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Vitamin B12 / Folic acid
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Best IRON supplements for RLS? Currently trying Pramipexole but learning about the risk of augmentation...
I am 33F. I had RLS (in my shins) as a teen-early 20s, but it was usually a sign of being tired and going to bed was enough. Eventually it got worse, moved up to my thighs and would not always go away with sleep... The last 3 years it has increasingly become unbearable. I have it deep in my hips, up
I am 33F. I had RLS (in my shins) as a teen-early 20s, but it was usually a sign of being tired and going to bed was enough. Eventually it got worse, moved up to my thighs and would not always go away with sleep... The last 3 years it has increasingly become unbearable. I have it deep in my hips, up
Catsmeow13
in
Restless Legs Syndrome
1 month ago
Statins and Paroxysmal afib stopped?
Anyone else experienced this? there is research showing statins reduce PAF burden.Used to have episode every 3-6 months, very upsetting! Also take iron, b12 and magnesium supplements. Afib free for a year now. Tempting fate of course....🫣.also enjoying a couple of pints now and then which is nice.
Anyone else experienced this? there is research showing statins reduce PAF burden.Used to have episode every 3-6 months, very upsetting! Also take iron, b12 and magnesium supplements. Afib free for a year now. Tempting fate of course....🫣.also enjoying a couple of pints now and then which is nice.
DJPH23
in
Atrial Fibrillation Support
1 month ago
Can levo cause low FT3?
Hi I am hypothyroid with Hashimoto’s, suspect both for decades but never tested/ treated until 2 years ago. I also took private tests at the same time and whilst my TSH and FT4 were both around 8, my FT3 was optimal. I was put on levo by GP and titrated to 100mcg but last autumn got worse, (also privately
Hi I am hypothyroid with Hashimoto’s, suspect both for decades but never tested/ treated until 2 years ago. I also took private tests at the same time and whilst my TSH and FT4 were both around 8, my FT3 was optimal. I was put on levo by GP and titrated to 100mcg but last autumn got worse, (also privately
Opal79
in
Thyroid UK
1 month ago
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Methylcobalamin B12
Hi I’m going to try and do the B12 injections myself but I’m looking for the methylcobalamin B12 I’ve heard a lot of people buy it from Germany please could someone tell me where is a reputable place to purchase it from thank you
Hi I’m going to try and do the B12 injections myself but I’m looking for the methylcobalamin B12 I’ve heard a lot of people buy it from Germany please could someone tell me where is a reputable place to purchase it from thank you
Bess48
in
Pernicious Anaemia Society
1 month ago
Purchasing Hydroxocobalamin Ampoules UK
Hello All, Just wondering if anyone can advise where is the best place to source hydroxocobalamin vials from in the UK, please (plus syringes)? I found a website which was really reasonably priced (£13 something for 5 vials), then discovered that was only if you were a registered pharmaceutical practice
Hello All, Just wondering if anyone can advise where is the best place to source hydroxocobalamin vials from in the UK, please (plus syringes)? I found a website which was really reasonably priced (£13 something for 5 vials), then discovered that was only if you were a registered pharmaceutical practice
New144
in
Pernicious Anaemia Society
1 month ago
Optimal Dose For Oral B12 In a Test To Replace Injections.
