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Venetoclax
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Continue medication upon remission
Hi Fellow members, I am on Acalabrutinib since April 2022 and
Venetoclax
since last July. I did the BM test last month and my hematologist declared I am UMRD - ( less than one cell in 100,000 ).
Hi Fellow members, I am on Acalabrutinib since April 2022 and
Venetoclax
since last July. I did the BM test last month and my hematologist declared I am UMRD - ( less than one cell in 100,000 ).
dave20
in
CLL Support
5 months ago
Sezary Syndrome.
After many months of fighting a complete body rash, I was visually diagnose with Sezary Syndome and had to discontinue my CLL treatment with
Venetoclax
, only did 8 months out of 24 months due to the rash condition. Is there anyone with knowledge of this or was there any previous postings?
After many months of fighting a complete body rash, I was visually diagnose with Sezary Syndome and had to discontinue my CLL treatment with
Venetoclax
, only did 8 months out of 24 months due to the rash condition. Is there anyone with knowledge of this or was there any previous postings?
Champlain
in
CLL Support
9 days ago
Artrial fibrillation after nearly 2 years of Calquence?
She's been taken off the calquence and started on
venetoclax
now a month and a half.
She's been taken off the calquence and started on
venetoclax
now a month and a half.
Hidden
in
CLL Support
3 months ago
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LOW NEUTROPHILS DUE TO VENETOCLAX
I STARTED VR treatment 3 months ago My Oncologist asked me to stop taking
VENETOCLAX
400mg for 10 days, before starting again. Has anyone experienced something similar? THANK YOU for any advice or comments ?
I STARTED VR treatment 3 months ago My Oncologist asked me to stop taking
VENETOCLAX
400mg for 10 days, before starting again. Has anyone experienced something similar? THANK YOU for any advice or comments ?
unairdefamille
in
CLL Support
4 months ago
Obinutuzimab - anyone get nauseous?
I start the
Venetoclax
ramp up on week 3.
I start the
Venetoclax
ramp up on week 3.
SunnyCA
in
CLL Support
3 months ago
MRD Results
His Dr wants him to keep taking his
venetoclax
and acalabrutinib so that his bone marrow gets CLL lower or totally out. To date, my hubby will be on this treatment 1 year on
Venetoclax
and 1.5 year acalabrutinib.
His Dr wants him to keep taking his
venetoclax
and acalabrutinib so that his bone marrow gets CLL lower or totally out. To date, my hubby will be on this treatment 1 year on
Venetoclax
and 1.5 year acalabrutinib.
spi3
in
CLL Support
3 months ago
Glucosamine
I take
Venetoclax
for CLL. can I take Glucosamine to help with painful knees?
I take
Venetoclax
for CLL. can I take Glucosamine to help with painful knees?
FranceMary
in
CLL Support
6 months ago
Still on hold for stem cell transplant
After our local oncologist spoke to the transplant specialist at Mayo, we received word that Mayo wants another cycle of Vidaza, this time with
Venetoclax
added. Apparently chromosomal analysis of the bone marrow led to this change.
After our local oncologist spoke to the transplant specialist at Mayo, we received word that Mayo wants another cycle of Vidaza, this time with
Venetoclax
added. Apparently chromosomal analysis of the bone marrow led to this change.
dwolden
in
CLL Support
1 month ago
Venetoclax and low Neutrophils
Ok, so now been on highest dose of
Venetoclax
with Ibrutinib and Neutrophils count down to 0.61. Only started going down since taking higher dose.
Ok, so now been on highest dose of
Venetoclax
with Ibrutinib and Neutrophils count down to 0.61. Only started going down since taking higher dose.
Guinness4822
in
CLL Support
3 months ago
venetoclax dose change
Hello my fellow cll friends I took my mom to the hematologist and while we were expecting her to go back to 400mg of
venetoclax
from being on 200mg for a while she told us that her blood couldn’t handle the dose so we are down to 100mh
Venetoclax
and 425 ibruvica.
Hello my fellow cll friends I took my mom to the hematologist and while we were expecting her to go back to 400mg of
venetoclax
from being on 200mg for a while she told us that her blood couldn’t handle the dose so we are down to 100mh
Venetoclax
and 425 ibruvica.
Eirinik
in
CLL Support
6 months ago
CLL and now very elevated Monocytes
I am under treatment for CLL using
Venetoclax
. It has been going well and my lymphocytes are controlled with a minimal dosage of
Venetoclax
of 50 mg.I just had labs yesterday and in 3 weeks my monocytes shot p from 5% to 15% and absolute count from. 08 to over 1000.
