻‍♀️

A2060
A2060 in reply to Catatvet05

It took three doctors to find mine over a year, I could have had the bug long before the symptoms. It was a keen new doctor who found it. The old timers couldn’t give a poo, no pun intended lol

Catatvet05
Catatvet05 in reply to A2060

🤣 none intended! That’s the same with mine. They can’t be bothered! What tests did you run to finally find out?

A2060
A2060 in reply to Catatvet05

This bug messed with my whole digestive system. Funny guts. Squeaking and gripping, twisting and turning and stools were smelly like seaweed

Catatvet05
Catatvet05 in reply to A2060

I’ve had terrible indigestion myself: always burping, gastric issues, and the amount of acid I have is unbearable.

A2060
A2060 in reply to Catatvet05

Have you been given the all clear from HP? You need to stop the ppi two weeks before the test. Push for a urea breath test

Catatvet05
Catatvet05 in reply to A2060

I’m not sure about all clear: what other treatment I needed to go through but have had two stools tests since I was treated for HP. Is the urea test available on the nhs? I’ve had mouth swaps and detected some form of bugs which I cannot remember what? None of gps have offered such test. What is the breath test for?

A2060
A2060 in reply to Catatvet05

It’s breath test. You drink a solution and do the test. It detects the ammonia that the bug produces in your breath. NHS yes! Come off your omeprozole for two weeks and push for the test.

Catatvet05
Catatvet05 in reply to A2060

I don’t take any medication since it worsened or does nothing to help me. I do have more bugs than usual that was said by my gp. She said I didn’t need antibiotics or any other treatments to solve the bug issues.

A2060
A2060 in reply to Catatvet05

Go back today and push for a h pylori test. Don’t leave until they do lol 😂

Catatvet05
Catatvet05 in reply to A2060

At my gp? They won’t do any thing now until the endoscopy. I also will need to run some blood tests.

A2060
A2060 in reply to Catatvet05

When’s the endoscopy? Make sure you tell them to take a sample pinch to test. They have a fast test so can tell you before you leave

Catatvet05
Catatvet05 in reply to A2060

Ah, that’s a good idea! On the 14th January

A2060
A2060 in reply to Catatvet05

I had mine last month in the oaks Colchester

Catatvet05
Catatvet05 in reply to A2060

London! Can you request it though even though you are in , aren’t they looking for something related to doctors notes?

A2060
A2060 in reply to Catatvet05

I’m sure they are looking for pylori if you have gastritis or reflux. Ulcers and any abnormalities. But it’s worth asking to see if they can pinch for it

hi- sounds like you've run the gamut of suggestions from the NHS with no hope of solution - once peeps have done all the usual ppis and low fodmap the gastros usually struggle. Somethings clearly amiss though but apart from ruling out major dysfunction your endoscopy will probably be unrevealing - as your previous ones were. What to do ? Well you could try a private comprehensive stool test - expensive but it will assess things that GPs and most endos won't even consider. It will reveal any functional deficiencies or pathogens. The other route is diy- fasting for 24 hrs with water only and see how you feel reintroducing foods one by one to assess intolerances- leave dairy and gluten until some way down the line - obv this approach needs that you feel reasonably ok tho and have enough physical stamina to survive it - with very low bmi tread carefully. You will get there though - good luck....

Catatvet05
Catatvet05 in reply to jox1

How do I get a private stool testing that is reliable ? Do you have link or details that you could recommend, please?

It’s been just over 3 years and I’ve only seen a gasto specialist once and after a ph test I was on Amitriptyline to no avail. If it was anxiety/ depression the route cause then I’ve should of had some good results by now.

I was recently treated for H pylori and still have symptoms- it could take some time for everything to go back to normal?

The endoscopy was referred by my gp not gasto specialist; he refused to send me to get another endoscopy done because he felt that things don’t change much in a year; my last endoscopy was back in early 2018.

jox1
jox1 in reply to Catatvet05

your gastro is probably more right - things won't have changed much especially if symptoms are the same. If h pylori was found then was the treatment sufficient I wonder? Anyway the market for stool testing is now competitive with quite a few offerings now. But the main ones that I know people have done with success are genova diagnostics or doctors data in US or great plains in US. All of those tests are accessible from the UK via third parties such as Biolab Medical unit or indeed many other functional. nutritionist. With some of those tests offering over 70 biomarkers you do get a comprehensive assessment - which is partly why a functional specialist is a useful gateway to have. In my case I've been on the point of nearly doing these tests but never have because I seem to be getting progress from dealing with silent reflux as a cause - all the more tricky because it was silent - and therefore another really difficult challenge for the NHS

Catatvet05
Catatvet05 in reply to jox1

I’m from the uk . Thanks for the information

Catatvet05
Catatvet05 in reply to jox1

It doesn’t matter what I eat I still got symptoms- I’ve tried many diets and fasting

I'm glad that you managed to see a different GP and they seem to be helping you more. The good thing is that they are putting your forward for tests. I know someone who had an endoscopy recently, they had to have a COVID test first and then isolate beforehand. Assuming this is the same for everyone else who visits the facility, this would help to keep you safe. Good luck with it all and let us know how you get on.

Catatvet05
Catatvet05 in reply to xjrs

Yes I’ve got to take a test 2 days before my procedure.

I’m glad I’m getting some treatment done but then again it’s the nhs not having much luck with finding a solution so in all they keep going around in circles? Pretty much what the last person said on here - out of sources.

But I believe it’s down to the concern of what my symptoms have come to and for how long especially with my weight loss.

Thanks for keeping in touch.

Just to reassure you about going into a hospital. I saw a consultant recently and have also needed to visit minor injuries. Both hospitals very safe and well organised but you do have to go in alone at the moment.

Hello, i was just wondering about that while I read the documents the hospital sent me. Someone can meet you outside, but I will have no one with me.

Hope it goes well

Thanks

Yes. They can wait outside by the entrance but can’t come in to the hospital

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