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Urso
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ALT and AST
I have been
URSO
for 4 months and will have bloods drawn in May. IF i am a responder (fingers crossed) and my ALP has started to lower, will my AST and ALT lower as well? Somebody told me that if your ALT is high, you definitely have cirrhosis….
I have been
URSO
for 4 months and will have bloods drawn in May. IF i am a responder (fingers crossed) and my ALP has started to lower, will my AST and ALT lower as well? Somebody told me that if your ALT is high, you definitely have cirrhosis….
Gaspereaux
in
PBC Foundation
1 month ago
urso / stomach issues
hi friends, I have been taking
urso
for a year. In the past month I have experienced stomach issues. Has anyone else taken
urso
for a while and then developed stomach issues after a good bit of time? Thanks for any feedback.
hi friends, I have been taking
urso
for a year. In the past month I have experienced stomach issues. Has anyone else taken
urso
for a while and then developed stomach issues after a good bit of time? Thanks for any feedback.
Samanthaann
in
PBCers Organization
5 months ago
Stronger sense of taste on Urso
Has anyone here noticed a stronger sense of taste whilst taking
Urso
? Specifically sweet and salty tastes seem much stronger since I have been taking them.
Has anyone here noticed a stronger sense of taste whilst taking
Urso
? Specifically sweet and salty tastes seem much stronger since I have been taking them.
MSJT
in
PBC Foundation
4 months ago
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Make sure you are on the right dose of
Urso
. This is SO important. On the PBC Foundation website there is a very informative link and use of the calculator. Please take the time to look at this.
Urso
dosage is ONLY based on your body weight - NEVER on lab results or symptoms.
Make sure you are on the right dose of
Urso
. This is SO important. On the PBC Foundation website there is a very informative link and use of the calculator. Please take the time to look at this.
Urso
dosage is ONLY based on your body weight - NEVER on lab results or symptoms.
DonnaBoll
Administrator
in
PBC Foundation
21 days ago
overlap RA, medication?
I have had PBC for 15 years, controlled well by
URSO
. In terms of RA, rheumatologist says this really limits medications given so many of the standard RA medications can damage the liver. For now I am on steroids. Can anyone else in the PBC community speak to any experience with this? TIA
I have had PBC for 15 years, controlled well by
URSO
. In terms of RA, rheumatologist says this really limits medications given so many of the standard RA medications can damage the liver. For now I am on steroids. Can anyone else in the PBC community speak to any experience with this? TIA
CeeCee101
in
PBC Foundation
1 month ago
Take all Urso dose at once?
He writes that it’s better to take all daily
Urso
dose at night. Advice on mine is twice a day with or after food. Any thoughts?
He writes that it’s better to take all daily
Urso
dose at night. Advice on mine is twice a day with or after food. Any thoughts?
DebatDG9
in
PBC Foundation
2 months ago
Joint/Muscle Pain
i have been experiencing this ever since I began my
Urso
journey three months ago. I am wondering if it takes longer than this to adjust? I have no other real issues with it. I have taken moderate amounts of Tylenol, but it really is not doing much, if anything.
i have been experiencing this ever since I began my
Urso
journey three months ago. I am wondering if it takes longer than this to adjust? I have no other real issues with it. I have taken moderate amounts of Tylenol, but it really is not doing much, if anything.
Gaspereaux
in
PBC Foundation
3 months ago
prescription
hi Every time I collect my prescription they give me my
urso
like this I was seeing if anybody else has this? I feel like when I change too the next box I get a pain on my liver side for a few days and itch a little more then it goes away same thing happens again when I start over again!
hi Every time I collect my prescription they give me my
urso
like this I was seeing if anybody else has this? I feel like when I change too the next box I get a pain on my liver side for a few days and itch a little more then it goes away same thing happens again when I start over again!
Lena2011
in
PBC Foundation
3 months ago
Immune suppression caused by Urso
Hi all, I only recently learned that
Urso
has suppressive effects on the immune system. One research paper I read, and there are others, lists the effects - apologies for scientific jargon!
Hi all, I only recently learned that
Urso
has suppressive effects on the immune system. One research paper I read, and there are others, lists the effects - apologies for scientific jargon!
Skypony
in
PBC Foundation
3 months ago
Experiences with urso, ocaliva and bezafibrate
Hi everyone!I was just curious about your experiences taking a combination of udca, ocaliva 10 mg and bezafibrates. Does it improve the itching? Did you notice any unwanted side effect from bezafibrate, e.g. in kidneys? Thanks for sharing and stay healthy and motivated!
