Search
Search
About
Log in
Join
Experiences with
Vaccination
Posts
Communities
3,204 public posts
Filter results
Close brush with Covid
I've seen lots discussion on here about Covid and
vaccination
immunity response for those of us on immunosuppressants. I had a very scary brush with Covid today and thought I'd share my experience which you may find reassuring.
I've seen lots discussion on here about Covid and
vaccination
immunity response for those of us on immunosuppressants. I had a very scary brush with Covid today and thought I'd share my experience which you may find reassuring.
Lilyneo
in
NRAS
3 years ago
MPN COVID-19 Vaccination Survey - results
We would like to thank everyone who completed the MPN COVID-19
vaccination
survey in March.
We would like to thank everyone who completed the MPN COVID-19
vaccination
survey in March.
Mazcd
MPNVoice
in
MPN Voice
3 years ago
COVID and (lack of) access to monoclonal antibody treatments
Hi CLL comrades, I've been on W&W for 6 years. I've received both doses of the Moderna vaccine as well as the booster, and still have no antibodies. With a busy job I need to keep for insurance and young unvaccinated people who depend on me, I am trying to put a plan in place for if I get COVID. After
Hi CLL comrades, I've been on W&W for 6 years. I've received both doses of the Moderna vaccine as well as the booster, and still have no antibodies. With a busy job I need to keep for insurance and young unvaccinated people who depend on me, I am trying to put a plan in place for if I get COVID. After
Daisyinmaine
in
CLL Support
3 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
no Actemra
Been on Actemra for 9 months. Finally kicked in and was helping me feel better. This week my appt. for infusion was cancelled. The Actemra is on back order and had to get. All of the IV is being used for treating Covid patients here in the US. I can't take the shots. Medicare only pays for
Been on Actemra for 9 months. Finally kicked in and was helping me feel better. This week my appt. for infusion was cancelled. The Actemra is on back order and had to get. All of the IV is being used for treating Covid patients here in the US. I can't take the shots. Medicare only pays for
phebamom
in
PMRGCAuk
3 years ago
Good News
I asked ZOE for an antibody test and after a few weeks they arranged one for me which I did and sent of. Came back today saying I have got antibodies. That is my vaccinations were done with at least 10mg of pred. So there is hope for us all.
I asked ZOE for an antibody test and after a few weeks they arranged one for me which I did and sent of. Came back today saying I have got antibodies. That is my vaccinations were done with at least 10mg of pred. So there is hope for us all.
ValleysBoy
in
PMRGCAuk
3 years ago
Moderna booster?
Wondering if my us friends who got moderna are getting a third shot. My cardiologist suggested I should because I work in a school with unvaccinated children. If I had Pfizer it is approved by FDA but moderna studies are showing those who got the jabs this year are still showing 93% efficacy. I was fully
Wondering if my us friends who got moderna are getting a third shot. My cardiologist suggested I should because I work in a school with unvaccinated children. If I had Pfizer it is approved by FDA but moderna studies are showing those who got the jabs this year are still showing 93% efficacy. I was fully
Roarah
in
LUPUS UK
3 years ago
Second vaccination following Venclexta
I am fully vaccinated and will conclude my two-year program on Venclexta in a few weeks. I have not had the antibody test, but suspect I have a limited number acquired, given my CLL history. What I’m wondering is if there is any evidence of increased efficacy when given a second round of the Covid
I am fully vaccinated and will conclude my two-year program on Venclexta in a few weeks. I have not had the antibody test, but suspect I have a limited number acquired, given my CLL history. What I’m wondering is if there is any evidence of increased efficacy when given a second round of the Covid
Survivor1951
in
CLL Support
3 years ago
Vaccination
Have any one got vaccinated for covid during medication?
Have any one got vaccinated for covid during medication?
BharatiNong
in
TB Alert
3 years ago
Joint Committee on Vaccination and Immunisation (JCVI) advice on third primary dose vaccination
https://www.gov.uk/government/publications/third-primary-covid-19-vaccine-dose-for-people-who-are-immunosuppressed-jcvi-advice/joint-committee-on-
vaccination
-and-immunisation-jcvi-advice-on-third-primary-dose-
vaccination
Severe immunosuppression at the time of
vaccination
is defined using the guidance
https://www.gov.uk/government/publications/third-primary-covid-19-vaccine-dose-for-people-who-are-immunosuppressed-jcvi-advice/joint-committee-on-
vaccination
-and-immunisation-jcvi-advice-on-third-primary-dose-
vaccination
Severe immunosuppression at the time of
vaccination
is defined using the guidance
crashdoll
in
Lung Conditions Community Forum
3 years ago
Covid 19 Vaccinations
Many patients are worried about getting covid even after
vaccination
, The good news is that much can be done to improve immune function and general health as explained in my other posts. There seems to be a great deal of confusion about covid 19.
Many patients are worried about getting covid even after
vaccination
, The good news is that much can be done to improve immune function and general health as explained in my other posts. There seems to be a great deal of confusion about covid 19.
brian636
in
Cure Parkinson's
3 years ago
Relvar inhaler and loss of taste
I have not had COVID and am double vaccinated with the Pfizer jab I take one puff of Relvar inhaler daily and rinse my mouth out Over the past few weeks I have lost my sense of taste ,I can identify acidity but I can’t taste a cup of coffee of any strength Any thoughts
I have not had COVID and am double vaccinated with the Pfizer jab I take one puff of Relvar inhaler daily and rinse my mouth out Over the past few weeks I have lost my sense of taste ,I can identify acidity but I can’t taste a cup of coffee of any strength Any thoughts
Jennypin
in
Asthma Community Forum
3 years ago
Vaccinations
I read that Pfizer is the better
vaccination
to have if you have Vasculitis or Lupus? Bit confusing.