Having been self injecting for a year now and in a good place, with all cofactors applied, I’m wanting to test myself in increasing the gap between EOD injections and when I feel symptoms returning to then introduce oral supplementation. So if someone can, maybe from experience, recommend an optimal
Having been self injecting for a year now and in a good place, with all cofactors applied, I’m wanting to test myself in increasing the gap between EOD injections and when I feel symptoms returning to then introduce oral supplementation. So if someone can, maybe from experience, recommend an optimal
B12again
in
Pernicious Anaemia Society
1 month ago
Ropinirole and dizziness
Hi all, I’ve just joined this forum. Thank you all from a desperate woman! I’m currently taking 0.5mg of ropinirole every night. I was on a higher dose of Pramipexole - I tried to come off it without understanding the withdrawal effects. After two weeks of no sleep at all I was broken went to the gp
Hi all, I’ve just joined this forum. Thank you all from a desperate woman! I’m currently taking 0.5mg of ropinirole every night. I was on a higher dose of Pramipexole - I tried to come off it without understanding the withdrawal effects. After two weeks of no sleep at all I was broken went to the gp
LunaWise
in
Restless Legs Syndrome
1 month ago
Usual diagnosis problems
Hello all, first post, but been reading for a while. I seem to be in the usual position, I think I have B12 deficiency but my doctors think otherwise. My initial bloods gave a B12 of 320, but I was taking supplements at the time, and although this falls in the indeterminate zone the GP says I do not
Hello all, first post, but been reading for a while. I seem to be in the usual position, I think I have B12 deficiency but my doctors think otherwise. My initial bloods gave a B12 of 320, but I was taking supplements at the time, and although this falls in the indeterminate zone the GP says I do not
frogmore
in
Pernicious Anaemia Society
1 month ago
going on holidays on plane with b12 ampoules and needles etc
I was diagnosed PA 20 years ago. and had monthly injections. I moved to England and new surgery. After blood tests I was reduced to every 3 months. Then when Covid happened I was told to get the b12 lozenges from chemist. I knew I was going backwards and all the initial symptoms returned so I started
I was diagnosed PA 20 years ago. and had monthly injections. I moved to England and new surgery. After blood tests I was reduced to every 3 months. Then when Covid happened I was told to get the b12 lozenges from chemist. I knew I was going backwards and all the initial symptoms returned so I started
Higgey
in
Pernicious Anaemia Society
1 month ago
please help how many ml is 2500 micrograms in an ampule
hello all, I received ampules for the first time from b12 store.com and they came in 2,500 mcg per ampule. I inject 1 ml normally of methyl b12 from a vile and this is the first time I used an ampule from this supplier. I was thinking I will just fill up 1 ml on the shot and fill up another if I'm correct
hello all, I received ampules for the first time from b12 store.com and they came in 2,500 mcg per ampule. I inject 1 ml normally of methyl b12 from a vile and this is the first time I used an ampule from this supplier. I was thinking I will just fill up 1 ml on the shot and fill up another if I'm correct
JesusMercy60
in
Pernicious Anaemia Society
1 month ago
SubCu Injection - Absorption?
Hi Folks I have the excellent Chandy book on B12 Def. I recommend it anyone with PA/B12 Def. issues. From reading it....I have a question ref B12 absorption, using subcutaneous injection. Dr Chandy ( book ref 3.5.1.2) says that "...some people may observe a red bruising at the injection
Hi Folks I have the excellent Chandy book on B12 Def. I recommend it anyone with PA/B12 Def. issues. From reading it....I have a question ref B12 absorption, using subcutaneous injection. Dr Chandy ( book ref 3.5.1.2) says that "...some people may observe a red bruising at the injection
Treesong2023
in
Pernicious Anaemia Society
1 month ago
Primary bilery cirrhosis and PA caused by Gastritis (autoimmune type).
