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Experiences with
Urso
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Appetite
Only been on
urso
a week but I don't seem to have much appetite, anyone else find this?
Only been on
urso
a week but I don't seem to have much appetite, anyone else find this?
Quilter1
in
PBC Foundation
7 years ago
I am starting to lose hope!
I said does this not mean the
Urso
is doing its job, he said not necessarily the bile stone has disappeared it may be that.
I said does this not mean the
Urso
is doing its job, he said not necessarily the bile stone has disappeared it may be that.
Jo_Br
in
PBC Foundation
7 years ago
Side Effects from Urso
I has anyone had side effects from
Urso
I have had Acid reflex and Back pain for some months now Run out of
Urso
and had to wait 5 days for more in this time my Back pain eased and Acid Reflux improved may be a coincidence i am seeing my Consultant next week M
I has anyone had side effects from
Urso
I have had Acid reflex and Back pain for some months now Run out of
Urso
and had to wait 5 days for more in this time my Back pain eased and Acid Reflux improved may be a coincidence i am seeing my Consultant next week M
Roccadave
in
PBC Foundation
7 years ago
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Differences in prescription
I'm sure I read on here somewhere that the different brands of
URSO
had different mixes/blends in them. I was originally put in ursofalk and have got past the side effects part. But when getting my next prescription found that it's a generic one.
I'm sure I read on here somewhere that the different brands of
URSO
had different mixes/blends in them. I was originally put in ursofalk and have got past the side effects part. But when getting my next prescription found that it's a generic one.
Angel_b
in
PBC Foundation
7 years ago
Adderall or Ritalin for brain fog/mood stabilizer and fatigue
I am not on any opioids just Linzess, metformin,
urso
, 2 supplements (Truvision), Weds/ b12 injection and Vit D w/ calcium supplement,
urso
(dose 2) then my as needed meds for nausea, laxative, sleep meds.
I am not on any opioids just Linzess, metformin,
urso
, 2 supplements (Truvision), Weds/ b12 injection and Vit D w/ calcium supplement,
urso
(dose 2) then my as needed meds for nausea, laxative, sleep meds.
cfsummerford72
in
PBC Foundation
7 years ago
very dry raised brown spots
I would like to know if any of you good people have had a lot of brown spots on your skin mine are mostly on my legs and arms and look terrible and I recently started getting very dry eyes so bad my eyelids cracked and were so sore and swollen I canceled my vacation to Mexico, appriactedI am taking
Urso
I would like to know if any of you good people have had a lot of brown spots on your skin mine are mostly on my legs and arms and look terrible and I recently started getting very dry eyes so bad my eyelids cracked and were so sore and swollen I canceled my vacation to Mexico, appriactedI am taking
Urso
susanashworth
in
PBC Foundation
7 years ago
Urso, weight gain & mineral supplements
Hi, I've been taking 500mg of
urso
a day since Dec & my weight has gone up by 10lbs! Is this a normal side affect? And please tell me it will settle back down!! Also, I've been getting lots of aches & pains in my muscles & especially my feet.
Hi, I've been taking 500mg of
urso
a day since Dec & my weight has gone up by 10lbs! Is this a normal side affect? And please tell me it will settle back down!! Also, I've been getting lots of aches & pains in my muscles & especially my feet.
Melani1
in
PBC Foundation
7 years ago
Slight electrical cramp that goes on-off in my left arm
I am newly PBC diagnosed and I am on
Urso
for my 3rd week. I am noticing like this slight electrical cramp on-off in my left arm and generally cramps and tiredness in my arms and legs, mainly in the morning.
I am newly PBC diagnosed and I am on
Urso
for my 3rd week. I am noticing like this slight electrical cramp on-off in my left arm and generally cramps and tiredness in my arms and legs, mainly in the morning.
ritarobainapbc
in
PBC Foundation
7 years ago
Urso, side effect jawl pain?
So a few weeks ago I started my
Urso
regime. 500mg twice daily. I do see a sliwing of the itch. I think it is causing some constipation . But what is troublesome is I am experiencing stiff jawl. It hurts just under my ear when I try to open my mouth to take a bite of food. Will this pass?
