SeHCAT Test: Not having an easy time and phoned... - IBS Network

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SeHCAT Test

Houseofpain profile image
17 Replies

Not having an easy time and phoned doctor and ended up getting a callback from unknown emergency doc. I mentioned my SeHCAT test for Bile Acid Malabsorption regrading that I wasn't sure of the results. He told me that my bile salts aren't absorbing properly but could't tell me much more. Any advice? aside from 'googling it' which I will...

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Houseofpain profile image
Houseofpain
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sweetsusie profile image
sweetsusie

Have your doctor prescribe one of these 3 meds....they all stop diarrhea in its ugly tracks! Welchol, Colestipol, and/or Questran. Wonder drugs....Welchol and Colestipol are used along with a statin to lower cholesterol (which I do not have...so they won't effect it that much), and Type II diabetes...BUT, they are also used for chronic diarrhea!!!! Most doctors don't even know this..I had to research it myself, then suggest to my doctor to prescribe Welchol. He was happy to do that and it worked miracles. Switch to Colestipol because WElchol is pretty expensive over here in the States...Colestipol work just as well!! Good luck!

sweetsusie profile image
sweetsusie in reply to sweetsusie

Oh...I guess I should've mentioned that these drugs are also used TO TREAT BILE ACID MALABSORBTION...THEY ARE CALLED "BILE ACID SEQUESTRANTS."

Houseofpain profile image
Houseofpain in reply to sweetsusie

Thanks for the message. Saw doc today - she won't be prescribing anything until we hear back from gastroenterology crew....

sweetsusie profile image
sweetsusie in reply to Houseofpain

Wow...sorry to hear that..I think that is ridiculous, but then, that's just my humble opinion...

Houseofpain profile image
Houseofpain in reply to sweetsusie

Well I think it's just protocol - she's written to them and then they will tell her/me what I need and it will be prescribed to me from therein.. I did ask if ether is anything I can take in the meantime, but she said nope...

i take Omeprazole ( I think) was on Lansoprazole in the morning but I don't think its helping and I take loperamide as and when . Doc said I would be able to cut both and try the new thing exclusively once I get it..

I just seem to be fasting a lot due to bad IBS and pain and then I eat loads in the evening which refutes the point of small meals (little and often) but I'm famished by then.

sweetsusie profile image
sweetsusie in reply to Houseofpain

Protocol sucks....hang in there, though, let me know if the doctor will prescribe...

Houseofpain profile image
Houseofpain in reply to sweetsusie

Thanks - not sure I got your whole message there.

sweetsusie profile image
sweetsusie in reply to Houseofpain

Really? uh-oh...sorry if you didn't...don't know what part you didn't see?

Houseofpain profile image
Houseofpain in reply to sweetsusie

Or maybe this was the whole thing.. 'Protocol sucks....hang in there, though, let me know if the doctor will prescribe...'

sweetsusie profile image
sweetsusie in reply to Houseofpain

Yes..that was the whole message...hopeful that the doctors will give you what will help you the most: Welchol, Colestipol, or Questran....

Houseofpain profile image
Houseofpain in reply to sweetsusie

Gotcha- thank you , I do hope so.

Houseofpain profile image
Houseofpain in reply to sweetsusie

Updated - I've revieved an started taking colestyramine and been told that if I can' tolerate this ,I will switch to colesevelam..

sweetsusie profile image
sweetsusie in reply to Houseofpain

Good deal! I did well on that one..just keep in mind that you may have to take up to 6 tablets a day....I take 3 tablets twice a day...works wonders..although I switched to Colestipol because it was less expensive! Keep me posted..I'm "rootin" for you!

Houseofpain profile image
Houseofpain in reply to sweetsusie

I made the mistake of taking almost two by mistake together so currently a bit nauseous. ( had it in my head you take 2 at a time) No more for me tonight, start properly tomorrow..and thank you !

sweetsusie profile image
sweetsusie in reply to Houseofpain

Yes...you're supposed to take 2 at a time, if that's what your doctor told you, however, that dose didn't work very well for me, so I called my doctor and asked him if I could up the dose to THREE twice a day..so I take three tablets in the morning and then three tablets in the evening...(all 3 at once!). Hopefully, you will quit getting nauseated...try taking them with a bit of food..that might help you.

Houseofpain profile image
Houseofpain in reply to sweetsusie

I read that you are meant to take 2 at a time yesterday, but the label says 1 twice a day. Pharmacist said I might feel nauseous for taking too much and to leave it till tomorrow. Did take them with food. We will see..

sweetsusie profile image
sweetsusie in reply to Houseofpain

Well..I hope 2 a day works for you...didn't touch my diarrhea, hence why I take SIX a day. Keep me posted and good luck!

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