Anyone else feeling fed up ? I don’t even want to take my medication anymore

I’m starting to really get fed up with the constant chest pain and the doctor saying it’s normal with cavities .... I haven’t seen any medical professional since my diagnosis in January just telephone calls .I rang them yesterday to ask why I have not been prescribed the by b6 like others but they said I will be fine without them ??? And what’s getting to me is no one has once said how are you coping etc and right now I can honestly say Mentally I’m not good I have thought about just not taking my medication as I’ve had enough of the whole pulmonary Tb crap !. It took months of feeing and being treated like I was going insane and it’s like I’m supposed to be ok with everything . Has anyone has feelings like this as I’m beginning to start to feel like I hate everything and everyone at the moment.

[SN1987]

What you are feeling is completely normal. This rough phase that you are going through physically and mentally will pass. I felt the same... I am just 2 months into my treatment now and I have my moments of feeling down...I know how hard this is.... it’s a big change to our system. Be assured that this is a curable disease and the meds are the only thing helping us fight this disease so don’t think about stopping it. All I can do now for myself is take the medication rest is out of my control. Right now it feels like the support is less as healthcare workers are going through unprecedented times. But they are always there at the end of a phone line, utilise this as much as you can. My Tb nurse got phone calls from me every other day when I first started taking meds...I had few side effects and liver function was getting worse. That’s what they are there for to support us and they understand what we are going through. Stay strong and persevere... I hope this helps

[hottchoc in reply to SN1987]

You speak very well Suvarna, you are right in what you say. Giving up any TB medication (regardless of how you feel) would be detrimental to both yourself and others so sshaw DO NOT STOP

[Soul01]

What you are feeling is normal and it is even more difficult if you can’t get face-face appointments. Don’t give up. I had days when I felt really frustrated and alone but this passes. Focus on the end result when all of this is over. Ask your team if they can see you in person.

[dino10]

I can tell you from my experience that frustration is normal. I have had a very rough 8 months of treatment regime. Heat burn, occasional phlegm even after 8 months of treatment ( no cough ) and weakness due to rifampin. All i can say is continue with your medication cause that's the only safe way out. Patience and persistence is the key. Try to feel positive. I used to and even now read about successful treatments online and how they coped with TB. I used to keep myself busy in study and work as much as possible. So dont loose heart, and keep on taking medicine. Talk to doctor that you want to meet in person if that helps. Eventually, doctors usually know the best but yeah keep an eye on how your health goes on.

BTW my chest pain remained for 4-5 months as far as I can remember. So it take time.

[greg28a]

Yes. I am in the same situation. Please dont give up. Believe in you. You will get completely fine. It is so annoying it takes too much time but it will happen.