I am under treatment for CLL using
Venetoclax
. It has been going well and my lymphocytes are controlled with a minimal dosage of
Venetoclax
of 50 mg.I just had labs yesterday and in 3 weeks my monocytes shot p from 5% to 15% and absolute count from. 08 to over 1000.
ralphfelo
in
CLL Support
5 months ago
Cll treatment
My treatment in Obinutuzumab and
Venetoclax
.( because I refused other pills which you have take forever). I had allergy reaction each time getting Obinutuzumab but was under good care of nurses. Now I am still on
Venetoclax
for the next 4 months and after that I am done.
My treatment in Obinutuzumab and
Venetoclax
.( because I refused other pills which you have take forever). I had allergy reaction each time getting Obinutuzumab but was under good care of nurses. Now I am still on
Venetoclax
for the next 4 months and after that I am done.
Krys890
in
CLL Support
5 months ago
Large Lympe nodes.
Been on
venetoclax
for last 20 months and now find myself with large lymphe nodes under arms and painfully in groin area which is restricting artery in leg, which is resulting in leg swelling. Am waiting for biopsy results, but concerned what current treatment is out there to resolve the problem.
Been on
venetoclax
for last 20 months and now find myself with large lymphe nodes under arms and painfully in groin area which is restricting artery in leg, which is resulting in leg swelling. Am waiting for biopsy results, but concerned what current treatment is out there to resolve the problem.
Harry9kane
in
CLL Support
4 months ago
Remission but suddenly extreme night sweats
but unfortunately I was just diagnosed with Gastritis due to the
Venetoclax
and Aciclovir. It's very painful but after stopping all my cancer medication the stomach pains and diarrhoea are easing off.
but unfortunately I was just diagnosed with Gastritis due to the
Venetoclax
and Aciclovir. It's very painful but after stopping all my cancer medication the stomach pains and diarrhoea are easing off.
MalcT
in
CLL Support
29 days ago
on watch and wait for 6 years. Numbers are going up and doc this treatment is coming
My doctor suggested a combination of obinutuzumab and
venetoclax
or zanubrutinib. I'm 72 years old and otherwise in good health. No symptoms yet but increasing WBC I'm wondering what the pros and cons of each are. My doctor likes the infusions because after a year you're done.
My doctor suggested a combination of obinutuzumab and
venetoclax
or zanubrutinib. I'm 72 years old and otherwise in good health. No symptoms yet but increasing WBC I'm wondering what the pros and cons of each are. My doctor likes the infusions because after a year you're done.
elm1
in
CLL Support
2 months ago
Acalabrutinib not working any more
Will be changing my treatment to
Venetoclax
and rituxmab. I am a bit worried about the side effects and the success rate. Have anyone had similar experience or have the same treatment? Any word of encouragement will do. Hopefully one day there will be a cure. Praying for you all.
Will be changing my treatment to
Venetoclax
and rituxmab. I am a bit worried about the side effects and the success rate. Have anyone had similar experience or have the same treatment? Any word of encouragement will do. Hopefully one day there will be a cure. Praying for you all.
19930B
in
CLL Support
2 months ago
2nd day Venetoclax
I'm on day 3 of
Venetoclax
and noticed last night I had small red slightly raised spots on hands. Faded a bit this morning. It's my only side effect so far. Should I be concerned.
I'm on day 3 of
Venetoclax
and noticed last night I had small red slightly raised spots on hands. Faded a bit this morning. It's my only side effect so far. Should I be concerned.
Guinness4822
in
CLL Support
5 months ago
Facial sweating with eating on Venetoclax
I have been on
Venetoclax
since Feb 2023. Over the past few weeks I have developed a strange symptom... every time I eat I start sweating from my upper jaw to the top of my head. I am curious if anyone else had experienced this?
I have been on
Venetoclax
since Feb 2023. Over the past few weeks I have developed a strange symptom... every time I eat I start sweating from my upper jaw to the top of my head. I am curious if anyone else had experienced this?
Shangonmom
in
CLL Support
2 months ago
Afraid of Low blood counts
My Mother has started
venetoclax
since December, was on calquence previously but had to switch due to atrial fibrillation.
My Mother has started
venetoclax
since December, was on calquence previously but had to switch due to atrial fibrillation.
LeeB75
in
CLL Support
2 months ago
Increased side effects after 6-9 months on Venetoclax
I'd really appreciate hearing from others who may have experienced increased side effects well into treatment with
Venetoclax
. Does it continue to get worse? Thanks for sharing your experience and/or words of encouragement.
I'd really appreciate hearing from others who may have experienced increased side effects well into treatment with
Venetoclax
. Does it continue to get worse? Thanks for sharing your experience and/or words of encouragement.
DMary
in
CLL Support
1 month ago
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