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Urso
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LFT's
Hi i just wondered about my LFT's i didnt really take every thing in at the consultants app... i have noticed on a few Q and A's i was told that a normal test results would be 175 but i noticed mine was 740 is this bad i'm on
urso
and dont see my consultant till march although my diabetic nurse helps
Hi i just wondered about my LFT's i didnt really take every thing in at the consultants app... i have noticed on a few Q and A's i was told that a normal test results would be 175 but i noticed mine was 740 is this bad i'm on
urso
and dont see my consultant till march although my diabetic nurse helps
sooty1
in
PBC Foundation
11 years ago
This question just to people diagnosed over 15years, are any of you NOT on Urso?
I was on
Urso
more or less for 10yrs since diagnosis in 2002 but came off it in August just passed and unfortunately my lfts are on the rise (not that they have ever been normal despite having been on the
Urso
) and wondered what your experiences are re your lfts and how you feel in general.
I was on
Urso
more or less for 10yrs since diagnosis in 2002 but came off it in August just passed and unfortunately my lfts are on the rise (not that they have ever been normal despite having been on the
Urso
) and wondered what your experiences are re your lfts and how you feel in general.
littlemo
in
PBC Foundation
11 years ago
Good news and not so good news!
He has upped my
URSO
to 1000mg a day from 500mg. Blood tests results after 6 weeks on
URSO
look encouraging ! Not so good news! I need to go and have a Lumbar Puncture as they think I have M S, as well as an Underactive Thyroid and Sjorgans syndrome.
He has upped my
URSO
to 1000mg a day from 500mg. Blood tests results after 6 weeks on
URSO
look encouraging ! Not so good news! I need to go and have a Lumbar Puncture as they think I have M S, as well as an Underactive Thyroid and Sjorgans syndrome.
sooo
in
PBC Foundation
11 years ago
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Life expectancy for PBC sufferers ?
Her consultant has said she has no scarring to her liver yet and she is taking 1000mg of
URSO
daily. She asked about her prognosis and was told nobody knows, yet her GP said she could go on for decades and now we are confused. This has devastated our family! Can someone please provide some advice.
Her consultant has said she has no scarring to her liver yet and she is taking 1000mg of
URSO
daily. She asked about her prognosis and was told nobody knows, yet her GP said she could go on for decades and now we are confused. This has devastated our family! Can someone please provide some advice.
Stokoev
in
PBC Foundation
11 years ago
ESA - Work related group need advice to be move onto the support group please
PBC and being in the support group for ESA, i have just received my letter from the DWP and been put in the work group meaning i have to go for interviews (I have PBC and Sjorgrens syndrome) but am still getting tests for other things Im 30 years old and got diagnosed with PBC in November 2011 Im on
URSO
PBC and being in the support group for ESA, i have just received my letter from the DWP and been put in the work group meaning i have to go for interviews (I have PBC and Sjorgrens syndrome) but am still getting tests for other things Im 30 years old and got diagnosed with PBC in November 2011 Im on
URSO
louiseb1982
in
PBC Foundation
11 years ago
PBC diagnosis??
I am not on
Urso
or any other medication. I thought with PBC as well as having a positive AMA I thought you had to have an elevated LFT’s and a positive liver biopsy?
I am not on
Urso
or any other medication. I thought with PBC as well as having a positive AMA I thought you had to have an elevated LFT’s and a positive liver biopsy?
Lammasue
in
PBC Foundation
11 years ago
What happens if I don't take my URSO is a impotent?
Karlimc93
in
PBC Foundation
11 years ago
URSO
Once on
URSO
if it is effective do you stay on it for life, if blood results are good is the initial dose reduced?
Once on
URSO
if it is effective do you stay on it for life, if blood results are good is the initial dose reduced?
Hidden
in
PBC Foundation
11 years ago
Urso
I read an article on the National Liver Foundation website, written by a Dr. that said, although
URSO
is widely prescribed all over the world for PBC, the effects of
URSO
in determining a patient's prognosis is controversial. Does anyone have any information about this?
I read an article on the National Liver Foundation website, written by a Dr. that said, although
URSO
is widely prescribed all over the world for PBC, the effects of
URSO
in determining a patient's prognosis is controversial. Does anyone have any information about this?
WendyMarie
in
PBC Foundation
11 years ago
Who has been living with PBC, over 15 years? Is it possible to develop antibodies to URSO after many years?