So a few weeks ago I started my
Urso
regime. 500mg twice daily. I do see a sliwing of the itch. I think it is causing some constipation . But what is troublesome is I am experiencing stiff jawl. It hurts just under my ear when I try to open my mouth to take a bite of food. Will this pass?
cfsummerford72
in
PBC Foundation
7 years ago
Just diagnosed with pbc
I will be starting on the
urso
and nervous about side effects. I have gained 10 to 15 pounds in the last few months. I don't know if it's pbc related. Any advice would be great.
I will be starting on the
urso
and nervous about side effects. I have gained 10 to 15 pounds in the last few months. I don't know if it's pbc related. Any advice would be great.
Vera70
in
PBC Foundation
7 years ago
Recently Diagnosed
Hi, Following a liver biopsy, I have now been diagnosed with PBC and have started taking
Urso
. I've stopped drinking...and already eat a healthy diet. Any advice for staying healthy and doing all I can to manage this condition?
Hi, Following a liver biopsy, I have now been diagnosed with PBC and have started taking
Urso
. I've stopped drinking...and already eat a healthy diet. Any advice for staying healthy and doing all I can to manage this condition?
mrsreddave
in
PBC Foundation
7 years ago
Increased salivatory glands
Anyone with increased salivatory glands when usint
Urso
- or can they be caused by PBC?
Anyone with increased salivatory glands when usint
Urso
- or can they be caused by PBC?
saarima
in
PBC Foundation
7 years ago
Ocaliva just came across this please read if you struggle with urso like me π
I have just come across this site https://ocaliva.com/ if you find it hard to take
urso
like me, this is another medication you can take for pbc π€π² I didn't think there was any other medication, please have a look, if likevme you struggle taking
urso
xxx hope this helps! ππͺπ»
I have just come across this site https://ocaliva.com/ if you find it hard to take
urso
like me, this is another medication you can take for pbc π€π² I didn't think there was any other medication, please have a look, if likevme you struggle taking
urso
xxx hope this helps! ππͺπ»
Shazzamattaz
in
British Liver Trust
7 years ago
Spider angiomas
I am concerned that these indicate cirrhosis despite having been told just 15 months ago by my gastro that I was at a very early stage, was responding very well to
urso
and had a clear ultrasound.
I am concerned that these indicate cirrhosis despite having been told just 15 months ago by my gastro that I was at a very early stage, was responding very well to
urso
and had a clear ultrasound.
Aussie05
in
PBC Foundation
7 years ago
Fenofibrate?
This would suggest
urso
not working. It says on the leaflet in the tablet box that you shouldn't take fenofibrate if you have liver disease. I read a bit more into this and while it does bring readings down there seems to be uncertainties about long term effects.
This would suggest
urso
not working. It says on the leaflet in the tablet box that you shouldn't take fenofibrate if you have liver disease. I read a bit more into this and while it does bring readings down there seems to be uncertainties about long term effects.
Jo53
in
PBC Foundation
7 years ago
AMA and ANA question
Hi, I was diagnosed in February and started on
URSO
. Just a quick question, do you normally have your ANA and AMA levels retested after initial diagnosis? If so, do they tend to stay the same or decrease, and by how much? Thanks, Kiki
Hi, I was diagnosed in February and started on
URSO
. Just a quick question, do you normally have your ANA and AMA levels retested after initial diagnosis? If so, do they tend to stay the same or decrease, and by how much? Thanks, Kiki
youaremysunshine
in
PBC Foundation
7 years ago
Green lipped muscle powder
I was diagnosed with PBC 10 years ago and take 2,000 mg of
Urso
daily. Thank you
I was diagnosed with PBC 10 years ago and take 2,000 mg of
Urso
daily. Thank you
Lozzy30
in
PBC Foundation
7 years ago
Pbc progressing ?
After initial shock I started on
urso
responded well .
After initial shock I started on
urso
responded well .
tessiecat
in
PBC Foundation
7 years ago
Bezafibrate
I have been on
Urso
for about 6 months but my levels have been up and down. I started on bezafibrate about 4 weeks ago and my ALP has gone from 686 to 377 ! Is anyone else on this , I still have the terrible itch x
I have been on
Urso
for about 6 months but my levels have been up and down. I started on bezafibrate about 4 weeks ago and my ALP has gone from 686 to 377 ! Is anyone else on this , I still have the terrible itch x
Melwoods
in
PBC Foundation
7 years ago
Ocaliva cost??
I just hope
URSO
works for me.
I just hope
URSO
works for me.
marty102
in
PBC Foundation
7 years ago
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