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Urso
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Diagnosed with PBC in 2011 after scan AMA and liver biopsy. Blood test annually. No other appointment.
I am reading that a lot of you are on
urso
, even with first stage PBC, is this what should be happening. Apart from the annual LFT, I am seeing no one. Is it different in other areas or countries. Thanks
I am reading that a lot of you are on
urso
, even with first stage PBC, is this what should be happening. Apart from the annual LFT, I am seeing no one. Is it different in other areas or countries. Thanks
Pookie18
in
PBC Foundation
10 years ago
acites or fat?
hi its a while since ive been on here.got diagnosed earlier this year but since summer put on about half a stone in weight( i think part due to
urso
) put it all on abdomen but it feels uncomfortable and like theres a pressure there.doc said my bloods arent high enough for acites.anyone else experienced
hi its a while since ive been on here.got diagnosed earlier this year but since summer put on about half a stone in weight( i think part due to
urso
) put it all on abdomen but it feels uncomfortable and like theres a pressure there.doc said my bloods arent high enough for acites.anyone else experienced
cazz22
in
PBC Foundation
10 years ago
Any advice??
But over the last few weeks he's great at taking morning
urso
and vitamins, but when it comes to night time he takes most of the
urso
, but he'll spit most of the phenobarbital out. Any suggestions on how to get him to swallow more of it?
But over the last few weeks he's great at taking morning
urso
and vitamins, but when it comes to night time he takes most of the
urso
, but he'll spit most of the phenobarbital out. Any suggestions on how to get him to swallow more of it?
AlisonM
in
Children's Liver Disease Foundation
11 years ago
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My questions are to all those with PBC and AIH overlap.Which of your conditions was diagnosed first and with the AIH did you have jaundice?
Only other time was jaundiced apart from now was when I was pregnant back in 2006-7 when my liverwent into a degree of failure and I lost lot of weight during the pregnancy but when I was put back on the
Urso
as far as I know the Bilirubin settled again and once I had my little boy did manage to put
Only other time was jaundiced apart from now was when I was pregnant back in 2006-7 when my liverwent into a degree of failure and I lost lot of weight during the pregnancy but when I was put back on the
Urso
as far as I know the Bilirubin settled again and once I had my little boy did manage to put
littlemo
in
PBC Foundation
10 years ago
Hello everyone, I've been diagnosed with PBC and Autoimmune Hepatitis Overlap Syndrome in July'13.
My all elevated LFTs got back to normal ranges after 1.5 month i started using
Urso
250mg (2*2). My doctor told me that this is a perfect progress so he didnt want to put me on corticosteroids. LFTs are all back to normal but it doesnt keep me away from feeling some symthomps of this illness.
My all elevated LFTs got back to normal ranges after 1.5 month i started using
Urso
250mg (2*2). My doctor told me that this is a perfect progress so he didnt want to put me on corticosteroids. LFTs are all back to normal but it doesnt keep me away from feeling some symthomps of this illness.
Burke0626
in
PBC Foundation
10 years ago
Stupid flipping itch!!!
Was wondering if it's the
urso
getting into my system that's doing it or maybe my diet. Consultant told me I didn't need to change my diet but Pbc website says differently. Also questran x antihistamines aren't working heeeelllllp......
Was wondering if it's the
urso
getting into my system that's doing it or maybe my diet. Consultant told me I didn't need to change my diet but Pbc website says differently. Also questran x antihistamines aren't working heeeelllllp......
Dmb1
in
PBC Foundation
10 years ago
How many stages are there of PBC? And when should the gastroenterologist offer Urso?
The specialist has told me I'm in the early stages of PBC, but not specified which one, or how many there are. It's my understanding this progresses at different rates varying per person, is this correct?
The specialist has told me I'm in the early stages of PBC, but not specified which one, or how many there are. It's my understanding this progresses at different rates varying per person, is this correct?
sarahalawson
in
PBC Foundation
10 years ago
Is urso the only treatment ?
hi, Has anyone out there taken anything other than
urso
for pbc ? I cant tolerate it , very bad nausea and vomitting and have to go back to the consultant !!
hi, Has anyone out there taken anything other than
urso
for pbc ? I cant tolerate it , very bad nausea and vomitting and have to go back to the consultant !!
meandmypbc
in
PBC Foundation
11 years ago
Lightheadedness
Been on
Urso
now for a month, last few days been getting lightheaded , dizzy and really hot has any one else experienced this?
