What Information and Support were you given?
Come along and join us at our focus group next week to share your experience about the support and information you/ your loved one were given or needed. Help us understand if there are unmet needs and how we could address these.
The focus group will be taking place on Monday 17th May, 2-3.30pm, for more information and to sign up please visit eventbrite.co.uk/e/signpost...
I missed this as I only picked up the emails today sorry. I was given no help or support as it all happened at the begining of covid when everything shut down. I didnt see my Neurosurgeon until end of July yet I was told 2nd of Feb by a phone call. As for my so called cancer nurse etc well last I heard from her was a 3 word email in June saying its not my problem.
I am in the middle of going through a second opinion hoping and praying they are not like the first hospital.