I read that Pfizer is the better
vaccination
to have if you have Vasculitis or Lupus? Bit confusing.
shella
in
Vasculitis UK
3 years ago
Immunocompromised can develop a good immune response after vaccination against SARCoV-2
It was hitherto unclear whether a SARS-CoV-2
vaccination
guarantees an adequate response, particularly in patients taking so-called B-cell-depleting drugs (e.g. rituximab to treat rheumatoid arthritis).
It was hitherto unclear whether a SARS-CoV-2
vaccination
guarantees an adequate response, particularly in patients taking so-called B-cell-depleting drugs (e.g. rituximab to treat rheumatoid arthritis).
2greys
in
Lung Conditions Community Forum
3 years ago
Wedding Vows and Infusion treatments
I have a family wedding on Oct 2 my next infusion is Oct 5, should I be worried? Fully vaccinated late August. Wedding is in NH I live in Mass, my NH family is less worried by covid some against vaccine. I will feel funny wearing a mask and will that keep me safe? Would you go right before your infusion
I have a family wedding on Oct 2 my next infusion is Oct 5, should I be worried? Fully vaccinated late August. Wedding is in NH I live in Mass, my NH family is less worried by covid some against vaccine. I will feel funny wearing a mask and will that keep me safe? Would you go right before your infusion
NanaCC
in
My MSAA Community
3 years ago
Immunosuppressed
I had PMR 13 years ago which was diagnosed eventuallyby my physio daughter when I visited her in London. I had what I think of now as typica PMR . My GP was very hazy about PMR but after a blood test that I requested she phoned to say my ESR was 70 and she had left me out some tablets. So was started
I had PMR 13 years ago which was diagnosed eventuallyby my physio daughter when I visited her in London. I had what I think of now as typica PMR . My GP was very hazy about PMR but after a blood test that I requested she phoned to say my ESR was 70 and she had left me out some tablets. So was started
Booge_15
in
PMRGCAuk
3 years ago
Wait 3 months before second dose?
There is evidence now that one can achieve a greater immune response by receiving the second jab after 3 months and that this approach might make a third booster unnecessary. We are in one grand experiment after all so expect evolving advice. https://www.verywellhealth.com/delaying-second-covid-vaccine-dose
There is evidence now that one can achieve a greater immune response by receiving the second jab after 3 months and that this approach might make a third booster unnecessary. We are in one grand experiment after all so expect evolving advice. https://www.verywellhealth.com/delaying-second-covid-vaccine-dose
Luap001
in
CLL Support
3 years ago
New data on mRNA booster vs antibody, bigger dose works better
Antibody jump is relevant in this from NIH: https://www.nih.gov/news-events/nih-research-matters/measuring-protection-after-covid-19-
vaccination
<<The protection conferred by the vaccine increased as levels of these antibodies increased>> Most of us want the best response to pad our immune condition
Antibody jump is relevant in this from NIH: https://www.nih.gov/news-events/nih-research-matters/measuring-protection-after-covid-19-
vaccination
<<The protection conferred by the vaccine increased as levels of these antibodies increased>> Most of us want the best response to pad our immune condition
EPguy
in
MPN Voice
2 years ago
To vaccinate or not?
I am so confused as to what to do. I have this heart arrhythmia, I take metroporal for it. and I have mitral valve prolapse. I have friends that got the vaccine and had terrible reactions some in the hospital some died. Due to a heart reaction to the vaccine. I also know a lot of people have died from
I am so confused as to what to do. I have this heart arrhythmia, I take metroporal for it. and I have mitral valve prolapse. I have friends that got the vaccine and had terrible reactions some in the hospital some died. Due to a heart reaction to the vaccine. I also know a lot of people have died from
Autumn822
in
Arrhythmia Alliance
3 years ago
Blood cancers & vaccination
Hi don't know if its right or not but I was looking on Google other night to read that blood cancers might not be protected from having both vaccines done can anybody help me here to weather it is the truth or not please cos am in too minds at the moment 1 with it being Google and another to say if its
Hi don't know if its right or not but I was looking on Google other night to read that blood cancers might not be protected from having both vaccines done can anybody help me here to weather it is the truth or not please cos am in too minds at the moment 1 with it being Google and another to say if its
Jody00
in
MPN Voice
3 years ago
Immunosuppressed Patients Respond to Booster Shots: Hope for a COVID Booster Vaccine for Lupus and Other Autoimmune Disease Patients? [Updat
Immunosuppressed Patients Respond to Booster Shots: Hope for a COVID Booster Vaccine for Lupus and Other Autoimmune Disease Patients? [Updated 8/12/21] August 11, 2021 TABLE OF CONTENTS 1) Will a COVID Booster Vaccine for Lupus Patients Increase Response Rates? 2) The COVID Booster Vaccine Study
Immunosuppressed Patients Respond to Booster Shots: Hope for a COVID Booster Vaccine for Lupus and Other Autoimmune Disease Patients? [Updated 8/12/21] August 11, 2021 TABLE OF CONTENTS 1) Will a COVID Booster Vaccine for Lupus Patients Increase Response Rates? 2) The COVID Booster Vaccine Study
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
3 years ago
1
...
59
60
61
...
100
Next page
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
CLL Support
526 results
PMRGCAuk
325 results
NRAS
227 results
View top 10 communities
Sort by
Most Relevant
Newest