Been on
Urso
now for a month, last few days been getting lightheaded , dizzy and really hot has any one else experienced this?
Kieraferret
in
PBC Foundation
11 years ago
Side effects of urso
I started
urso
on the full dose 1000mg a day, had awful nausea and vomiting, the gp has taken me off for 4 days to reintroduce at a slower pace. Hs anyone out there had similiar experiences of this ? And how did you manage the nausea etc. ?
I started
urso
on the full dose 1000mg a day, had awful nausea and vomiting, the gp has taken me off for 4 days to reintroduce at a slower pace. Hs anyone out there had similiar experiences of this ? And how did you manage the nausea etc. ?
meandmypbc
in
PBC Foundation
11 years ago
Pregnancy
I'm 20 weeks pregnant and was diagnosed with pbc 7 weeks ago and am currently taking
urso
. Has anyone else been diagnosed whilst pregnant or had a pregnancy whilst having the condition. If so how was the pregnancy affected?
I'm 20 weeks pregnant and was diagnosed with pbc 7 weeks ago and am currently taking
urso
. Has anyone else been diagnosed whilst pregnant or had a pregnancy whilst having the condition. If so how was the pregnancy affected?
Hattyson
in
PBC Foundation
11 years ago
constipation and pbc
and
urso
, help my bum is soooo sore from trying to go to the loo, is it the meds.
and
urso
, help my bum is soooo sore from trying to go to the loo, is it the meds.
dm1360
in
PBC Foundation
11 years ago
Stomach cramps
I've only been on
Urso
for 1 week but I've been getting stomach cramps for the first time in my life. Has anyone else had this reaction and, if so, do they go away or continue?
I've only been on
Urso
for 1 week but I've been getting stomach cramps for the first time in my life. Has anyone else had this reaction and, if so, do they go away or continue?
Goose60
in
PBC Foundation
11 years ago
What dose of Urso are you on ? MD says it goes according to weight ( here in the USA pounds ).
Chippy45
in
PBC Foundation
11 years ago
9months taking urso and amitriptyline and gained 4 stone in weight only 5ft and 12stone plus healthy or what
karenlesley
in
PBC Foundation
11 years ago
Does anyone on here have PBC AIH overlap? And when you have the AIH are you always jaundiced?
Only other time was jaundiced apart from now was when I was pregnant back in 2006-7 when my liver went into a degree of failure and I lost lot of weight during the pregnancy but when I was put back on the
Urso
( a drug for PBC) as far as I know the Bilirubin settled again and once I had my little boy
Only other time was jaundiced apart from now was when I was pregnant back in 2006-7 when my liver went into a degree of failure and I lost lot of weight during the pregnancy but when I was put back on the
Urso
( a drug for PBC) as far as I know the Bilirubin settled again and once I had my little boy
littlemo
in
British Liver Trust
10 years ago
Hi All, want to know your thoughts on ..............
I am on questran,
urso
, sertraline, naltrexone, rifampicin, calcichew, thyroxine, chloraphenamine as well as eye drops and menthol/epaderm creams. I am sure I have forgotten to add something but can't remember off the top of my head.
I am on questran,
urso
, sertraline, naltrexone, rifampicin, calcichew, thyroxine, chloraphenamine as well as eye drops and menthol/epaderm creams. I am sure I have forgotten to add something but can't remember off the top of my head.
florrie505
in
PBC Foundation
11 years ago
Liver Panel Results & Urso
After almost 8 months on
URSO
, my liver panel bloodwork result were ALL within normal range! First time in over 8 yrs. So,
Urso
, DOES work!
After almost 8 months on
URSO
, my liver panel bloodwork result were ALL within normal range! First time in over 8 yrs. So,
Urso
, DOES work!
WendyMarie
in
PBC Foundation
11 years ago
Does anyone suffer from blood ulsers on the tongue & inside of cheeks? I'm on Urso (PBC) & Azathioprine (AIH).
Jtxx
in
PBC Foundation
11 years ago
Positive mental attitude just washed away by Hospital Consultant
I am fat but not overly (size 18/20) Since taking
urso
I have pain in my legs and knees and she said that's caused by my weight and not tablets and that I should have a gastric band.
I am fat but not overly (size 18/20) Since taking
urso
I have pain in my legs and knees and she said that's caused by my weight and not tablets and that I should have a gastric band.
Mcinnel2
in
PBC Foundation
11 years ago
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