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Vanishing White Matter (VWM) disease
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Follow up ultrasound for cirrhosis, shown polyp In gallbladder
Hi, looking if anyone has experience/ info on this? is it common, linked to cirrhosis ? It’s completely thrown me as I’ve been feeling healthy since diagnosis last year. This was my first US since. I was hoping for news that my liver looked slightly better than original scan, as I’ve worked my backside
Hi, looking if anyone has experience/ info on this? is it common, linked to cirrhosis ? It’s completely thrown me as I’ve been feeling healthy since diagnosis last year. This was my first US since. I was hoping for news that my liver looked slightly better than original scan, as I’ve worked my backside
DaveQ67
in
British Liver Trust
6 months ago
Stopping Injections After 3 Loading Doses
Hi! I’m new here and learning so much from reading all of the posts here. I was diagnosed with low B12 levels earlier on this year, although my PA antibodies came back negative. I was put on injections, and was meant to have 6 over 2 weeks followed by 1 every 3 months, however my GP had to stop them
Hi! I’m new here and learning so much from reading all of the posts here. I was diagnosed with low B12 levels earlier on this year, although my PA antibodies came back negative. I was put on injections, and was meant to have 6 over 2 weeks followed by 1 every 3 months, however my GP had to stop them
Hidden
in
Pernicious Anaemia Society
6 months ago
2nd Dose at Sarah Cannon Research
Morning folks, Finishing second dose of XmAb808 and all is well so far. Blood work looks good and have to wait four hours post dose. On Cipro for UTI and that is better too Let’s kill those cancer cells
Morning folks, Finishing second dose of XmAb808 and all is well so far. Blood work looks good and have to wait four hours post dose. On Cipro for UTI and that is better too Let’s kill those cancer cells
Pmann
in
Advanced Prostate Cancer
6 months ago
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🐺New Lupus Research: Mechanism of lupus pathogenesis unveiled🦋
📚👩🏼🔬Professor Yoontae Lee’s team identifies target protein regulating autoimmune disease lupus: https://www.postech.ac.kr/eng/mechanism-of-lupus-pathogenesis-unveiled/ Happy reading 🧐 Xxx
📚👩🏼🔬Professor Yoontae Lee’s team identifies target protein regulating autoimmune disease lupus: https://www.postech.ac.kr/eng/mechanism-of-lupus-pathogenesis-unveiled/ Happy reading 🧐 Xxx
Naladog
in
LUPUS UK
3 months ago
PSMA PET SCAN AND PSA
I had a disagreement with my RO today and wonder if he is right. My last PSMA PET Scan in Dec 2023 showed no progression. End January onwards I have an on off pain in the left ribcage area with an increasing frequency. To recap....PT3bN1Mx, RP in 2019, IMRT 2020 and on ADT for 30 months, currently completed
I had a disagreement with my RO today and wonder if he is right. My last PSMA PET Scan in Dec 2023 showed no progression. End January onwards I have an on off pain in the left ribcage area with an increasing frequency. To recap....PT3bN1Mx, RP in 2019, IMRT 2020 and on ADT for 30 months, currently completed
Tally111
in
Advanced Prostate Cancer
6 months ago
What to expect, medication etc - First appointment since Systemic Sclerosis diagnosis
Hi, I hope you can advise. Since November 2023 I have had Raynaud's, then December Severe Dry Eyes and mouth, In May 2023 landed up with medication for Sicca Sjogren's (Cyclosporine & Pilocarpine). Blood test done at the appointment showed Systemic Sclerosis (anti TH/TO) as well. I was advised of this
Hi, I hope you can advise. Since November 2023 I have had Raynaud's, then December Severe Dry Eyes and mouth, In May 2023 landed up with medication for Sicca Sjogren's (Cyclosporine & Pilocarpine). Blood test done at the appointment showed Systemic Sclerosis (anti TH/TO) as well. I was advised of this
Jules1821
in
Scleroderma & Raynaud's UK (SRUK)
3 months ago
Acute kidney failure - creatinine is climbing
My hubby's treatment is venetoclax and acalabrutinib (he previously had obinutuzumab too). He is also taking sulfameth trimeth (for ammonia) and valacyclivor (for shingles) dropped from 1200 to 800 mg a day. We just saw a Renal Specialist Dr and she said that they really don't know the full extent
My hubby's treatment is venetoclax and acalabrutinib (he previously had obinutuzumab too). He is also taking sulfameth trimeth (for ammonia) and valacyclivor (for shingles) dropped from 1200 to 800 mg a day. We just saw a Renal Specialist Dr and she said that they really don't know the full extent
spi3
in
CLL Support
6 months ago
just diagnosed with lupus
hi I’ve just been diagnosed with lupus via positive ANA test ! Only symptoms are the sun burning my neck and chest and my glands swell !! No medication given at the moment as I don’t have any other symptoms? Is there medication for this sun allergy ??? Thank you for any help !!!