I have not been treated well by my GP. I am symptomatic for B12 deficiency as well as a family history of PA (4 generations). My GP will not give me the Holo-TC test, only the standard B12 test which, as you are all aware is more than useless when you suspect server B12 deficiency. The latest test results
I have not been treated well by my GP. I am symptomatic for B12 deficiency as well as a family history of PA (4 generations). My GP will not give me the Holo-TC test, only the standard B12 test which, as you are all aware is more than useless when you suspect server B12 deficiency. The latest test results
Allywales8663
in
Pernicious Anaemia Society
1 month ago
B12 injection and levothyroxine
How far apart from B12 injection can levothyroxine be taken
How far apart from B12 injection can levothyroxine be taken
Andypandy30
in
Thyroid UK
1 month ago
Still fighting for a diagnosis B12, PA
Due to my ongoing failing health I've had to do my own research as to the pathway of blood test results, symptoms and the progression/knock on effects of having doctors who refuse to help. I have had to be extremely proactive in my own diagnosis, following the path of autoimmune conditions (co-morbid
Due to my ongoing failing health I've had to do my own research as to the pathway of blood test results, symptoms and the progression/knock on effects of having doctors who refuse to help. I have had to be extremely proactive in my own diagnosis, following the path of autoimmune conditions (co-morbid
Allywales8663
in
Pernicious Anaemia Society
1 month ago
PA and anxiety
Hi allI was diagnosed with PA about 6 years ago. For years I lived with the worse anxiety. Once I started loading doses and got on a regiment(3 jabs a week) my anxiety was practically gone. I mean I would get nervous(normal type of nervous) but anxiety was all but gone. About a year ago, my new primary
Hi allI was diagnosed with PA about 6 years ago. For years I lived with the worse anxiety. Once I started loading doses and got on a regiment(3 jabs a week) my anxiety was practically gone. I mean I would get nervous(normal type of nervous) but anxiety was all but gone. About a year ago, my new primary
Wowo23
in
Pernicious Anaemia Society
1 month ago
Megaloblastic anemia and very low b12
I'm currently in a bad way. I have very low B12 and funny shaped enlarged blood cells. My symptoms are numbness in legs feet's. Pins needles, dizziness. Today I have shortness of breath really bad and feel so dizzy and faint. I'm afraid of medication and Dr's so do my best to avoid them. My symptoms
I'm currently in a bad way. I have very low B12 and funny shaped enlarged blood cells. My symptoms are numbness in legs feet's. Pins needles, dizziness. Today I have shortness of breath really bad and feel so dizzy and faint. I'm afraid of medication and Dr's so do my best to avoid them. My symptoms
Plumpudding
in
Pernicious Anaemia Society
1 month ago
Does B12 lower magnesium levels
Hi trying to work out what is causing my anxiety and if i should continue with weekly b12 injections after two infections and being treated with antibiotics .also started on a higher dose of levithyroxine as my results showed I needed an increase
Hi trying to work out what is causing my anxiety and if i should continue with weekly b12 injections after two infections and being treated with antibiotics .also started on a higher dose of levithyroxine as my results showed I needed an increase
Andypandy30
in
Pernicious Anaemia Society
1 month ago
travel restrictions
I am due to travel to Canada from the U.K. in October. I SI and so will need to take B12 , syringes and needles with me . Can I put these in the hold luggage .Will there be any restrictions and is it likely the syringes etc will be confiscated at customs ? Any advice welcome .
I am due to travel to Canada from the U.K. in October. I SI and so will need to take B12 , syringes and needles with me . Can I put these in the hold luggage .Will there be any restrictions and is it likely the syringes etc will be confiscated at customs ? Any advice welcome .
36Hele
in
Pernicious Anaemia Society
1 month ago
is it like starting treatment all over if at first 6 months with sublingual now 2 months EOD inj.
hello all, so if I was on sublingual liquid b12 for the first 6 months and now I'm on EOD injections for 2 1/2 months I feel as if I'm kinda starting over. I did have reversing out with the sublingual but I feel these are getting a lot more in depth and a lot more itching after the pain is gone, and
hello all, so if I was on sublingual liquid b12 for the first 6 months and now I'm on EOD injections for 2 1/2 months I feel as if I'm kinda starting over. I did have reversing out with the sublingual but I feel these are getting a lot more in depth and a lot more itching after the pain is gone, and
JesusMercy60
in
Pernicious Anaemia Society
1 month ago
CLL Progressing To Next Stage
Today I had a phone consult with my haematologist who informed me CLL has progressed and that at my next appt in 6 weeks’ time he’d discuss with me my options I have to confess to being largely ignorant about the disease (call it burying my head in the sand) and wondered what these options/treatments
Today I had a phone consult with my haematologist who informed me CLL has progressed and that at my next appt in 6 weeks’ time he’d discuss with me my options I have to confess to being largely ignorant about the disease (call it burying my head in the sand) and wondered what these options/treatments
Spondonhouse
in
CLL Support
1 month ago
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