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Venetoclax
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CLL Treatment Advice/Recommendations/Etc For Newbie
After monitoring for 1 year, my doc has recommended that I participate in Trial #EA9161, a 19-month program using ibrutinib, obinutuzumab, &
venetoclax
.
After monitoring for 1 year, my doc has recommended that I participate in Trial #EA9161, a 19-month program using ibrutinib, obinutuzumab, &
venetoclax
.
username-the-dude
in
CLL Support
4 years ago
Zicam
I’m on Ibrutinib, obintuzinab, and
venetoclax
.
I’m on Ibrutinib, obintuzinab, and
venetoclax
.
aquafinn
in
CLL Support
4 years ago
O + V: Update Two!
Took my 1st-ever dose of
Venetoclax
this morning. 5:30am, to be precise. (No Obinutuzumab infusion this week: not until next Friday.) Got IV hydration at the clinic at 10am, just to be safe. (Dr’s orders.) Got a blood draw at 12:30pm, checking for Tumor Lysis, of which there were no signs.
Took my 1st-ever dose of
Venetoclax
this morning. 5:30am, to be precise. (No Obinutuzumab infusion this week: not until next Friday.) Got IV hydration at the clinic at 10am, just to be safe. (Dr’s orders.) Got a blood draw at 12:30pm, checking for Tumor Lysis, of which there were no signs.
DRM18
in
CLL Support
4 years ago
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Remission on Acalabrutinib and Venetoclax
Hi everyone I’ve been on Ace cll 311 trial for 3 1/2 months after my latest CT scan my Dr has told me I am in remission I have to keep taking both tablets to get to a deeper remission I feel very lucky and privileged to be a part of this wonderful trial
Hi everyone I’ve been on Ace cll 311 trial for 3 1/2 months after my latest CT scan my Dr has told me I am in remission I have to keep taking both tablets to get to a deeper remission I feel very lucky and privileged to be a part of this wonderful trial
Yidarmy69
in
CLL Support
4 years ago
My two year on ibrutinib check up
I thought he would add
venetoclax
, that was always Keating’s plan for me. Thompson wants to wait for FDA approval.
Venetoclax
has some approval now, but not frontline with ibrutinib.
I thought he would add
venetoclax
, that was always Keating’s plan for me. Thompson wants to wait for FDA approval.
Venetoclax
has some approval now, but not frontline with ibrutinib.
cajunjeff
in
CLL Support
4 years ago
Please share experience of venetoclax plus obinutuzimab or acalabrutinib treatment in a survey that may help others gain access?
WE NEED YOUR HELP You may have seen and responded to this request for help in this survey lead by Canadian CLL groups, it was posted a while back by CLLPAG https://healthunlocked.com/cllsupport/posts/142434850/survey-for-cll-patients-having-taken-
venetoclax
-or-acalabrutinib IF YOU ARE IN THE UK OR IN
WE NEED YOUR HELP You may have seen and responded to this request for help in this survey lead by Canadian CLL groups, it was posted a while back by CLLPAG https://healthunlocked.com/cllsupport/posts/142434850/survey-for-cll-patients-having-taken-
venetoclax
-or-acalabrutinib IF YOU ARE IN THE UK OR IN
HAIRBEAR_UK
Administrator
in
CLL Support
4 years ago
Venetoclax and bone density
Has anyone found that
venetoclax
affects bone density or muscle mass?
Has anyone found that
venetoclax
affects bone density or muscle mass?
Atds
in
CLL Support
4 years ago
What to do
How do I know if my husbands sx are from the
VENETOCLAX
or the CLL. He is ext. fatigued, no interest. No appetite. He has been on the med for 3 wks. Prior to starting the med he manifested the same sx only slightly less. He is going down hill before my eyes.
How do I know if my husbands sx are from the
VENETOCLAX
or the CLL. He is ext. fatigued, no interest. No appetite. He has been on the med for 3 wks. Prior to starting the med he manifested the same sx only slightly less. He is going down hill before my eyes.
Gogldn
in
CLL Support
4 years ago
Australians have your say in getting CLL medicines approved
Venetoclax
in combination with obinutuzumab for the first-line treatment of patients with chronic lymphocytic leukaemia (CLL) and small lymphocytic lymphoma (SLL) who have coexisting conditions and are unsuitable for fludarabine based chemotherapy 2.
Venetoclax
in combination with obinutuzumab for the first-line treatment of patients with chronic lymphocytic leukaemia (CLL) and small lymphocytic lymphoma (SLL) who have coexisting conditions and are unsuitable for fludarabine based chemotherapy 2.
lymphomaoz
in
CLL Support
4 years ago
Mutated and unmutated cll for dummies
Put another way, people with unmutated cll starting out on ibrutinib and
venetoclax
as a first treatment are doing just as well as those with mutated cll.