Hi everyone!I was just curious about your experiences taking a combination of udca, ocaliva 10 mg and bezafibrates. Does it improve the itching? Did you notice any unwanted side effect from bezafibrate, e.g. in kidneys? Thanks for sharing and stay healthy and motivated!
nickey8
in
PBC Foundation
28 days ago
Terrible joint pains
Hi guys as diagnosed with PBC a couple of months ago but not started
Urso
yet as my LF are in normal range. however my shoulder / elbow is killing me at the moment ? What’s the best thing to take to alleviate the pain? eleni xx
Hi guys as diagnosed with PBC a couple of months ago but not started
Urso
yet as my LF are in normal range. however my shoulder / elbow is killing me at the moment ? What’s the best thing to take to alleviate the pain? eleni xx
Elkol
in
PBC Foundation
5 months ago
Wednesday Word
ALT can be elevated in both non responders to
Urso
and overlap diseases. When the ALT is significantly elevated, it always warrants investigation by your doctor. It can also occur from toxic effects of some drugs (i.e. Rifampicin).
ALT can be elevated in both non responders to
Urso
and overlap diseases. When the ALT is significantly elevated, it always warrants investigation by your doctor. It can also occur from toxic effects of some drugs (i.e. Rifampicin).
DonnaBoll
Administrator
in
PBC Foundation
23 days ago
Help confused with diagnosis of pbc
Hi just been told I have pbc refusing to belive and have been kind of trying to ignore it but can't stop worrying meant to start
urso
2 weeks ago still not started, could they get it wrong?
Hi just been told I have pbc refusing to belive and have been kind of trying to ignore it but can't stop worrying meant to start
urso
2 weeks ago still not started, could they get it wrong?
Misn
in
PBC Foundation
6 months ago
Fibroscan Results with PBC
I've read online that bloods should be monitored after a month of starting
Urso
. (I'm UK based) Thanks in advance.
I've read online that bloods should be monitored after a month of starting
Urso
. (I'm UK based) Thanks in advance.
Becks880
in
PBC Foundation
5 months ago
urso non responder
hi , does anyone know the criteria of being a non responder? Does the number have to be elevated by a certain amount for a period of time. What would the number have to be elevated to? Im having trouble trying to find details. Thanks for any information.
hi , does anyone know the criteria of being a non responder? Does the number have to be elevated by a certain amount for a period of time. What would the number have to be elevated to? Im having trouble trying to find details. Thanks for any information.
Samanthaann
in
PBC Foundation
6 months ago
New Diagnosis of PBC and Prescribed URSO
Hello Everyone, I recently was diagnosed with PBC and went to see a GI doctor who recommended I start taking
URSO
.
Hello Everyone, I recently was diagnosed with PBC and went to see a GI doctor who recommended I start taking
URSO
.
Toddyboo
in
PBC Foundation
2 months ago
urso capsules vs tablet
hi everyone, My insurance stopped paying for
Urso
300 capsules. They will pay for
Urso
250 tablets. Does anyone know the difference? Do they work the same? I hate to change if what I am taking works. Thanks.
hi everyone, My insurance stopped paying for
Urso
300 capsules. They will pay for
Urso
250 tablets. Does anyone know the difference? Do they work the same? I hate to change if what I am taking works. Thanks.
Samanthaann
in
PBC Foundation
8 months ago
Gabapentan/neurotonin
I know it does not cause liver issues and does not react with
URSO
. Has anybody else with PBC taken this as a nerve blocker? I am not home to ask my doctors….
I know it does not cause liver issues and does not react with
URSO
. Has anybody else with PBC taken this as a nerve blocker? I am not home to ask my doctors….
Gaspereaux
in
PBC Foundation
4 months ago
Sore throat on urso
Hi Has anyone experienced a constant sore throat when starting
urso
? I started 3 weeks ago and have been feeling fine, but last 10 days I have had a sore throat when swallowing and I have no infection present when checked by my gp. So just wondering if anyone else has had the same. Thank you
Hi Has anyone experienced a constant sore throat when starting
urso
? I started 3 weeks ago and have been feeling fine, but last 10 days I have had a sore throat when swallowing and I have no infection present when checked by my gp. So just wondering if anyone else has had the same. Thank you
Misn
in
PBC Foundation
5 months ago
Seladelpar update
By that I mean that for some reason someone was not responding to or not able to take
Urso
. 40% of patients are failed by
Urso
. Cymabay, the pharma who manufacturers Seladelpar, is completely committed to work on drugs for PBC patients.
By that I mean that for some reason someone was not responding to or not able to take
Urso
. 40% of patients are failed by
Urso
. Cymabay, the pharma who manufacturers Seladelpar, is completely committed to work on drugs for PBC patients.
DonnaBoll
Administrator
in
PBC Foundation
4 hours ago
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