hi I’ve just been diagnosed with lupus via positive ANA test ! Only symptoms are the sun burning my neck and chest and my glands swell !! No medication given at the moment as I don’t have any other symptoms? Is there medication for this sun allergy ??? Thank you for any help !!!
Edm174
in
LUPUS UK
3 months ago
High serum creatinine
Hi im in a panic dr has worried me my serum creatinine is 97.....states on my result kidney trauma. Another test next week but now so stressed. Anyone else had this plz.
Hi im in a panic dr has worried me my serum creatinine is 97.....states on my result kidney trauma. Another test next week but now so stressed. Anyone else had this plz.
Ninnin67
in
NRAS
6 months ago
Progress?
Good morning, not really after any advice just some thoughts from you lovely people. Basically in Oct ‘23 I had a massive variceal bleed, 6l blood transfusion and a 9% survival rate, very jaundice, lost over 3 stone bringing me to just under 6 stone, progonsees liver failure, put on a transplant list
Good morning, not really after any advice just some thoughts from you lovely people. Basically in Oct ‘23 I had a massive variceal bleed, 6l blood transfusion and a 9% survival rate, very jaundice, lost over 3 stone bringing me to just under 6 stone, progonsees liver failure, put on a transplant list
Starlight79
in
British Liver Trust
6 months ago
Cutaneous scleroderma ?with Lupus overlap?
Recently saw Rheumatologist for 1st time confident that I’d get Sjogren’s diagnosis but came away with more than I’d bargained for with Cutaneous scleroderma possibly with Lupus overlap to add to my ever growing list of autoimmune conditions.
Recently saw Rheumatologist for 1st time confident that I’d get Sjogren’s diagnosis but came away with more than I’d bargained for with Cutaneous scleroderma possibly with Lupus overlap to add to my ever growing list of autoimmune conditions.
DebatDG9
in
PBC Foundation
3 months ago
Covid
just tested positive for the first time .. do I need any extra medication these days via nhs due to lupus ?
just tested positive for the first time .. do I need any extra medication these days via nhs due to lupus ?