Put another way, people with unmutated cll starting out on ibrutinib and
venetoclax
as a first treatment are doing just as well as those with mutated cll.
cajunjeff
in
CLL Support
4 years ago
Platelets and neutrophils dropping
After my taking Ibrutinib and
venetoclax
for 15 months my wbc are within normal range and my lymph nodes are normal. Now my platelets are dropping and my neutrophils which make me concerned. Anyone else experiencing this after stopping the meds. Thanks
After my taking Ibrutinib and
venetoclax
for 15 months my wbc are within normal range and my lymph nodes are normal. Now my platelets are dropping and my neutrophils which make me concerned. Anyone else experiencing this after stopping the meds. Thanks
Ninagram
in
CLL Support
4 years ago
Ibrutinib & venetoclax
Only another 5yrs 363 days to go 😀
Only another 5yrs 363 days to go 😀
Sepsur
in
CLL Support
4 years ago
Bone marrow looking for MRD getting a surprise in the blood test, plus Dr. Kipps on fixed duration front line therapy
Kipps discusses how he approaches first CLL treatments with a heavy focus on fixed duration
venetoclax
based therapies. Read: https://cllsociety.org/2020/01/iwcll-2019-dr-thomas-kipps-on-frontline-treatment-in-cll-chronic-lymphocytic-leukemia/ Stay strong. We are all in this together.
Kipps discusses how he approaches first CLL treatments with a heavy focus on fixed duration
venetoclax
based therapies. Read: https://cllsociety.org/2020/01/iwcll-2019-dr-thomas-kipps-on-frontline-treatment-in-cll-chronic-lymphocytic-leukemia/ Stay strong. We are all in this together.
bkoffman
CLL CURE Hero
in
CLL Support
4 years ago
going downhill
He was started on
VENETOCLAX
and is on week 3 of the ramping up. Extremely fatigued. Poor appetite. Sleeps a lot. The doc thinks this is a combo of the CLL and the s/e of the med. I just hope that he adjusts to the med. Anyone out there who has had a difficult time with adjusting to the med?
He was started on
VENETOCLAX
and is on week 3 of the ramping up. Extremely fatigued. Poor appetite. Sleeps a lot. The doc thinks this is a combo of the CLL and the s/e of the med. I just hope that he adjusts to the med. Anyone out there who has had a difficult time with adjusting to the med?
Gogldn
in
CLL Support
4 years ago
Dimly Lit Awakenings
Starting
Venetoclax
on Valentine’s Day. Feeling great, better than I have in years, as I’ve posted elsewhere. Awake in bad last night (thanks, IV steroids!), I dimly reflected back a bit on my CLL journey. 1st four years or so, I was oblivious I was on a CLL journey at all (lol).
Starting
Venetoclax
on Valentine’s Day. Feeling great, better than I have in years, as I’ve posted elsewhere. Awake in bad last night (thanks, IV steroids!), I dimly reflected back a bit on my CLL journey. 1st four years or so, I was oblivious I was on a CLL journey at all (lol).
DRM18
in
CLL Support
4 years ago
Started Treatment (O + V)
Don't start
Venetoclax
until the 22nd day of treatment. (Today is day 9.) Miraculous already: all of my visible nodes are now nearly if not totally invisible. In only a week! Welcome back, pencil neck!
Don't start
Venetoclax
until the 22nd day of treatment. (Today is day 9.) Miraculous already: all of my visible nodes are now nearly if not totally invisible. In only a week! Welcome back, pencil neck!
DRM18
in
CLL Support
4 years ago
Real-World Sequence Patterns of Novel Agents in CLL
Venetoclax
was used in at least 1 line of therapy in 101 patients (28.5%), and they were most likely to receive this drug in the 3rd-line setting.
Venetoclax
was used in at least 1 line of therapy in 101 patients (28.5%), and they were most likely to receive this drug in the 3rd-line setting.
Jm954
Administrator
in
CLL Support
4 years ago
CLL Updates From the 2019 ASH Annual Meeting
Combination ibrutinib plus
venetoclax
: Is undetectable minimal residual disease (MRD) a good surrogate endpoint for survival? Why or why not? and more interesting insights here - https://www.cancertherapyadvisor.com/home/meeting-insights/anthony-mato-md-msce/?
Combination ibrutinib plus
venetoclax
: Is undetectable minimal residual disease (MRD) a good surrogate endpoint for survival? Why or why not? and more interesting insights here - https://www.cancertherapyadvisor.com/home/meeting-insights/anthony-mato-md-msce/?
Jm954
Administrator
in
CLL Support
4 years ago
Time for treatment decision
There is a 50/50 split where 320 patients get obinutuzumag (gazyva) and Ibrutinib (imbruvica) and the other 320 patients get these two drugs along with
venetoclax
. I’m so confused on what to do. If I choose to not partake in the study I will get obinutuzurnab and Ibrutinib.
There is a 50/50 split where 320 patients get obinutuzumag (gazyva) and Ibrutinib (imbruvica) and the other 320 patients get these two drugs along with
venetoclax
. I’m so confused on what to do. If I choose to not partake in the study I will get obinutuzurnab and Ibrutinib.
harley2018
in
CLL Support
4 years ago
Just got MRD negative 🎉
Excited to say I’m MRD negative 🎉🎉 🎉 I have been in clinical trial for relapsed CLL for 14 months and am on Ibrutinib and
Venetoclax
.
Excited to say I’m MRD negative 🎉🎉 🎉 I have been in clinical trial for relapsed CLL for 14 months and am on Ibrutinib and
Venetoclax
.
Catnap7
in
CLL Support
4 years ago
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