Posts - The Brain Tumour Charity | HealthUnlocked

The Brain Tumour Charity

429 members • 149 posts

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driving licence

hi there, I’m wondering if I can apply for my driving licence earlier as it may take a while to come through. i had my operation last October and I was told...

hi there, I’m wondering if I can apply for my driving licence earlier as it ma...

•4 days ago

Recovery from Temporal lobe resection

Hello, my partner underwent a temporal lobe resection 5 days ago to remove a 3cm tumour from her brain. The surgery itself was a success and they believe they...

Hello, my partner underwent a temporal lobe resection 5 days ago to remove a 3cm...

•9 days ago

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Anyone else have a DNET?

Hi everyone Hope you’re all doing OK. Is there anyone out there who has a DNET that can’t be removed? I know that only treatment/cure is total surgical...

Hi everyone Hope you’re all doing OK. Is there anyone out there who has a DNET ...

•29 days ago

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Post Craniotomy Symptoms

So I had my craniotomy on Wednesday afternoon to remove a 4.5cm low grade Glioma in my right temporal lobe that I was diagnosed with in October. My surgeon was...

So I had my craniotomy on Wednesday afternoon to remove a 4.5cm low grade Glioma...

•2 months ago

Sign our open letter

Some decisions are tough, but a National Brain Tumour Strategy is a No Brainer. We're calling for: 🔬Pioneering research into brain tumours. 🏥Access to...

Some decisions are tough, but a National Brain Tumour Strategy is a No Brainer. ...

Administrator•2 months ago

Employment Resources

A brain tumour diagnosis can mean that you need to consider adjusting your working arrangements, hours and sometimes the type of work you do. If a partner is...

A brain tumour diagnosis can mean that you need to consider adjusting your worki...

Administrator•2 months ago

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Brain Lipoma symptoms

Hi, I'm looking for others who have this rare type of benign brain tumour. What are some of your symptoms and what has been your journey in getting help. I...

Hi, I'm looking for others who have this rare type of benign brain tumour. What ...

•3 months ago

Brain tumors galore, cushings disease

I was diagnosed with a Pituitary Tumour March 2023. It had caused Cushings Disease. Tumour removed 1st June 2023. Very successful and cured Cushings Disease -...

I was diagnosed with a Pituitary Tumour March 2023. It had caused Cushings Disea...

•3 months ago

Seeking input on new drug for Anaplastic astrocytoma - grade III

G33 YO male patient diagnosed in 2019 with Anaplastic Astrocytoma - Grade III - IDH Mutant. Tumor size was reduced following treatment. IVOSIDENIB is being...

G33 YO male patient diagnosed in 2019 with Anaplastic Astrocytoma - Grade III - ...

•4 months ago

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Support Team Christmas opening times

We know that this time of year can be difficult for many in the brain tumour community, which is why our Support Services will still be opening at reduced...

We know that this time of year can be difficult for many in the brain tumour com...

Administrator•4 months ago

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Anyone diagnosed with Anaplastic Astrocytoma?

Hi, Looking for input on a new suggested drug for patients with Anaplastic Astrocytoma. Anyone here familiar with this condition? T

Hi, Looking for input on a new suggested drug for patients with Anaplastic Astr...

•5 months ago

Low Grade Brain Tumour diagnosis

Hi, my partner has recently been diagnosed with a 3cm, Grade 2 Low Grade Tumour of the temporal lobe. She had an MRI for other reasons, so it was picked up by...

Hi, my partner has recently been diagnosed with a 3cm, Grade 2 Low Grade Tumour ...

•5 months ago

Support with mortgage payments?

Hey guys, Can anyone recommend a government scheme or grant that we could turn to, to help take the pressure off our struggle in making our mortgage payments...

Hey guys, Can anyone recommend a government scheme or grant that we could turn t...

•6 months ago

confused

I have this loud noise in my head from my acoustic neuroma and sometimes, s as Jen people are talking , I can’t hear them, especially if there’s background...

I have this loud noise in my head from my acoustic neuroma and sometimes, s as J...

•6 months ago

Epodermoid cyst on watch and see,does it always need surgery

Hello everyone I am a 65 year old woman,diagnosed with a small epodrmoid cyst/tumor 3 years ago,last MRI said it is unchanged, does it ever not need...