Dressgirl52
in
LUPUS UK
3 months ago
Underactive thyroid
Hi, I’ve had underactive thyroid for a few years now but have never really done much research into the condition, I just take my meds and crack on. I have noticed more recently struggling more with tiredness, feeling groggy and just not feeling great. I’ve had blood tests etc and all is good so I am
Hi, I’ve had underactive thyroid for a few years now but have never really done much research into the condition, I just take my meds and crack on. I have noticed more recently struggling more with tiredness, feeling groggy and just not feeling great. I’ve had blood tests etc and all is good so I am
Jeo05
in
Thyroid UK
3 months ago
Feeling sick after HD (advice for my dad)
Hello! My dad (72) has been on HD for two years* now. Lately, he often finds that his blood pressure drops and he feels sick after he's returned home from dialysis, even if he feels okay during treatment. He says the clinic staff watches his BP closely as well as the amount of fluid they're removing
Hello! My dad (72) has been on HD for two years* now. Lately, he often finds that his blood pressure drops and he feels sick after he's returned home from dialysis, even if he feels okay during treatment. He says the clinic staff watches his BP closely as well as the amount of fluid they're removing
Agnes_Fleming
in
Kidney Dialysis
6 months ago
Addissons disease
Good afternoon. I was diagnosed with Adison's disease in 2022. Prescribed Prednisolone 5 mg. Now I take hydrocortisone tablets 20 mg per day. Fludrocortisone 0.1 mg. Once a year there is an Adrinal crisis, I end up in intensive care... Constant weakness, no vitality, I sleep a lot... I am only 43
Good afternoon. I was diagnosed with Adison's disease in 2022. Prescribed Prednisolone 5 mg. Now I take hydrocortisone tablets 20 mg per day. Fludrocortisone 0.1 mg. Once a year there is an Adrinal crisis, I end up in intensive care... Constant weakness, no vitality, I sleep a lot... I am only 43
Mariupol
in
PMRGCAuk
6 months ago
Addissons disease
Good afternoon. I was diagnosed with Adison's disease in 2022. Prescribed Prednisolone 5 mg. Now I take hydrocortisone tablets 20 mg per day. Fludrocortisone 0.1 mg. Once a year there is an Adrinal crisis, I end up in intensive care... Constant weakness, no vitality, I sleep a lot... I am only 43
Good afternoon. I was diagnosed with Adison's disease in 2022. Prescribed Prednisolone 5 mg. Now I take hydrocortisone tablets 20 mg per day. Fludrocortisone 0.1 mg. Once a year there is an Adrinal crisis, I end up in intensive care... Constant weakness, no vitality, I sleep a lot... I am only 43
Mariupol
in
PMRGCAuk
6 months ago
Final Pluvicto shot and things OK
I just had my 6th, and final, injection. Feeling well but everyone concerned with kidney function dropping -- hopefully transient and not an on-going trend, on the plus side this is the last time it has to deal with all that radioactive liquid. Chugging water and peeing like a champ! To review:
I just had my 6th, and final, injection. Feeling well but everyone concerned with kidney function dropping -- hopefully transient and not an on-going trend, on the plus side this is the last time it has to deal with all that radioactive liquid. Chugging water and peeing like a champ! To review:
Miccoman
in
Advanced Prostate Cancer
6 months ago
B12 advice please
Hi i am new to this group, nice to meet you all. I just wondered if I should order an MMA urine test or contact the GP with concerns of low B12. Or should I just carry on taking the Thorn basic B and better you b12, then re test. I have an underactive thyroid and inflammatory arthritis, also taking
Hi i am new to this group, nice to meet you all. I just wondered if I should order an MMA urine test or contact the GP with concerns of low B12. Or should I just carry on taking the Thorn basic B and better you b12, then re test. I have an underactive thyroid and inflammatory arthritis, also taking
Ankles
in
Pernicious Anaemia Society
3 months ago
what is choline-avid prostate cancer
hi,I was dx in 2014 finished treatment in 2016 ht/rt psa is 0.04 so still ok except I now have severe osteoporosis for which I am having treatment, what I want to ask is does anyone take krill oil to help there joints, I have been reading on canceractive that krill oil is not good for prostate cancer
hi,I was dx in 2014 finished treatment in 2016 ht/rt psa is 0.04 so still ok except I now have severe osteoporosis for which I am having treatment, what I want to ask is does anyone take krill oil to help there joints, I have been reading on canceractive that krill oil is not good for prostate cancer
Radars
in
Advanced Prostate Cancer
6 months ago
Wednesday Word
[u][i]
ALT - Alanine Transaminase
[/i][/u] This is a blood test performed as part of your routine liver panel test. It is released more so by the [u][i]
hepatocytes -(liver cells)
[/i][/u] so it's associated more with hepatitis rather than PBC. ALT can be elevated in both non responders
[u][i]
ALT - Alanine Transaminase
[/i][/u] This is a blood test performed as part of your routine liver panel test. It is released more so by the [u][i]
hepatocytes -(liver cells)
[/i][/u] so it's associated more with hepatitis rather than PBC. ALT can be elevated in both non responders
DonnaBoll
Administrator
in
PBC Foundation
6 months ago
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