Does
URSO
still help or is it possible to develop antibodies to this medication?
Does
URSO
still help or is it possible to develop antibodies to this medication?
WendyMarie
in
PBC Foundation
11 years ago
Slimming World
I am considering joining tomorrow but am a little daunted due to the fact I take steroids,
urso
and mercaptopurine for AIH/PBC overlap. I am concerned that the diet will not work because of the medication.
I am considering joining tomorrow but am a little daunted due to the fact I take steroids,
urso
and mercaptopurine for AIH/PBC overlap. I am concerned that the diet will not work because of the medication.
Alley27
in
PBC Foundation
11 years ago
Liver Biopsy Results
I am going to stay on the
Urso
by the way. I do have symptoms, tiredness, muscle and bone pain, weakness, nausea etc occasionally, unfortunately though I just have to manage it as best I can because there is no easy answer to stop it.
I am going to stay on the
Urso
by the way. I do have symptoms, tiredness, muscle and bone pain, weakness, nausea etc occasionally, unfortunately though I just have to manage it as best I can because there is no easy answer to stop it.
hannah1973
in
PBC Foundation
11 years ago
New Member
I was diagnosed with pbc ama+ in 2010 I currently take 1000mg
urso
daily.
I was diagnosed with pbc ama+ in 2010 I currently take 1000mg
urso
daily.
Mummajo67
in
PBC Foundation
11 years ago
Dispondant!!!!!
Been on
urso
since June, seemed to work for a while. My liver results have since got higher again, up at 300. I have also got TMJ in my jaw or so they think. Can't yawn, bite, chew. Losing weight dramatically. In agony all time, pain up in my ear and side of head.
Been on
urso
since June, seemed to work for a while. My liver results have since got higher again, up at 300. I have also got TMJ in my jaw or so they think. Can't yawn, bite, chew. Losing weight dramatically. In agony all time, pain up in my ear and side of head.
posh
in
PBC Foundation
11 years ago
Does everyone with raised levels of bilirubin have itch?
Thankfully since been off the
urso
my itch is fairly mild and quite tolerable and well controlled with just taking about 4 Questran sachets a day.
Thankfully since been off the
urso
my itch is fairly mild and quite tolerable and well controlled with just taking about 4 Questran sachets a day.
littlemo
in
PBC Foundation
11 years ago
The Gym
So i got diagnosed in 2011, i take 1x 250mg or
urso
twice daily and my results have continued to improve, my bloods with the exception of one are within normal ranges :O) My last visit with the liver nurse was October, she told me their very happy with my results and to try and lead a normal life
So i got diagnosed in 2011, i take 1x 250mg or
urso
twice daily and my results have continued to improve, my bloods with the exception of one are within normal ranges :O) My last visit with the liver nurse was October, she told me their very happy with my results and to try and lead a normal life
Lisa30
in
PBC Foundation
11 years ago
The pain is back any tips / advise that may help me?
Been on
urso
for almost 3 years and have managed OK i suppose.
Been on
urso
for almost 3 years and have managed OK i suppose.
Hidden
in
PBC Foundation
11 years ago
Do I still need to take urso since I had my gall bladder removed
I wondered if I should still take
urso
since I no longer have gall bladder, and seem to put on weight with the
urso
. It's bad enough I have gained 16 LBs due to steroids, and can't ,lose any weight which is very frustrating and is affecting my self esteem.
I wondered if I should still take
urso
since I no longer have gall bladder, and seem to put on weight with the
urso
. It's bad enough I have gained 16 LBs due to steroids, and can't ,lose any weight which is very frustrating and is affecting my self esteem.
Alley27
in
PBC Foundation
11 years ago
Urso side effects
I know people on
Urso
shouldn't take Pepto-Bismol; is there anything I can do to help the diarrhea go away, or do I just have to wait it out?
I know people on
Urso
shouldn't take Pepto-Bismol; is there anything I can do to help the diarrhea go away, or do I just have to wait it out?
Nissa
in
PBC Foundation
11 years ago
my mother was diagnosed nearly 4 years ago. since then shes lost a lot of weight and goes days with out eating. is this normal?
She has been on
urso
since the diagnosis? Is that part of the disease or a side effect ot the medication.
She has been on
urso
since the diagnosis? Is that part of the disease or a side effect ot the medication.
korrie
in
PBC Foundation
11 years ago
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