Hello everyone I am a 65 year old woman,diagnosed with a small epodrmoid cyst/...

•6 months ago

Recent brain tumour diagnosis

Hi all, Around 18 months ago I was referred to ENT by my GP because I’d been having headaches daily for around 9 years or so. My GP suspected chronic...

Hi all, Around 18 months ago I was referred to ENT by my GP because I’d been ha...

•6 months ago

Low grade 2 brain tumour diagnosis...

Hello all...I'm trying to deal with all the information and various choices of Operations being offered to me!..Obviously the option of having one surgery to...

Hello all...I'm trying to deal with all the information and various choices of O...

•7 months ago

recent brain tumour op

I had a metastatic melanoma from brain removed here in Spain on 22nd august. Lost movement in right hand side body totally and had severe problems with...

I had a metastatic melanoma from brain removed here in Spain on 22nd august. Los...

•7 months ago

Anxiety help

I’ve recently been diagnosed with a brain tumour and will be having it removed in about 6 weeks time. I do not know what type of tumour it is yet until it is...

I’ve recently been diagnosed with a brain tumour and will be having it removed i...

•8 months ago

Affordable travel insurance & barrister.

Hi all, I need to visit the U.S. for 8 days. The quotes I am picking up for travel insurance are extortionate. £2,000 breaks my heart (and my bank balance)....

Hi all, I need to visit the U.S. for 8 days. The quotes I am picking up for tr...

•8 months ago

Inoperable Glioblastoma

My dad has glioblastoma in his left frontal lobe. His right arm/hand is now completely paralysed and his speech is getting poorer every week. It’s taken 5...

My dad has glioblastoma in his left frontal lobe. His right arm/hand is now comp...

•9 months ago

Have you had neurosurgery for your brain tumour?

Being told you, or your loved one, needs to have surgery for their brain tumour can be a worrying time, which we know many of our community face. Help us...

Being told you, or your loved one, needs to have surgery for their brain tumour ...

Administrator•9 months ago

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My Experience with Chemo/Radiotherapy

I was diagnosed with a brain tumour back in December 2012. At that time it was misdiagnosed as a GBM4 but a recurrence in 2019 sent me to hospital again where...

I was diagnosed with a brain tumour back in December 2012. At that time it was m...

•10 months ago

Have you/your loved one had chemotherapy or radiotherapy treatment?

We’re passionate about ensuring everyone affected by a brain tumour has access to the best treatment and care. But first we need to understand how people’s...

We’re passionate about ensuring everyone affected by a brain tumour has access t...

Administrator•10 months ago

help and advice

good afternoon all I’m new to this page back in April 2019 my daughter was diagnosed with a brain tumour it was a prolactinoma tumor. Since the. She has...

good afternoon all I’m new to this page back in April 2019 my daughter was dia...

•10 months ago

dexamethasone

My Dad had been having stroke like symptoms with slurred speech and right arm paralysis. He was sent home with diagnosis of stroke with blood thinners and...

My Dad had been having stroke like symptoms with slurred speech and right arm pa...

•11 months ago

What are your top tips around rehabilitation/recovery?

Are there any tips or advice that you would pass on to someone going through the brain tumour rehabilitation/recovery process, once surgery/treatment has been...

Are there any tips or advice that you would pass on to someone going through the...

Administrator•1 year ago

Looking for any opinion n advice

I have hydrocephalus due to a presumed tectal glioma.I took ventriculitis in Dec 2021 and it floored me hard.After 6 months bed bound, I dragged myself to...

I have hydrocephalus due to a presumed tectal glioma.I took ventriculitis in Dec...

•1 year ago

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Helplines Awareness Day

To mark Helplines Awareness Day we wanted to highlight the work done by The Helplines Partnership, who raise awareness of the amazing work helplines do every...

To mark Helplines Awareness Day we wanted to highlight the work done by The Help...

Administrator•1 year ago

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Free Counselling Service

At The Brain Tumour Charity, we are offering free telephone or webcam counselling sessions to anyone diagnosed with a brain tumour and their loved ones We’ve...

At The Brain Tumour Charity, we are offering free telephone or webcam counsellin...

Administrator•1 year ago

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